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Exemestane / Everolimus

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Re: Exemestane / Everolimus

Hi ive had a re occerence of breast cancer+ i have now been put on these 2 tablets. Im not doing to good with them though.i had chronic diaoreha for 2 weeks saw macmillan nurse+ was prescibed immòdium.started taking that then had horrendous piles for another 2 weeks!! Spoke to my own gp+ she advised immodium every second day.all starting to settle down a bit now but its been a bit of a nightmare.hope you get on ok x
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Re: Exemestane / Everolimus

Bumping up for Sarah Louise 

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Re: Exemestane / Everolimus

Hi Marie, I am interested to know how you are getting on now with everolimus. I have taken exemestane for 2 weeks, just had the injection for the bones and will be starting everolimus next week. The doctor warned me it was very toxic which of course has terrified me but I wanted to know if the side effects get better. I have bone, lung and chest mets so I'm hoping it will work for me as letrozole stopped working.

thanks, ramade xx

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Re: Exemestane / Everolimus

Hi everyone and in particular hi Lynne! My mum has just been given the same news this week and started on the same treatment. Reading other links on her gives me hope x
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Re: Exemestane / Everolimus

Hello , I just wanted to say welcome and sorry you have had to join us. It is very scary and surreal at the start , but it does get better. I  got my scan results today and it was good news. I have been on this combo for 6 months, yes I have had a few hicups , but it is doing its job.

Be gentle with yourself, ask lots of questions , scream , cry if you need.

You will  start to feel  more like youself soon .

Good luck

 Marie xxx

 

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Re: Exemestane / Everolimus

Hi 

have just been diagnosed with liver mets and put on this combination.  Primary was 2015.  Am in bits. Xx

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Re: Exemestane / Everolimus

As far as i am aware i'm on Exemestane only, after a year on Letrozole which gave me so much joint pain i could hardly walk. 

Waiting to see how it goes. 

Good luck. 

x

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Re: Exemestane / Everolimus

Thanks Helen,

I have had a really rubbish day at work. I don't think many people understand how vulnerable we are .

The good news is that at the moment I haven't had any Se , only a little rash , but I am prone to rashes so it may have nothing to do with the medication.

The nurse had told me how awful this med was and how disappointed she was that I had been put on it !!! I was so nervous the first morning , I actually had my nervous exam tummy .

The other good news as long as I stay like this I should be able to go on my holiday next month. I have a neurosurgeon appointment next week so fingers cross.

 

Helen thank you so much for your post I really needed it today.

 

M xxxxxx 

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Re: Exemestane / Everolimus

Hi Marie

i just swapped chemo (paclitaxel to Eribulin) because the first didn't work. I was quite surprised about how it has effected me emotionally, as I have been Mrs positive.

 

Feeling a bit better now actually on the new one, like mentally I am back on track and determined. I did feel gutted I'd spend 4 months suffering SEs for no benefit but, let's face it, the biggest effect of this is re-igniting the fear. I'm scared. In between scans most of us manage to keep our chins up, most of the time and hope things good are happening from the treatment we are on.

 

But I felt like I was hit again, a smaller bang, but still a whack, like when I found out I had secondaries. It took me back there. I'm managing but still rather blubby, very unlike me. It's been about 3 weeks now.  Think I am actually coming to terms with the disease and reality, as I may have put it in a box and buried it in the bottom of the diy cupboard 😉

 

Up down up down.. Life is a Rollercoaster as Ronan sang. Hope you keep busy and distracted as poss. It's times like this that friends are really important. Make sure you tell them how you are feeling and you need some extra TLC.

 

let us us know how it goes on the new one. 

Helen X     <<<<  Huggles >>>>

 

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Re: Exemestane / Everolimus

Thank you Lyndyloo, it so good to hear this xxxx M
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Re: Exemestane / Everolimus

Hi Marie I have been on e/E for nearly 3 years. Just had 3 monthly routine scan and I was informed I was staying on same treatment for time being.

I started on 10 mg then changed to 5 mg as had too side effects. Since changing I have been fine. Good luck with treatment. Linda

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Re: Exemestane / Everolimus

Hi Marie

 

I was on E/E combo for 16 month first months were hard but se got easier i was sorry to come off it but hormone drugs no longer work for me so I was put on Capecitabine. So many ladies found it hard to cope but I started to feel quite well on it and even had compliments about how well i looked even from a onc in hospital who did not know me.

 

Look on the old threads there is some good advice but pm me if you get problems.

 

Love and (((hugs))) xxx

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Re: Exemestane / Everolimus

Marie, sorry to hear of your trouble in coming to terms with this. I know it's never easy being told something has failed for you and that you need another treatment instead. It's the fear of the unknown that we all have, I suppose. I think you are being really brave about it all. You poke your tongue out! It deserves it! Enjoy the shopping trip - buy something really nice.

 

Hugs. Barton.x

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Re: Exemestane / Everolimus

Thanks Barton, it is about coming to terms with this and being b****y annoyed. However, today is a new day , poking my tongue out at cancer this morning . Makeup on and going shopping !!!!
Hugs to all
M xxxx
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Re: Exemestane / Everolimus

So sorry to hear that, Marie. Is the nervousness of starting a new treatment, or are you actually having problems with the Exemestane itself? If the latter, perhaps you should contact your out of hours Chemo unit?

 

Hoping (in the nicest possible way) that it is just nervousness.

 

Hugs, and thinking of you. Barton.x

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Re: Exemestane / Everolimus

Thank you Barton, finding today a bit tricky . M xxx

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Re: Exemestane / Everolimus

Hello Marie, I'm not currently on Exemestane, but was on it for a few months during a break from Capecitabine. I have to say, it was by far the easiest of all the treatments I have had so far (FEC/T, Anastrazole and Capecitabine). The Anastrazole gave me terrible joint pain, in my knees particularly, but I have to say I don't recall a single se from the Exemestane. Wishing you much luck and a long run with it!

 

Hugs. Barton.x

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Re: Exemestane / Everolimus

Thank u Moijan & Carolyn x

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Re: Exemestane / Everolimus

Hiya Marie
Sorry letrozole has abandoned you and u have to move on to the big guns now ..I'm still a letrozole lady after ten months but I too will have to move on I expect soon.
Hope some of the other ladies reply with some e and e tips and help.
Meanwhile hugs xx
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Re: Exemestane / Everolimus

Hi Marie,

 

sorry about the Letro not working, I had it for around 5/7 years and I. Was upset to have to leave it. Imnot on E+E tho. But I wish you all the best on those

 

love and hgs.

 

Moijan

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Exemestane / Everolimus

Hi all , my friendship with Letrozole is over and my new buddies are E&E . Is anyone else on this and if so how are you doing?

Many thanks

Hugs to all

M xxx