It's really hit me for 6 but I did hear that few others were worse after first 2 then eased a bit. Felt generally drained, lethargic and feet really numb. Really hope it's all worth it and it's controlling it. Hope your all doing ok xx
Diagnosed March 2017 with TNBC.
Had FEC-T Chemo but on 4th cycle had local spread so Carbo was added in.
Had Mastectomy Sept 2017.
15 rads November 2017.
Risk Reducing mastectomy Feb 2018.
Routine oncology appointment resulted in a CT, MRI's to my brain, neck, spine, liver.
April 2018 diagnosed stage 4 with mets to liver, spine and lungs.
Done 3 cycles of Capecitabine.
CT scan last week shows lungs and spine stabiliased but a new lesion has appeared in my liver.
Tomorrow i start Halaven/Eribulen.
Looking for positive reports on this chemo drug, especially for the liver.
Thank you x
It seems like such a long time ago we were all starting our Sponge Bob journey and you were with us to help us on our way
On my first course of Eribulin 2016/2017 I found it kinder than other chemos- its the 5th different chemo I've had- but it certainly did its job for me and I hope it does for you too.
I have triple neg lymphoma and have just completed my 2nd Eribulin cycle after being able to take a chemo break for a year.
I'll have a CT after the 3rd cycle to see whats happening.
Let us know how you get on with it, we're here for you and between us have probably done most of the SEs!
Sarah, Eribulin killed my bc, at one point all they could find was scar tissue,,,,I was on it for I think 18 cycles, but Tim’s began to rise at the end and I was put on Fulvestrant which did b’all for me, so now I’m on the Paclitaxel train, which is much more unpleasant than Eribulin...good luck with it, try not to take breaks, as I have found that that is when my bc changes it’s dna and becomes resistant, it's like not completing the full course of antibiotics....anyway, that’s my advice to you.xx
Nice to hear from you Bousy, hope your scan goes well....if and when things change what is the next step for you?
does sound as if you have had mores /e than I did on erib, my fingers did go a bit numb, but not as bad as currently.
very very best wishes and keep us posted.
Hope you are ok.
I have just finished my 15th cycle. I have a scan on 14 June and am dreading the results. I don’t feel any different but will have been on Eribulin for a year in July. I know it won’t work forever but would like it to work for longer.
I haven’t lost any weight but I have had the same amount of Eribulin for 14 cycles but for the 15th it was a smaller amount. This time have been very tired and aching back. Still have no taste and ankles feeling numb now and again. Other than that I’m fine!
Been to London for a weekend so probably done too much.
Hope you have a lovely weekend.
‘’how are you getting on, on Eribulin?
iwas thinking, although I really found it easy as far as chemos go....I. Do recall myself. Withasmile. Helen acquarius and smarties finding that it made us get angry on our week off....,..mindyou...now I’d swap with any of you...you could have Paclitaxel and I could have Eribulin ......
actually these 15 days-between Paclitaxel treatments have been more pleasant than on the first three cycles....which is a bit strange.
come on ladies tell us how it’s goingxxx
you know yesterday, I got frustrated with my phone and said S**t ! as one does.......and Siri said
’I hope you don’t kiss your mother with that mouth’!
I ‘I did laugh. I hadn’t realised he’d. herd me!
anyway, let’s hear how everyone is going,
Yes Alee, that was bad luck...was it actual sepsis? Or nutrapenia?
.and I found erib to be a kind drug.....much nicer than Paclitaxel which I’m on now. What plans have they for your next drug?
hugs to you,
sorry to hear you've been through the mill with sepsis twice.
I haven't discussed any further treatments with onc yet as I'll wait and see if Eribulin works again for me- scan after 3rd cycle will tell.
Hi withasmile - it’s good to have you back but not for the reasons you have said! Glad though that you have had a big break from any form of treatment, it will have put you, and your body, in a good place for when you start again. I take it you are going back on Eribulin? I’m being nosy as I stopped Eribulin last year as the oncologists thought I should only have 8 cycles and not because it had stopped working (it was doing a good job at the time!). I have thought about it being an option to go back to but also thought, even though it is now approved by NICE, that you can’t go back to it? It would be interesting to know if that is a possibility. Sorry to pick your brains - and it is good to see you posting again!
I missed you all so I'm back! hahaha 😞
I stopped Eribulin Feb 2017 when the tumours had shrunk within acceptable limits (triple neg lymphoma para-aortic and liver) and have had a fab time chemo free, but the last couple of scans have showed steady regrowth so I'm starting back next week.
My cancer has never followed a conventional path so the break was the right thing for me at that time.
Of course there's 'will-it-wont-it-work-again' worries but we won't know until 3 cycle scan so I'm not thinking that far ahead.
I've followed the threads; its good to see this tolerable drug available to so many more ladies and lovely to find support still shining.
Thanks for your message!
yes I was due to start Wednesday but due to an oversight in the paperwork they gave it to me yesterday. Had a good nights sleep which always helps. Thye've given me steroids for a couple of days to make sure I cope.
21 months is a good length of time (at least good in my world!) ; they've told me 12 max, and thats being optimistic, but they are hopeful of a response and of course they never can tell, so we are relaxed and positive about things.
Sorry to hear you're having to move on, I can understand how you feel. I was doing quite nicely on the capecitibene and then a similar thing happened to me. The uncertainty of what they will offer and what you will have to cope with next is tough and unsettling.
I'll be interested to hear what the next treatment is.
All the best, I'll be thinking of you xx
Relieved to find my bloods have remained stable in this interim phase - I know the cancer has grown in my liver, but fortunately I've kept well with no treatment for the past 4 weeks. Now I've been given the go ahead for my first eribulin on 10th April
I'll be celebrating my son and husband's birthdays with all the family this weekend, so we're all overjoyed I've got the promise of the 3rd line chemo and hopefully many more months/years of quality time ahead!
Beautiful sunny day here!
hope everyone in good spirits
Hugs Phoebe xx
As has already been said you do not need steroids with this chemo. You will probably be offered them by the chemo nurses at your hospital but you do not need to have them as the side effects are not as extreme as a lot of other chemos, when you do need them, it will be up to you I should think. I also found I did not need anti sickness tablets (and I'm the worst nausea sufferer!) so it is a matter of choice. Some ladies might have steroids but for me I really didn't need the added SEs that steroids give you, in this case 2 weeks out of three.
The infusion is very quick, about 5 mins, but my team built up to that and gave it to me a bit slower for the first couple of cycles and then just let it free drain (it comes in an IV bag so goes into a vein/cannula/port). The time you spend in hospital is down to the saline before and after and in my case the waiting around for the nurses to be free as at times it was quite a busy ward. However they are all so lovely and dealing with all patients so I didn't mind, just brought enough reading things to keep me occupied.
Hi Phoebe, No you don’t take steroids before the infusion. I have a steroid anti sicknesses infusion before the Eribulin, which takes a couple of minutes, then saline is used and the Eribulin is syringed into the line. After a few more minutes of saline,I’m all finished.
Hope this helps. I have my next day 1 on 13th April.
Good luck, you will be fine.
Hi again Phoebe,
Eribulin is one of the quicker chemos to have. It normally takes about 40 mins. You have it on day 1 and day 8, then a 2 week break. I manage to go and do things and do all my shopping, housework etc , with my husband. When you feel tired just rest, then usually I can carry on! I get peripheral neuropathy, numb fingers and toes, but it’s not bad.
Look forward to speaking again on this thread,
Good luck for the 10 th.
Hi Clarrise and all the other 'eribulin' ladies
I hope you are all still doing well on Eribulin?
I have had taxel and capecitebene, which has now stopped working. I am hoping to start eribulin on 10th April, if all my blood tests are ok
Our hospital doesn’t let cold caps re Eribulin...as no evidence they make a differencex
has any body done chemo caps while on Halavan ?My daughter has just started and is using them , just wanted any feedback good or bad
Well, when I was on halaven(Eribulin) it really did wonders for me.....I had 16 months of it working. So it’s a good drug and very few side effects....10 minutes for infusion too.
best of luck to you daughter with itxx
Teri, what is a Y90?please
Have just just looked it up...as my liver mets are tiny widespread seeds...it would be a bit impossible to use y90
I have hormonal bc. I have mets in my spine, pelvis and right shoulder, my lungs and did have a 4 cm tumour in my liver which shrank and no longer shows on ct scans. There are only a few more chemos I can try when this stops working so Eribulin has got to keep working. It’s positive thinking!
Hope your daughter is ok with her first cycle.
Hello, sorry I’ve not posted for a while...those of you who have recently joined..welcomexx this chemo is a real joy and so much nicer than many....just ten minutes in the chair and minimal side effects...so I. Hope. you have a easy ride on itxxx
Hi Teri and Helen 44,
I have just been to see oncologist to get results of CT scan. Bones are still healing and nothing showing on liver. I’ve been on Eribulin for 9 months and starting cycle 13 on Friday. I hope results are as good at next scan.
Sorry it’s stopped working for you Helen, I only managed 2 cycles of Docataxel and that was enough. Hope they find something else for you. I know there aren’t many options left for me after this.
Teri this is the best chemo I have had. My hair thinned at first but now have a good head of hair, Get a lot of fatigue but no sickness. Good luck to your daughter.
HI , so herd your thought Erublin was not to bad ,, do you still feel that way? MY daughter starts tomorrow and very scared to do chemo again , any positive words..
Hi , my daughter is starting Halavan tomorrow, hrs will last 10 miutes so they say , so side effects are not to bad?? She has read good and bad stuff on the internet but hopefully most of you had found it easier than other .
oh dear Debbie!
Chemo does seem to make its opinion known at the most embarrassing times
i meant to post last week but got busy and didn't get it done. My chemo treatment last week was easy but later that night was not. My husband and I and some friends went out to eat. Great meal, good conversation. But after two bites of dessert, my stomach was not happy. I looked at my husband and told him that we needed to leave, NOW!! As we started to make our way out, so did the contents of my stomach. I was so embarrassed.
Everyone with us understood the situation.
Since then, I have had a little nausea in the mornings, but it is getting better. My hair is coming out by the handful. It started a couple days ago. Oh well, I had the same thing happen a couple years ago while on Taxol. It's only hair. It will take less time now to get ready for work and who cares if it rains!! I'm having it cut very short this afternoon. Will make it easier for t.he rest of it to fall,out.
No treatment today, just bloodwork. Another easy day!
Talk to you again soon.
I went straight from Capecitebine to Eribulin and felt just the same as you- in one word "phew"!!
Good luck with your treatment, let us know how you get on
Hi Phillips, yes one of the few chemos I look fondly back on.....
hope it it works well for youxx