Hi All,
I was diagnosed with primary breast cancer after my 50th birthday mammogram in 2012. I had to have loads of lymph nodes taken out too. The cancer was ER positive and stage 3 so the timing of the mammogram was good!
At the end of May 2019 due to losing my voice I had a CT scan and was told the cancer had spread to my liver, and chest lymph nodes. It is also now in my spine. I tried abemaciclib with fulvestrant and then another one I have forgotten the name of but you need to have regular ECGs with it. I had to come off both after the tumours grew.
In January 2020 I started capecitabine which did well until my recent scan which showed the tumours in my lymph nodes had doubled to 20cm, the ones in my liver had increased in size and I had more spread in my spine. I have been off capecitabine for over 2 weeks and start paclitaxel tomorrow. My consultant says it will take the most out of me but should blast the tumours. I feel positive about it but had FEC-T in 2012 but only managed 2 out of the 3 taxotere before they stopped it. It did seem to clear the cancer though. Over the past two weeks I have felt constantly nauseous and have lost a lot of weight because I can't seem to eat much. Salmon and sweetcorn and rice krispies are about all I can manage. I feel sadness all the time too because of my 17 year old daughter. She is so positive and optimistic that I feel awful. I have turned into a shadow of my former self. I am finding it hard to carry on being positive all the time. My friends and relations say I am strong but it is all pretend.
I am not usually feeling so down so please don't be put off me! I wondered if anyone else has had paclitaxel and what tips you can give. Or if you are having it do you want to be a buddy? I am having 12 lots of paclitaxel given over 3 weeks then one week off. I would be grateful too for advice on how to stop feeling nauseous. Thanks so much in advance.
