Hi Lisa I started examestane on 29th June and everolimus on july 12th ok so far I was same as you on palbo and letrosole for 4 years before it stopped working. I was given lansoprazole for stomach when I started palbo only took it initially and them as needed decided to restart it with E and E treatment and I haven't had any nausea or loss of appetite. Nice to chat to a fellow EEr 👍. Liz x
I have also been given the E&E combo as palpaciclib stopped working after 4years, I am 2 weeks in also the change over has been a bit rough had stomach pains, fatigue, headaches and loss of appetite. Keep me posted on how your going good to know someone else on it.
I was on exemestane. Its very similar to letrozole. I didn't have any side effects. It was fine.
Hi lesley I was offered everolimus oral combined with the exemestane been tired too prob combo of meds weather and stress. Just on day 12 of exemestane. I am also getting bloods checked for pic3 mutation results take 2 months but apparently this might be an option with a new drug alpelisib which is oral med and used with fulvestrant which is a monthly injection. I was told that if everolimus isn't tolerated I can just have the exemestane . It's all a bit much to take in but these might be an option . Also I know of another person who had iv chemo and is now disease free after15 years with secondaries you say you are 77 thats only a number I'm 67 and hoping to keep fighting this for a long time I'm 4 yearsinto treatment. Sometimes IV isn't pleasant but it can be very effective sounds like your oncologist is totally supportive. Liz xx
Hi Liz. Been on it 3 weeks now just 1 side effect Fatigue, but Oncologist wants me to try Chemo on the drip got 4 weeks to give her my decision scary situation at the moment. Good luck.
Hi lesley I just started exemestane last week was on palbociclib and letrozole for 4 years but some liver involved now so changed to exemestane doing ok so far no side effects.. Am also starting everolimus oral next week if bloods are okay. Liz x
I was on exemestane for eight years after my primary diagnosis. I would have kept going if it can been clinically approved but I had already had extensions beyond normal treatment. I wasn’t really aware of SE; possibly some loose bowels at times and hot flashes at night. I was discharged in 2016 but discovered lots of mets last year. I can’t help but suspect that everything started growing when the exemestane stopped!
Hi all. Has anyone on here been on Exemestane my oncologist has stopped my other treatment and put me on this tablet .Thanks.