HER2 status

[SarahLousie105]

HI Debs

I am at the Royal Marsden in Sutton. Not sure what the study is called as I am just at the pre screening stage but I think it is for a drug called Tucatinib. Don't really know much about the study as I was already a bit overwhelmed when they suggested it as I had just heard my mets had spread. As it just involved a blood test at this stage I did not feel like I needed to know much more. Still don't understand how my HER2 status could change but just have to see. If it offers me more treatments, so much the better.

Although I did say on JUST involved blood tests, it did take they 2 hours to find a vein!!

Good luck with your treatment.

Sarah x

[Mermaid007]

Hi Sarah,

This sounds interesting can I ask the name of the trial and the hospital running it please.

I too have liver and bone mets HER neg

Thank you

Debs x

[Jill1998]

https://breastcancernow.org/submission/ask-our-nurses

[Jill1998]

https://forum.breastcancernow.org/t5/Ask-our-Nurses-your-questions/ct-p/Asknurses

[Jill1998]

That sounds really interesting Sarah , I hope it gives you and others some more options for treatment .You could also ask about this in the Ask the Nurses section and you can request a call back from the nurses to discuss also . Good luck with your treatment . Jill x

[SarahLousie105]

HI

when I had my original primary I was told I was HER2 neg. Now several years down the line with liver and bone mets, I have been offered the chance to take part in a trial. Apparently  even if you biopsy was HER2 neg I could still have some HER2. They have done a blood test to confirm and if it finds HER2 I can take part with drugs for HER2 pos tumors.

Sorry if I have not explained it well but i don't fully understand it.

Just wondered if anyone had been told anything similar. Go back in 3 weeks to get result and see next line of treatment.

Thanks

Sarah