67301members
355023posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Liver mets Capecitabine

9 REPLIES 9
Highlighted
Member

Re: Liver mets Capecitabine

Thanks Nicky fingers crossed!

Highlighted
Community Champion

Re: Liver mets Capecitabine

Hi Anne

Sorry to hear about the change in treatment, always an unsettling time. When I was on Cape back in 2013 I didn’t have any problems with wbc but I have read in here that some ladies have. Not many ideas and to be honest I didn’t think it was a problem until I read it on here. Hopefully it wont happen with you.

Good Luck

Nicky x

Highlighted
Member

Re: Liver mets Capecitabine

Hi Nicky,

I’m starting on Cape next week. Ribociclib didn’t work for me for long and I’ve just heard there is progression in my liver mets. Are there likely to be treatment delays due to low bloods as with ribo?

thanks

anne xx

 

Highlighted
Member

Re: Liver mets Capecitabine

Thanks for this Gibbi.
Im tolerating it really well with slightly dry hands being the only side effect. My liver enzymes have came down within the normal range too, so it’s looking very positive.
Highlighted
Member

Re: Liver mets Capecitabine

Hi there, this may be late, however I'll share my experience on xeloda. It worked great for me for about a year. I am ER positive as well and had been on arimidex and then verenzio. BY far xeloda is my favorite and I had numerous lesions on my liver. All were healed by this awesome drug. Good wishes for you and try not to fear the side effects. Your oncologist will help with that. Just stay as active as you can is my number one advice. All the best Gibbi
Highlighted
Member

Re: Liver mets Capecitabine

Haha, thanks Kate. 😀
It’s good to hear from you. I hope you’re still doing well. Xxx
Highlighted
Member

Re: Liver mets Capecitabine

Hi FeeltheFear, just wanted to wish you well on your new treatment, hope it works well and is kind to you. You’ve still got the best name on here imo!!! 😉Kate xx

Highlighted
Member

Re: Liver mets Capecitabine

Thanks Nicky.
I’m very happy to hear it worked for your liver mets. Here’s hoping I get a good response. 🤞
Nerve wracking. X
Highlighted
Community Champion

Re: Liver mets Capecitabine

Hi

Unfortunately hormone blockers don’t always work even if you are hormone positive and even those that work eventually stop being effective. I had been on hormone treatment for nearly 5 years (for bone mets) when my liver mets were found. I went onto Capecitabine and it worked very well for about 18 months. I remember at the time reading that it is usually effective for soft tissue mets so I do hope it works well for you. If you check out the XEloda/Capecitabine thread there’s quite a few ladies (maybe all?) taking it for soft tissue mets. 

Nicky x

 

 

Highlighted
Member

Liver mets Capecitabine

Im interested to hear if anyone has had any luck taking Capecitabine for ER positive HER2 negative liver mets?
I was diagnosed with liver nets in June and prescribed letrozole, zoladex and palbociclib.
I found out yesterday that this regime hasn’t worked for me.
My mets have now spread and I have numerous small areas throughout my liver. 😳
I’d like to know if Capecitabine has worked for anyone else when oestrogen blockers have failed. My Er level is 7 so I’m disappointed blockers haven’t touched my mets.
Thanks ladies.