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Looking for women with secondary breast cancer to join the B-AHEAD 3 study

15 REPLIES 15
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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi there, thanks for getting in touch, Yes, the study is recruiting in Exeter, there's some more information about eligibility on the Cancer Research UK website (https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-study-looking-at-diet-and-exer...), but please e-mail me on lifestyleresearch@nhs.net and I'll put you in touch with our recruiting team at the Royal Devon and Exeter Hospital.

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

I'm in Exeter and may be interested in this study. Can you lt me have more details please.

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi there, thanks so much for your interest.  If you're not sure whether you're eligible for the study, please don't hesitate to e-mail me at lifestyleresearch@nhs.net and we can have a chat.

 

Thanks

 

Mary

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi, Im not sure if I fit your profile or if the geograghy is good but Im interested. I have secondary in my liver. I will follow the link you posted 

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi Kinden, thanks so much for getting in touch.  Please e-mail me at lifestyleresearch@nhs.net as soon as you can and we'll see if we can get you in.

 

Best wishes

 

Mary

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi Mary,

I am interested in this. I am coming to the end of my 3rd cycle of treatment for secondaries. My treatment is via Clatterbridge on The Wirral, the Royal in Liverpool and another hospital- based on this, does it look like I might be eligible?

Kinden

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Thanks, we do tweet about it, and the wonderful women of @abcdiagnosis and @METUPUKorg are super supportive of the study and have RT'd for us before - I'll ask them to do it again. x

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Mary. Have you tweeted this? Tag in @abcdiagnosis and @METUPUKorg


I’m in Sunderland so it’s no good for me. If I lived in one of the areas, I love to be involved. 

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Thank you Mary, I’ll definitely be in touch.

Just to add, I absolutely adore my Oncologist and she’s aware of my dietary and lifestyle changes, so I appreciate it would be an oversight and nothing more, but still very frustrating as reading about the trial it seems to me I would’ve qualified then.

Thanks again, Kate

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi Kate - drop me an e-mail and you can tell me what hospital you're based at and I might be able to help with your question too (lifestyleresearch@nhs.net).  Our different recruiting centres have opened at different times since 2015, most recently Exeter and Plymouth only opened last year.  We're very aware that stage 4 women quite often don't get the support they need from breast care nurses who are stretched enough to cover the women with primary diagnoses (there are some fab BCNs out there though who have masses of knowledge and experience in the secondaries area).  We're also very aware that many of the staff in our recruiting centres don't feel comfortable approaching women about B-AHEAD 3 as they feel its another burden on their patients, when many are eager for this diet and exercise advice and it's not a burden once they are on the study and realise that it is all very individually tailored to physical abilities and more importantly 'headspace' ! - this is what we call "gatekeeping" (clinicians making decisions that their patients don't really want this information, without asking them) - these are things we have been trying to address.

 

Hope to get an e-mail from you soon!

 

Mary

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

I’ll certainly be asking my Oncologist at my next appointment why I wasn’t told about this because I did actually ask if there were any trials I could apply for.

There isn’t a secondary breast care nurse at my hospital, and I’ve been waiting well over two years for a reply to a question I asked one of the breast care nurses, who had previously told me “the stage 4 ladies were a problem” !!! I was diagnosed, straight to stage 4 October 15, and have a great interest in dietary and lifestyle approaches to cancer, assume I would’ve qualified then??

Kind regards,

Kate

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Thank you Kate.

 

If anyone else isn't sure if they fit the criteria, feel free to e-mail me: lifestyleresearch@nhs.net

 

And if there are any other social networks you can share B-AHEAD 3 on, please do.

 

Mary

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi Mary,

 

Thank you for getting back to me, afraid I don’t fit the treatment criteria.

I hope you get the interest you need to continue.

 

Kind regards,

Kate

 

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi Kate - thanks so much for your interest.  You might be able to join.  Are you being treated in one of the recruiting centres listed? We can only recruit women at one of the centres listed and within the first few cycles of starting a new line of chemotherapy (this might be the very first chemo for secondary breast cancer, or any subsequent line for example if someone is going to change / has just changed from endocrine therapy on to chemo if the endocrine therapy stops working). Just let me know or you can e-mail us on lifestyleresearch@nhs.net

 

Thanks again!

 

Mary

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Re: Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi Mary,

 

i would love love to join this but having read about it I assume I don’t qualify as although I’m NED my cancer has spread to my spine? I do Nordic Walking, Tai Chi and a dance class without any issues, and I’m pain free, but I understand trials are trials! 

Please let me know if you think it would be worthwhile applying. 

I hope you get the numbers you require as it sounds very interesting.

 

Regards,

Kate

 

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Looking for women with secondary breast cancer to join the B-AHEAD 3 study

Hi everyone, 

 

I'm Mary Pegington and I'm a research dietitian working on the B-AHEAD 3 study (That's "Breast - Activity and Healthy Eating After Diagnosis").  The study is run by dietitian Dr Michelle Harvie, and oncologist Dr Sacha Howell.  The study has been open since 2015 but we have been struggling to recruit to it and now it is in danger of being closed down.

 

We're based in Manchester and most of the women on the study have been recruited at The Christie, but we're also recruiting in the following areas:

- Exeter

- Leighton

- Liverpool

- Macclesfield

- North Manchester and Oldham

- Plymouth

- Stoke

- Tameside

- Wigan

 

65 women have joined the study so far and we've had some wonderful comments back from them, they have loved having access to physiotherapy and dietitian advice, feel fitter, given them something positive to focus on, and we're always understanding when things don't go to plan (life gets in the way!).  Ideally we need to recruit 134 women to the study.

 

There's good evidence to suggest that building up muscle lost during treatment with exercises that are tailored to your needs may help you to suffer fewer side effects from the treatment, and losing weight may help the treatment to work better.  

 

More info is here: https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-study-looking-at-diet-and-exer...

 

We fear that if we are unable to recruit to B-AHEAD 3 and it has to close, then it would be incredibly difficult for future researchers to start any new research studies in this area of lifestyle and secondary breast cancer - no-one would fund it as they wouldn't believe that it will be able to recruit patients successfully.

 

Please get in touch if you'd like more information about the study or if you think you are eligible.  It would really help us if you could spread the word about the study so if you can help us with that, please get in touch via this forum or via Twitter: @marypeg_RD

 

Thanks so much for reading this.