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Chemo Buddy Needed - Anyone Currently on Eribulin?

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Re: Chemo Buddy Needed. Anyone Currently on Eribulin?

Hi Moijan! You are seeing great results! That's excellent news. I probably won't have a scan until after Christmas to see if things are improving. That will give me a few rounds under my belt.

 

I've been a bit disappointed to find I have been a bit affected by Eribulin. I wasn't sick at all on my chemo last year and was really lucky to have pretty mild side effects. However, I've felt quite queasy and had no appetite so far with Eribulin. I was really confident it wouldn't affect me at all! I also had a really sensitive and sore scalp over the weekend so I was wondering if that might be a precursor to my hair starting to fall out. But so far it's still there. Poor hair has only been growing back for less than 12 months.

 

How many rounds of Eribulin have you had so far?

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Re: Chemo Buddy Needed. Anyone Currently on Eribulin?

Hi Marnster

have just seen our post..sorryfor late reply. I have found Erib o be nothing short of miraculous so far, tms were over 1000 in June and now round the 130 mark. Last mri showed a tumour refuction so am hopeful for more improvement. How are you ferling on it? Have had very few side effects.

 

love Moijanxx💙💜💚

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Re: Chemo Buddy Needed. Anyone Currently on Eribulin?

Hi Mojian - I've just finished my first round of Erubilin. So I'm happy to be your buddy! I was just diagnosed at the start of October with secondary mets in my lung. Just the one. I had a CT scan at the start of September and there was a 1cm growth on my lung, but I also had a cold at the time so doctors couldn't be sure if it was cold related or a met. Second CT scan confirmed it had grown to 1.6cm. The primary is also growing back on my chest wall and one of my mammary nodes appears to be involved.

 

i was on six rounds of Capecitabine before I had the scan in September. The Capecitabine was a precautionary measure to try to stop the cancer recurring or spreading, but unfortunately the lung met and chest wall must have developed while I was on it. So it's not an option for treatment. The mammary node was picked up when they were doing my radiation planning in January. So they nuked it with radiation while they were nuking the rest of me. The September scan showed it had shrunk following the treatment but it had grown again by the October scan. 

 

I was was diagnosed with triple negative breast cancer in my breast and lymph node in June 2015. I had neoadjuvant chemo with four rounds of AC and 12 rounds of Taxol. Then I had a mastectomy and axilla clearance - 34 lymph nodes removed but only one tested positive. Pathology report showed the tumour was pretty resistant to the chemo. Then I had radiation, though there were some delays getting started because of some infections. 

 

I knew there was an increased chance of recurrence or secondaries, but I didn't think it would happen so soon. Was hoping I might get a couple of years not having to go to constant appointments and treatments. 

 

How are you going?

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Re: Chemo Buddy Needed. Anyone Currently on Eribulin?

Apparently three years mets.

 

had cape for two, letro for a month( had it for over 7 years pre mets but told i could stop it and the bc came back! ) was resistant, the Vinorelbine for 6 months, now Erib for 4 months.

 

was diag with Oes + herz -, lobular bc, how about you? Primary diagnosis in 2001.

Moijanx

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Re: Chemo Buddy Needed. Anyone Currently on Eribulin?

At the moment I'm on Gem Carbo, which I've had previously but I'm only having the day 1s because of the low neuts. I've also had some immunotherapy treatment in Germany this year but it was very expensive and I don't have enough to keep up with the top up treatments. I think it's working on my skin mets but it hasn't fettled my nodes and the original recurrence site has been growing as well. The Gem Carbo seems to be controlling it. Other than that I feel well enough, just low on haemoglobin at present. I'd like to see if I can get onto a clinical trial but it's finding the right one, at the right time, and meeting the eligibility criteria.

 

If you're on Eribulin you must have had some other chemos previously. How long have you been metastatic?

X

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Re: Chemo Buddy Needed. Anyone Currently on Eribulin?

Hi downbutnot out, thank you. What are you on now? My tms fell by 900 points in four months...

 

its is lovly to hear from you...how are things?

 

Moijanxx

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Re: Chemo Buddy Needed. Anyone Currently on Eribulin?

Hi Moijan

 

I'm one of the 'skinny' ladies but haven't been posting much lately. I'm not on Eribulin now but was on it for 7 months. I had no side effects from it and other than all the hospital appointments my life felt almost normal. I had some progression after that and so I was taken off it but I feel that the progression could have been more because I ended up on such a low dose because of low neutrophils (every chemo affects my neuts badly) rather than it having stopped working.

 

 

I hope you get a good, successful run with it.

X

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Chemo Buddy Needed - Anyone Currently on Eribulin?

Have been on Eribulin since end of June 2016. Did have two chemo buddies, but they recently went off it.

if you are on Eribulin, or have had a course of it,  I would love to hear how things went.

 

Hugs, Moijanxx