How have you decided? I'm in similar shoes, and I was curious if the allowed me to be have scans if I turned down chemo and hormone treatment?
Thats good news, it’s so hard not to panic. I don’t think people realise if they aren’t going through it like all of us. I do relax a bit more when I don’t have a scan booked for a while but as soon as it’s nearly Scan time and waiting for results I go into the scanxiety mode.
glad you aren’t having too many side effects too, fingers crossed it stays like that. It’s a lot of tablets to take , I’m on 2300mg am and pm, just knock them back as quick as I can 😂.
My oncologist calls me every 3 weeks now, on my week off after bloods, which incidentally I don’t yet have my next bloods appointment yet 🤔, I must chase this up.
Are you on anything else with the capecitabine? I am on denusomab and zoladex.
Hi Clare’s. Went to see the Oncologist today face to face I was so nervous about what she was going to say about the C T scan but I was so pleased she said one Tumour had grown in lower back a she said it is very tiny and all is stable at the moment god I was so relieved. I am on my second cycle of Capecitabine , have only had Fatigue hand’s and feet are ok, Oncologist is ringing me in six weeks to see how I am getting along on the tablet’s so all good at the moment, I have heard good reports about this drug so hopefully it will work.Good luck hope you are coping ok.x
Glad you haven’t had too many side effects. I’m on my 2nd cycle, my dr said scan after 3/4 cycles. They are all so different. It’s easy to say don’t worry as I get scanxiety every single time. Fingers crossed all is well for you.
Let me know how you get along.
Hi all on Capecitabine. I am on my second cycle of this drug, had a Scan on Friday and Oncologist wants face to face on Wednesday just wondering why she want’to see me so soon I am worrying now that there is something on the scan that’s worrying her, have not had any side effects really just Fatigue and two sickness episodes when I felt sick but no vomiting, I do suffer from scanziety and am terrified she is going to tell me I am going to die.xx
Hi Mounties, I have just started capecitabine, I am currently on my week off. I too had an area in liver so they moved me from palbociclib/ fulvestrant to capecitabine. So far so good, I am moisturising my feet and hands twice a day in case of the hand/foot issues. I also had a bit of acid reflux, solved now with omeprazole (taken 2 hours before). It is a struggle all this we have to go through but there are lots of different regimes and I have read up and seen on forums this is a well tolerated drug and is also good for liver etc.
and like Lesley says drink plenty of water, I do have to make myself as it’s all too easy for me to have another cup of tea ☕️.
Take care , keep us updated of how you are getting along and likewise.
Hi don’t think about how long you have got I am sure you will go on for year’s be positive and forgot if you go on Cape drink plenty of water.
Oh Lesley I am so relieved to read your reply. I have been worrying night and day about going on these tablets after reading all the possible side effects they can cause. When I had chemo 16 years ago I had a really tough time with lots of sickness and always said I would never go through it again. But now I don't have a lot of choice if I want to live longer then 12 months.
I hope we can stay in touch. Thank uou again , xxxx
Hi Mounties. I was exactly the same as you I was on Fulverstrant but stopped working also had more Tumoursin my spine after having a MRI scan, I was terrified wondering if there was more treatment Oncologist has put me on a chemo Tablet Capecitabine been on it a week no side effects so far but early days, I am 77 so older than you, it’s your choice I chose the Chemo tablet option. I have got a CT scan next Monday and a face to face with my Oncologist who has been absolutely great I do get Scaniety so not looking forward to the results . Capecitabine is supposed to be a good drug there are ladies on here who have been on it for quite a few years.Good luck let me know how you get on.
I recently saw my oncologist who told me my secondary breast cancer has now spread to my liver. I have been having Fulvestrant injections in my buttocks every 28 days which I found very painful but seemed to work at keeping the cancer in my bones. I felt I could carry on living for years and felt I had choices. Now I've been told I either start chemo tablets twice a day for the rest of my life, or I take nothing.
If I take chemo my prognosis is 3 to 5 years, without chemo my prognosis is 12 months. How do I decide? I am desperate for advice. I'm not sleeping, I cry for no reason and I am terrified of leaving my wonderful husband and family. I am 66 years old.
My oncologist will ring me on the 7th October to ask my decision.
Please, please can someone help me know what ths drug is like