ANNIE hi that's great advice I know what you mean about poor drug tolerance I'm struggling on the dexmethasone in combo with my recent treatment but I'm making myself engage in some exercise just a slow pace walk atm and thinking of joining the Tai chi class at Maggies is that the Tai chi you attend you can fill me in when I see you next xxxx
After two years of poor drug tolerance which kept putting me in hospital I am now stabilised on Letrozole and Palbociclib . The whole process from diagnosis thirty months ago had just wiped me out. Then I got sepsis, which triggered lymphodaema! Nightmare!! Best thing I ever did was join a gym. I’ve gone from a few minutes exercise ( followed by a coffee) to actually joining some gentle, fun classes. Mixing with others has given me a boost, got my world back on a more even keel, and has given me some stamina. The days I am more fatigued I get in the pool and just do a little float about. The hardest thing was getting up and getting there, but once I started I haven’t been able to stop . It’s something about having normality, and not just the dreaded C hanging about. While I’m doing stuff, and interacting with people my aches seem to lessen. Not for everyone, but it works for me. Hoping you all can find some zip too. X
Hi jules how are you doing I have my last whole brain session tommorow like you 5 sessions I cant beleive how bloody tired/low energy I am experiencing they have explained it can last weeks ithe steriods are playing havoc on my tummy and The headaches are kicking in now!!!
I was wondering do you suffer neuro pain at all with your mets I am and wondering if it will start to settle down hopefully you being a little further ahead should be feeling a little better I hope
Low energy is rubbish Im so used to being a live wire and missing my long walks terribly atm Hopefully this period of time is a bloody bg blip that will fade and allow me to engage in life as a fully participating member Its not getting the better of me yet
Have a lovely day everyone and 🤗 to you all x
It is the low energy that bothers me the most about all this treatment. What I want most is to plan to do things that I enjoy with friends who I care about, but I find it really hard now. And gardening was a great pleasure but now I have to push myself to do the smallest thing.
I used to travel a lot. Thought I might plan some more extravagant trips when I got to this stage, but now the thought of the travelling is just too much to bear.
This is why I am weighing up whether or not to try yet another different treatment. I think I may prefer to have palliative care only and maybe get a chance of a bit more out of my (shortened) life.
Just wanted to acknowledge your post and send a hug. I have my MRI next weekend to check this one out and I’m trying hard to ignore the possibility so my heart goes out to you.
Yesterday I did the Macmillan/BCC Moving Forward course and was told the advice for total fatigue is to force yourself to move, get up, just do something for a couple of minutes now and then. Personally, I’d be under the duvet meeting my own body’s needs. My theory is if you can get to the loo, you’re on the way up. Good luck and I hope you get your energy back soon.
Feeling really crappy last couple of days finished 5 sessions of whole brain radiotherapy fir brain mets 2 weeks ago and iv got absolutely 0% energy struggling to do anything. Anyone else experienced this if so how long did the fatigue last for just want to feel normal again.
Sending love and hugsxx