i was diagnosed in dec HER 2 positive stage 3 Breast cancer.
had the most awful chemo hit of doxataxel, carboplatin, herceptin and pertuzamab.
i was unwell during the whole 4 months plus of chemo but I came out the other side.
If sickness is the main problem ask to be prescribed EMEND aprepitant. And also I had another sickness drug given at same time as chemo beginning with P. After both these extra drugs were prescribed it really helped me a lot. I do know that both are expensive so they are reluctant to give patients but ask them EMEND is taken on the day of chemo one hour before then day 2 and 3 as well as your other meds they prescribed. It was a god send to me. I have a friend also that had really bad sickness etc I told her about my extra sickness drugs and she asked and they were really not wanting to prescribe them due to cost but eventually after she kept asking they gave in she is feeling much better. Chemo is awfull and I also did cold cap as well during the whole 4 months which was another dread each time but I still have all my hair so it was worth it. You will come out the other end and to be honest the time passes quickly and when you finally finish and you start to feel better you never complain about the small things that you use to ever again. It makes you stronger xxxxx
Just found this sight and very happy I did. Going to get my 5th (& hopefully final chemo on May 13)
What is the prognosis for regrowing hair?? i have a couple of wigs, but don't like them. I have heard that it grows back thicker and darker??
thanks guys and hang in there
Seperately, I am soon going to start weekly paclitaxel - I'm told its calmer on the body and tolerated better than three weekly - how did others find this? Do you have any recovery during the weekly cycles. I fortunately have tolerated AC well with a few SEs but touch wood nothing major. Hoping it will continue this way. x
I had a PICC line put in and it was a very simple and pretty painless procedure - I have it in my left arm and its saved me a load of hassle in terms of when I am at the chemo unit. I got a shower cover for it from Amazon.
The only thing is it needs cleaned every week and I have a nurse come on a Wednesday that I am not in chemo to come and clean it but they never give a time so it can be a wait indoors all day but there are worse things!
Be aware of the positioning of the line - mine initially was put in and it tickled my heart (felt like a butterfly!) so they had to adjust it.
I purchased some fun long socks and cut the ends off to create a comfortable cover. Also my nurse suggested naming the line - mine is called Jean Luc (Picard!)
I have a PICC line and it took a few weeks for it to really settle for me. Some hospitals use a clip to keep the thin tube in place. This clip can irritate a bit whilst it settles down. However the PICC line makes the whole process of chemo and taking blood tests etc much easier. You might need a waterproof cover for showering etc. This is the one I bought:
You can get these on prescription but I couldn't wait and just bought it. It arrived pretty promptly too.
The PICC line will need flushing and redressing (just a clean-up and put a waterproof plaster on it) weekly and this is done either by the District Nurse or can be done in your local GP surgery.
Some people find it a bit yukky if they think about it too much. It's not very attractive I admit and you may not feel comfortable wearing a no-sleeve t-shirt or top. One of my colleagues nick-named it my "USB port" (we work in IT) 🙂
Personally I would recommend it over getting repeated cannula insertions.
Hope this helps,
Hello, I am new to this forum. It's seven weeks since I had my mastectomy, had a few problems with my wound but almost there. My FEC treatment is due to start next Tuesday, I am due to see Oncologist on Monday at at some point before chemo an due to have ECG and have PICC put in, just wondering how others coped with PICC.
Check out www.heathershair.co.uk. It's a charity that provides human hair weaves to be worn under a hat or scarf. It was a great addition to my wig and probably ended up wearing
my HH weave more. Hope you ladies find a manageable rountine for all your treatment.
My name is Maz and I am a nurse facing my first of 6 ec cycles next Friday. Triple negative with clear nodes so no option . Will have 3 weeks of rads after.
If no delays and well going to try to squeeze 5 days in Venice before rads -- I will be 4 weeks post last cycle and did mention it at Oncology meeting .
Feel much happier after reading all your comments and the Chemo list is excellent. I am very lucky as I have lots of nurse friends keeping an eye on me and one of them had chemo for breast cancer 9 years ago. She's fine. I work on a busy Coronary Care so due to infection risk won't be at work but on full pay for 6 months so really grateful for that xx
Just nipping in from April 16 with a quick question. I start 1st fec next Wednesday and have appointment come through for echo cardiogram the following day. Can I ask how people felt the day after I know everyone is different but worried about I will feel getting to hospital/being scanned etc.
I finished 6 cycle of chemotherapy 3FEC + 3T after 4 week I still have pain into my legs and hard to walk. I feel like as if I just run the maraton. Did anybody experience something similar? Could anybody tell me when it will stop hurt and my tiredness will go away? I think I ungergo really well chemo and suddennly when I finished it got hard.
Hi everyone, new here, pleased to meet you. Day 6 of lying in bed following 1st docetaxel. It gets better apparently but it's taking its time. No patience. Pam. X
I`m having the same treatment as you, only the other way round so Taxotere first. I`ve had very few side effects, the worst one being aching bones and I gather this is because of the injection to boost my white cells, rather than the actual chemo. I don`t think you are a wuss, everyone is different and I`m dreading the FEC so there you are!
My top tip for managing is to remind myself everyday that this too will pass. Don`t read Dr. Google, it`ll do your head in! Keep your mouth fresh with a nice mouth freshener. Eat what you like when you feel ike it.
Stay away from sad people.
Keep the faith!
Your journey will be worth every moment when you have finished the treatment.
Big hugs. xxxxx
I have been making soup for her daily consume..hope she could be better soon. You are right, i get a bit angry when I know that she hardly eat. I will try my best to calm myself down and try to ask my mum to take more meal in small amount..
Hi Tina and ladies xx
Not been on sire for while logged on tonight to see how everyone bis doing?
I had chemo no4 mlast friday, long day with the observation wait of six hours. Doxetaxal and herceptin, my mum and sister in law came with me for support and company so the day went well. I'd been fine on 1 &2 no 3 bad for 3 days achy sick. I had reduced my steroids as I found they made me anxious and my heart constantly pounded! I knew I had to be a good girl and take the precribed dose this time. My nurse told me that by reducing the steriods I'd probably made the symptoms worse!
Sat sun I was fine but this week Ive actually stayed off work, no sickness racing heart but terrible aches pains, did I rwad someone said you felt youd been hit by a bus!? Well it did! I wont worry if this is how it is? This is why the forums are so could, helpful reassuring. Going into work tomorrow but to be honest quite liked the peace and quiet of working from home with no iteruptions.
Went to the christies colour me and make up feel good this week. The make up course was fab and I would highly recommend it. Itvwas lovely to meet other ladies and the make upmladies were allmso helpful and encouraging! Some fab tips and went away with a bag full of amazing goodies!!
Love to all xx keep brave xxx Sue x
Hi..i am new here and i am from Malaysia..
My mum diagnose with BC last Oct 2015 and had her operation on her right breast in Nov 2015. She has started her chemotherapy since end Dec 2015. Oncologist advice that she need to have 6 dose of chemo. As of now, she had already gone thru 4 dose, but the last dose she caught in fever and her white cell blood was low. So, she was admitted for 5 days till her wcb increase to normal level. However, she has totally loss her appetite and hardly eat. She is 63. Just wanna ask how could I improve her appetite?Thanks a lot!!
Hope you're doing ok. I've now had 2 sessions of TC (taxotere/cyclophosphamide). In terms of food just eat what you fancy & can get any taste from! I found the taste issue wasn't too bad after 1st chemo but definitely feeling it since the 2nd round. I'm trying grapefruit & pineapple at the moment, which are both good. My tongue was sore after the first round & sucking on fruit ice lollies was refreshing. I like drinking sparkling water but find its got a 'funny' taste at the moment so am adding cordial to make it more drinkable. After the 1st chemo I was up and about within 2 days out walking for 3 miles, big mistake! The following day was aching, sick & very tired. After my 2nd dose I gave myself 3-4 days of rest before tackling any too adventurous. You will find what's best for you, we are all different and some take longer to gain some strength back than others. I find writing a diary of my side effects is useful for referring back to, you know what to expected or can change how you dealt with something. Love & best wishes, Vic
i am am from dev thread and have had 3FEC and 2 Taxotere so far. In a nutshell eat what you fancy when you fancy. I find bland stuff easiest for the first few days, toast, eggs, potatoes, rice etc. I find meat tastes odd and has a strange texture but cheese is ok. Pineapple is good when you have a sore mouth and anything ginger helps with the nausea although mine wasn't too bad. I haven't been sick once during my treatment thankfully as I hate it.
Hi Jenni North,
Welcome to the forum and I am sure users will be along soon to offer support and tips.
I have moved your post to our busy and supportive Top tips to help get you through Chemotherapy thread to give our users more of a chance to respond.
Digital Community Assistant
Hi Sue....... You started chemo same date as me and haven't heard from you for ages on the December thread. Wondered how you're doing?? Xxx Tina
Tip for getting through pain of chemotherapy is only useful if people know about the drugs that they are taking. People fighting cancer can find informaton about the specific side effects of drugs in the following link. This will help them to find appropriate alternatives conteract the side effects:
Pammy I used the paxman cold cap and was also given a wheat bag warmed up in the microwave which I used although not near the cold cap - maybe you could take one and ask them to warm up for you - also I had a pillow and duvet. I also took a 5mg lorazepam which the hospital gave me and that really relaxes you and I slept a lot through mine. I finished at end October and kept most of my hair on the 12 weekly Paclitaxol. I also only washed my hair twice a week and used natural "Lush" products, a wide toothed comb and slept on a satin pillowcase as the satin is more gentle on your hair. Good luck everyone xxx
New to the forum ladies. Started chemo 18th dec , next one 8th jan. We were planning a long haul hol this march folloeing tge end of my partners chemo ended in Dec 15. However, mine with radio end in summertime. What is the policy for flying and any details travel ins greatly appreciated.
Love and good luck to all Sue xx
thank you . i had my dobule fect dose on boxing day . so day five today my throat feels like raw flesh.. and hard to sallow. so water tip is great will start ... already coming out in sore spots in head and face. my musells feel like i have been badly hit by a huge bat . so good to hear not just me . so again thank you xx
Hi, yes must remember to take a small blanket, thank you for that, as my daughter had to have our coats piled on her to keep her warm when she wore the ice cap. Keep well.
Hi, my name is Pam and I start EC at the end of this month. I will try the ice cap, hopefully it will work but if not I tried. My daughter went through a different chemo three years ago, so sort of expect some uncomfortable effects. Hope everyone get through this with too much discomfort.
I had my first round of 8 yesterday. EC for 4 rounds then taxol for 4 rounds. The cold cap was bearable. After about 10 minutes you get used to it. Well kind of. Make sure they put padding on the top if there's any gaps and make it as flat as possible on the top. I also used a scarf and tied it from the top of my head to under my chin to make it as tight as possible! Got to do what you can. I've been told that my hair will definitely fall out with taxol without the cap so nothing to lose. Only 1 day it but so far so good. I would just say to bring layers and use a blanket and watch a movie or something that's going to distract you.
I finished fec-t 2 yrs ago this month.
my top tips for getting through it:-
Drink 2 litres of water the day before, the day of and the day after chemo - don't chug it, just sips throughout the day. I discovered this tip before 2nd fec and felt soooo much better than after 1st dose.
Steroids - take at 8am and noon, I had no problems with them or sleeping.
Take all the meds they give you - if you wait till you feel sick it's probably too late.
I was allergic to metoclopromide so this was changed to ondan something whch did nothing for me so ended up on Emend, granesetron and cyclazine - I still felt a bit weird or wired even lol
If you're sick you must tell your team they've loads of meds in their arsenal to choose from so don't suffer as there really is no need.
I felt much better on this regime but did suffer with awful pain days 5-8, paracetamol/ibuprofen/codeine combo didn't touch it. I felt like I'd been beaten up with a baseball bat.
Onc gave me the 'steroid tale' for the remaining doses whch yes was more steroids but it worked like a miracle cure.
this one affects your nails - my onc advised I wear a solid colour varnish (no it doesn't have to be black) the thinking is that the chemo reacts to ultra violet light in the nail bed which can cause the nail to lift. I never left the house in day light hours without putting on gloves even when just nipping out to the dustbin. I wore nail varnish throughout and although my nails felt bruised at times I didn't lose one - could be coincidence...... Ooh don't forget the same applies to your toe nails but obviously socks not gloves lol
as for hair - I didn't cold cap and my hair started to fall around day 17, I clippered it to a grade 3 before 2nd dose. My hair is now shoulder length.
good luck to you all x
Yes, I had full node clearance but I checked with my oncologist before booking and she said to go ahead with it. To be honest I was more concerned with vaccinations and hadn't thought about the nodes 're risk of lymphedema but I'm sure the onc would have considered that. I hope so because it's all booked! x