I am very sorry that you have encountered that problem, I know from my own experience how painful it is when someone in the family has cancer. Especially difficult is when he cannot walk and eat himself and constantly is bedridden. Fortunately, now there are many comfortable models of rotating chair beds like these https://careoutlet.co.uk/hospital-beds/stand-assist-rotating-chair-beds that can significantly facilitate patient care. It is really very sad, the person himself and everyone around him also suffers.
Thanks everyone for your replies. That gave me plenty to read up and you’re right! The two places in the uk that specialise in this treatment are the Christie and the Hampshire Hospitals Trust. Hampshire have a specialist team who work on peritoneal metastases. The current advice from NHS England for clinical commissioning groups doesn’t include breast cancer mets, only colorectal cancers. I imagine the mechanics of spread are different between BC and colorectal cancers, so the best option is usually to treat us systemically. However I’m sure it’s only a matter of time until women with BC mets can argue that they should have a bite of the cherry, especially in cases where the disease is confined to the peritoneal/abdominal area.
i will keep reading and watch with interest.
hope you’re all doing OK today
just read your post. I’m sure the girl in the hospital bed opposite me when I had my liver resection done last year had had this done. She had been referred to from Scotland so she wasn’t a local patient. Have a look up North Hants Hospital Trust http://www.hampshirehospitals.nhs.uk/ and see if there’s any info on there. They have a separate unit called The Pelican Trust which specialises in abdominal cancer surgery so that may be worth checking as well. The whole team are fab and aftercare brilliant.
I've just been diagnosed with multiple tumours around my small intestine. They could only remove 1 or 2 with a length of intestine so I've got 5 or 6 in there still which they are hoping to stabilise with chemo.
This sounds quite a dramatic treatment but will bring it up with onc.
Hello Jacksy....I cannot offer much info but I have read something about this as well, but I do not know where
my oncologist is sometimes happy to chat and at other times not....I expect it depends on how busy the clinic is.....I will try to remember to ask him about it on a chatty day.
Is yours approachable for these questions
I was wondering whether anyone has experience of HIPEC treatment, and whether it is done in the UK?
It's called maximal cytoreduction and Hyperthermic Intraperitoneal Chemotherapy (HIPEC). It involves reducing the tumours surgically or by other means, and then 'washing' the peritoneal cavity with warm chemo for an hour or so before draining it away.It's mainly used on patients with colorectal cancer, but I found a paper about it from 2013 where they did a trial on 5 women with secondary breast cancer and peritoneal mets, with good results. If anybody knows anyone who's had it done I'd love to hear about it.