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Chemo Buddy Needed - Anyone Currently on Eribulin?

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Optimissy64

ooooh that smell is worth everything isn't it, just being around horses is wonderful  xx

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

hi Spudgirl,

really hoping for you that Eribulin is the drug thats going to work.

 

I haven't had any nausea with Erib and have found the SEs much easier than other chemos.

 

Good luck for Monday,

xx

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Moijan 

what is rooibos tea? and we're would I buy it from I will try anything I have head chemo nurse practitioner ringing me later about my indigestion, my breast nurse came today so told her about it and is going to have  a word with them also what is the best day to start a laxative perhaps I am leaving it to long by waiting 2 days 

also looking rare side effects up with nurse this morning it also causes loss of body fluids so perhaps it is drying me out more than usual just mentioned if being constipated was causing indigestion as well 

 

you seem HAPPY today 

 

take care

cyber hugs

 

kay

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Spudgirl

welcome not a nice place to be but I am also a newby just had my 1st cycle not been to bad but that fatigue is something to be aware of constipation indigestion from my point of view at this stage but all the ladies on here are very helpful and have helped me so knowing how  things have gone for others in advance have helped and emotionally as well 

I wish you well for Monday and hope it goes as well for you it has not been as bad as some and I have managed to walk the dog 6mile a day 2 days after chemo 

 

giid luck 

 

kay

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Ooh, twice bleeped for mainecoon now xx
Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Helloooo Everyone

Welcome to the thread - am sure part of the attraction is the recent emphasis on swearing! Anyway welcome, have a seat and cuddle up for the ride xx

Just went to bed for an hour as felt 'fair puggled' as Oor Wullie would say( I'm not explaining- you'll have to ask Waffles if you want to know what it means!)

Yes, I looked up p- egged and I once got bleeped for saying I had had a Maine-**bleep**

Kay, I had a lot of probs with constipation, which can contribute to urine infections,- which I have also had too many of on Erib. I find water or Rooibos tea by the litre... I now make myself a measuring jug of tea often -esp on the chemo days and days after and ensure I drink about 2
Litres of fluids. Movacol did nothing for me! But each to his own favourite tipple

Am off to do the school run soon so will catch up with you all later xx

Spudgirl
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Ooh! Moijan and Carolyn52, just noticed you two are on this thread xxxx I'll go and see if I recognise any other names x
Spudgirl
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Helloooo!

 

I'd like to join this thread please.  I'm just about to start Eribulin on Monday 🙂

 

I'm Triple Neg.  Secondaries in neck, breastbone and lung.

 

Was diagnosed with secondaries end May 2016.

 

Had Docetaxol then Carboplatin, neither worked.  Hoping third time lucky with Eribulin 😉 

 

I'm hoping the SEs aren't too bad.  I didn't really have problems with the previous two chemos, apart from usual nausea, constipation, feeling a bit rubbish etc.  However I did end up in hospital after most sessions due to fever and/or neutropenia .

 

xxx 

Optimissy64
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Thanks withasmile. So important to do things that we enjoy, isn't it? Will have a little ride when my Dexa results are back. A back-protector is a good idea. I can ask the stables for a steady old horse when the time comes, rather than the nice fast ones i used to ride on the Sunday afternoon "Kamakhazi ride" I used to go on - flat out gallops accross the fields. I think I'll give them a miss nowadays!!! 🙂 (But I still love the smell of a sweaty horse.)

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

WELL I NEVER Withasmile I certainly will be smiling when I put the washing out ha ha I will enlighten my neighbours and friends this afternoon 

Tiko gone to vets for booster with husband so hope he behaves

 

kay💤💐

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Well look up the p ing now I know it is a bleep though when I said I had Maine **bleep** it did a bleep so at to make it mainecoon all one word 

kay

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi All

srcond dose same problems constipation (I can not eat any more fruit or drink more water ) I will explode indigestion NO fish and chips just a veg stew which I also had Thursday but got no indigestion but Friday started at 7 pm lasted for 2 hours but did not get to jaw this time I am wondering if the movicol I should start on Thursday because it may be because of the constipation and stuffing fruit in my Face drinking boiled water on the hour  and the wind is getting trapped my daughter also does me a nutri bullet drink with fig in it every evening 

i am sorry I missed the joke I will look the word up later I am sat waiting for my nurse to arrive 

I felt dizzy this time as well and felt as if I had a head cold last week it was my nose and felt if getting a cold so not sure if there connected or not but the indigestion and constipation def are 

hope you are all keeping as well as you can 

am I looking up Epping **bleep** will nip back and look

 

kay

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

thanks Kay, much appreciated

xx

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

hiya Optimissy64,

 

gentle hacks around the lanes will be perfect now the weather is getting better.

 

I have to confess I've ignored medical advice and Dexa results and carried on riding when I shouldn't, altho I've taken the precaution of wearing a back protector. I came off a couple of weeks ago (when that horse wasn't being quite such a sweetie!) and was surprised my pelvis stayed in one piece.

I think both he and I are probably old enough to know better- he's 23 and shows no sign of acting his age- and I'm determined not to bow out gracefully!

 

Let me know how you get on

xx

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Withasmile😸

Love the horse he certainly seems to be enjoying himself years since I have ridden one the feel of freedom when out on a horse is great 

GOOD LUCK with your scan today hope all goes well everything crossed for you a very nervous time butterfly belly today 

 

will check back later see how you got on

 

kay

 

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Love them purple?

pussy
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi nicky08

yes I must have been on the site since 2010 when I got my secondaries that were Missed initially 

and I emailed lemon grove a few times she gave me the lift then when scottielass  said she was 20 years in it gave us all hope. Good we are still here nicky 08  9 years since your secondary diagnosis 7 since mine but I know 2?years before something was wrong but they missed it because of protocols scans can only be done to  doctors words and they scanned upper right quadrant and it was in lower left on sternum 

sorry not replied earlier but not been to good (chemo)but feel better today)

 

take care hope hope you get another 9 or even more

 

kay


@nicky08 wrote:

Hi spongebobs.

I'm gatecrashing as well!

Helen, hope you are OK after yesterday's dose and the SEs don't get too bad.  I expect you are looking forward to the week away from hospitals.  Although if Moijan's comments that in the 3rd week she speaks her mind maybe you should watch out where you go!

Pussy/Kay. It was so interesting to read one of your posts when you mentioned Lemongrove and also Scottishlass.  I remember them well and LemonGrove in particular helped me with all her information about receptor status changes.  The lovely Scottishlass was one of our little group of Darling Buddies of May.  We started off as a support group in May 2008 when we all started chemo together - some primary ladies and some, like me, a SBC lady.  Unfortunately we have lost a lot of those original ladies and Scottishlass joined in with us after a couple of years.  It was a big shock when she passed away, she had lived with SBC for such a long time and was, as you say, a real inspiration.  How we miss them all, although the rest of us are still going strong some 9 years down the line!

Good luck with all of you on the Eribulin train - let's hope it works as well for you all as it is obvioulsy doing for Moijan - grear news from the scan.

Nicky x



 

 

Optimissy64
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Oh what a sweetie that horse is. Reminds me of how i want to get back to riding again, despite the arthritis. It'll just be gentle hacks round the lanes of my local stables now though, and will wait till I get the baseline DEXA scan results back, as if my bones are a bit thin don't want to fall off and break something on top of everything else........ 

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Tried it but it really wasn't me!
Lovely horse pic xx
withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Moijan-

muddy horse to cheer your day. I've just noticed he's flippin well smiling for the camera!

 

Love the coloured 'bobs, are you going to be purple?

xx

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

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Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

 
Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

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Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Oh, I do love your replies Withasmile....

 

how about a snap of your muddy horse....that would really make my day go 'with-a-smile'......

or rather with more of one!

 

xx

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

thanks Moijan,

 

family and friends seem more anxious about the results than I am.

Maybe I've just got resigned to it all by now but I can't see much point fretting. I'm determined to have a really fab week!

 

Off now to scrape some mud of the horse who seems determined to roll in the muddiest part of the paddock.

Looking forward to seeing the avatar colour selection

xx

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Withasmile,

 

yes, very best wishes for your results...am working on your suggestion re the avatars in different colours.....

hugs,

 

Moijanxx

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

thanks so much Marnster.

 

How are things going with you at the moment?

xx

Marnster
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Wishing you the best with your scan, Withasmile. I hope you get positive news. 

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

hi Abney,

 

sorry to hear you've been having such a hard time since your secondary diagnosis.

I really hope this is the turning point for you and Erib works well.

I expect your son is really pleased to have you back home?

 

Its a lovely group here, really supportive and has helped me a lot

 

I've had cape taxol and fec in the past and I def find Eribulin a lot easier to cope with after those three. I've just finished my 6th cycle and have a scan tomorrow to see whats happening.

 

Wishing you well for Wednesday

xx

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Abney
Very very welcome xx

Just starting week 2 of cycle 14.
Lovely to hear from you

moijan💚💚💚
Abney
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Eribulin ladies

 

ive just started the drug so was wondering if I could join you all? It's my 3rd chemo since October (cape and paxitaxel) and I had fec- t 3 years ago! 

 

My secondaries were diagnosed last September in lungs, chest lymph nodes and pushing up against sternum. Had 4 admittances to hospital with pluradesis and a clot on the lung! Just got out again last night! Also have a fast heart rate, fluid around the heart and breathlessness!! Happy days!! But now need to move forward and concentrate on this working!! I have a 5 year old Autistic boy who needs me so need to hope Eribulin is my drug!!! Oh and I'm triple negative too!! 

 

Been reading though a bit of of the thread and you girls have made me laugh with the bleeps! Generally I have a cheeky sense of humour so it's good to laugh again! 

 

Next chemo on Wednesday so hope that is ok! 

Hope all your treatments are going ok? Sending lots of love

Abney xxx

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

love it Carolyn, best laugh I've had all day xx

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

well, suffice to say its to with strap-ons and the rest made my eyes water!

(I'm sure we'll all be safe wearing our big knickers)

Carolyn52
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Withasmile
Omg ..I've just googled it too ....it's very naughty ...soooo apologises I just didn't know about that !!
It was an innocent slip up ..so I must now HANG my washing out with the help of some pegs !!!!
Ha ha ..just as well we have a sense of humour here ....
I expect I will be banned now by the moderators !! Whoops

Carolyn xxx
Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

And....?

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

hahaha!! have just googled the Urban Dictionary meaning....well I've learnt something new today (blush)

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Oh, now I see...it did go! How very strange x

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

well, just typed your really filthy word, eg egging with a p on the front three times and the website couldnt cope...it just wouldnt go!

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

**bleep** **bleep** **bleep** 

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

So...actually, we could type sone really naughty words, like b u m, d a m n, b l a s t, p a n t i e s,

s o d, etc and not get bleeped! Xx

 

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Ooh,same for me. Typed p e g g i n g but all joined. Up...how very weirdx

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Not sure...will try it myself... Here goes **bleep**

 

Carolyn52
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Moijan
I don't mind being bleeped for a genuine naughty word but the bleep was :
Egging with a P in front of it ...we all do that when hanging out washing on the line don't we ? Or am I being a numpty ..does it have a hidden meaning ?
Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Not an off day, 0r a 'p off ' day!

Did too much pesterday. ....., ooh ! See.. the iPad is punning for me...... should have read yesterday! Have been catching up on my sleep... in big knickers.... and with a hot water bottle in bed. I wonder what Carolyn's word really was? Which earned her a bleep
?gues we will never know!

Moijanx
Carolyn52
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

The bleep is what u do when u put washing on line "egging " with a p in front ?
Confused .com ?
Carolyn52
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Ps ..why have I been "bleeped: on the word **bleep** ..it's not a naughty word is it?
Carolyn52
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Be loud and proud ladies with the Brigitte Jones pants better than the thongs I used to wear which resembled dental floss up my b.m!!
I do confess to tumble drying them though and not **bleep** them on line to billow out like my grans bloomers used to !!
Moijan: I sense you are having a " off" day today so hope u r better soon.
Well ..better go as I'm not technically speaking a erubicin buddy .
Xxxx
withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

 

I reckon big comfy sensible knickers could be listed as a side effect of cancer?

 

Dunno about the rest of you but big knicks and a beanie hat seem to be my wardrobe staples these days- gotta cover those bald bits! 

xx

 

 

 

withasmile
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

I think we should all have the same avatar but in different colours xx

 

Moijan
Member

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Yesxx