I am so pleased that things have eased for you! It is also very reassuring!
It is early days and I won't give up. I also know that there are drugs that can calm it if all else fails.
I have a very good sports therapist so I have also booked in to see him after I have seen the consultant so that he can have a look.
I really hope your journey continues to be a positive one. I have not found much support from professionals but this site has been a great comfort.
I'll just be pleased to get this bloody bra off! I swear that it is not helping the circulation!!
Lots of love xxx
Ten weeks after my first op it's now just an occasional twinge. Hope that's reassuring!
At some point I also rang the general Macmillan helpline about it and they were great. It might be worth trying them for advice. The only thing I found to ease it at the time was very gentle massage with warm water running over it. Tricky before the dressings are off but worth trying, especially on areas further away from the dressing.
I really hope it starts to improve for you soon. Please don't give up on anything yet, it's all a bit slower than I expected but progressing nonetheless.
How is your pain now?
I am two weeks after my WLE and SNB. I completely underestimated how it would affect me!
The lumpectomy is fine. Dressings are off and wound has healed nicely. Boob is a bit swollen but that is to be expected.
What I am really struggling with is the aftermath of the SNB. They took the lymph nodes through the same incision as the lumpectomy so luckily I don't have another wound.
However the site is visibly lumpy and I have a tightness from the site into my armpit and down the inside of my arm. It also stings!! My underarm (tricep area) feels like it is very bruised and hurts to touch. I also have a horrible pain in my back level with my boob.
Anti-inflams dont touch it and I am doing the exercises but its not improving at the moment.
I have told my BCN but she is very dismissive of me and has not offered any advice.
I have my follow up appt on 13.2.20 so hopefully the surgeon can give me some advice.
I really hope your pain has eased! It will me to know it has as well! I am a competitive swimmer and trail runner and at the moment, I am scared I wont ever be able to get back to it!!
Thank you Jaybro.
Sorry that you had to have such extensive surgery.
Great to know that there are suitable painkillers available in case it persists and yes I'll definitely continue with the exercises and cushions.
All the best x
I’m not sure I have great advice for you as my best solution was to prop my arm with a heart shaped pillow (I’ve noticed you can order ‘mastectomy pillows’ online, some free for the good cause) and train myself to sleep on my back. I had a full axillary clearance along with a mastectomy so all the pain kind of coalesced into one! However, 14 months on, I still get noticeable discomfort under my arm - not surprising when you remember they have had to sever nerves. But it’s early days for you. Your brain now needs time to rewire, recognise the false messages while it heals and stop alerting you. Meanwhile, if it is nerve pain, your GP can prescribe something like amitryptiline or gabapentin, both of which work very well on nerve pain. The usual painkillers won’t touch it - as people with shingles can tell you! The other thing is to keep moving. Do the exercises/stretches recommended regularly so the area doesn’t heal too tightly. It may be quite painful right now but it’s an important investment for the future.
Best of luck with your treatment
I had a lymph node biopsy and wide local excision about ten days ago.
Remarkably little pain in the first days after surgery, then developed soreness and tenderness under my arm, including the area well above the dressing. I initially thought it was chafing but it seems to be nerve pain.
Does anyone who experienced this have any tips? Painkillers don't seem too effective (I've switched from paracetamol to ibuprofen as it's supposed to be more effective for this). So far I've found that sleeping with a cushion under my arm really helps, as does running warm water over it in the shower. That doesn't relieve it for long but it'll be good to do that more once the dressings come off.
Wishing everyone the best with their treatment.