66.6K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Paclitaxel buddies

Jennie60
Member

Re: Paclitaxel buddies

Hi Bee 

It's good to hear you are coping well. I'm happy to buddy you too. Strength in numbers! 

I've had my first cycle of paclitaxel now. I'm having it for 12 weeks in total every Monday. This Monday I had a port a cath fitted so no treatment. I go again next week. I was terrified of iv chemo but have tolerated it well so far. I have worn the cold cap too. So far no hair loss. I have scarves and have been in touch with a company about a wig. I'd rather be ready.

Keep in touch. I hope you continue to cope well. Trouble is none of us really know for we? I'm staying positive until I have reason not to be.

Love Jen xx

Bee3
Member

Re: Paclitaxel buddies

Hi Susie,

You will get through it and if it's not for you you can stop. I was dreading it as my consultant said that it was a chemo that expects a lot from the 'patient' and you had to be well to have it.

But I am feeling so much better today that I have been thinking that maybe they didn't give me the chemo but another dose of saline. My hair didn't fall out when I had a shower either so made me think I hadn't had it even more! So weird the way we constantly, or maybe it's just me, think things can't be right if you feel ok!

The cold cap was great when they put water on you hair and put in conditioner. (Bring your own if you don't want them to use the hospital one!) They will take off the cap immediately you can't bear it, but a lot of people do very well on it so it is well worth a go. I have two wigs and numerous hats from 2012. Might upgrade to a wig I can wear for longer without it being too uncomfortable!

Good luck for 19th. 

xx Bee

Susiewong
Member

Re: Paclitaxel buddies

Bee3, 

Lovely to hear from you. I'm so glad your session was OK and that you don't feel too bad. It has reassured me. I know we all may have a different experience but I'm trying to be positive and tell myself I'll get through it.. 

I wasn't going to try the cold cap... But maybe I should?

I have a wig and one headscarf so I'm kind of ready... What a Rollercoaster this is... Being on the cancer train.... 

Stay well and I'll check in after my first treatment on 19th.

Xx

Bee3
Member

Paclitaxel buddies

Sorry Susie not Suzy!

Bee3
Member

Re: Paclitaxel buddies

Sorry Susie not Suzy!

Bee3
Member

Re: Paclitaxel buddies

Thanks Suzy, Would be good to share on this thread and hopefully others might join in too.

I had my first lot of paxlitaxel yesterday and apart from actually thinking it would only take an hour plus an extra two for the cold cap it actually went really well. My appointment was 11.30 but didn't actually leave until 5 and that was with tolerating the cold cap for only 5 minutes. I was hopeless. However the good news is that two others had the cold cap while I was sitting there and were absolutely fine.  Apparently if you can manage 15 minutes you can do the rest.

So today I am feeling good and actually better, no nausea, than before I had the paxlitaxel.  So a very positive first one. Phew!

Susiewong
Member

Re: Paclitaxel buddies

Hi

I'll be your buddy. I start chemo on 19th. Am having carboplatin and paclitaxel. Once every 3 weeks for 2 cycles then a scan. 

 

I am also doing the COC protocol, with lots of supplements added in. If you don't have it already, check out Jane Mclelland book How to Starve Cancer. It's a positive inspirational read. 

You can do this 👍

Best wishes

Susie x

Bee3
Member

Re: Paclitaxel buddies

Thanks so much Angel Eyes. I hope I will be able to have the cold cap today after saying I wasn't going to! I am looking forward to getting the first paclitaxel ticked off and really hoping I will feel fine. I can put up with being tired it is just feeling nauseous that is such a problem for me. Good luck to all of you who are on the paclitaxel journey. I am inspired by you Angel Eyes. xx

 

Angel Eyes
Member

Re: Paclitaxel buddies

Hi, 

I too hate (God forbid) being perceived as a cancer victim so for me the cold cap was worth it.

Do what is right for you. 

 

Angel Eyes x

Angel Eyes
Member

Re: Paclitaxel buddies

Sorry about spelling mistakes. Can't see with these stupid glasses.

Angel Eyes

Angel Eyes
Member

Re: Paclitaxel buddies

Hi Bee, 

For quickness, I've Pm'd you.

I had an MRI today and get very nervous so that's really taken it out of me 😕. I think Paxlitaxel is better tolerated than it's sister drug, Docetaxel.

When I first started the Paxlitaxel in early May, I thought it would never end. I still feel like that. Fridays are a write- off, especially when I get my long treatment day with addutional Pertuzumab, Trastuzumab and six weekly Denosumab 🙁. I start at 9:00am on those days and finish at 5:30pm.

Speak soon, 

 

Angel Eyes x

Bee3
Member

Re: Paclitaxel buddies

Hi Angel Eyes,

Thank you so much. That's really kind of you. You have done well nearly completing your therapy! (I always laugh when my consultant describes the treatment as therapy as makes it sound so desirable!) I hope the last 5 go quickly.

xx

Angel Eyes
Member

Re: Paclitaxel buddies

Hello, 

I'll buddy you.

I've nearly finished my Paxlitaxel (had thirteen out of eighteen so five to go.)

PM me and I'll talk you through.

Keep your chin up. 

 

Angel Eyes x

Bee3
Member

Paclitaxel buddies

Hi All,

I was diagnosed with primary breast cancer after my 50th birthday mammogram in 2012. I had to have loads of lymph nodes taken out too. The cancer was ER positive and stage 3 so the timing of the mammogram was good!

At the end of May 2019 due to losing my voice I had a CT scan and was told the cancer had spread to my liver, and chest lymph nodes. It is also now in my spine. I tried abemaciclib with fulvestrant and then another one I have forgotten the name of but you need to have regular ECGs with it. I had to come off both after the tumours grew.

In January 2020 I started capecitabine which did well until my recent scan which showed the tumours in my lymph nodes had doubled to 20cm, the ones in my liver had increased in size and I had more spread in my spine. I have been off capecitabine for over 2 weeks and start paclitaxel tomorrow. My consultant says it will take the most out of me but should blast the tumours. I feel positive about it but had FEC-T in 2012 but only managed 2 out of the 3 taxotere before they stopped it. It did seem to clear the cancer though. Over the past two weeks I have felt constantly nauseous and have lost a lot of weight because I can't seem to eat much. Salmon and sweetcorn and rice krispies are about all I can manage. I feel sadness all the time too because of my 17 year old daughter. She is so positive and optimistic that I feel awful. I have turned into a shadow of my former self. I am finding it hard to carry on being positive all the time. My friends and relations say I am strong but it is all pretend. 

I am not usually feeling so down so please don't be put off me! I wondered if anyone else has had paclitaxel and what tips you can give. Or if you are having it do you want to be a buddy? I am having 12 lots of paclitaxel given over 3 weeks then one week off. I would be grateful too for advice on how to stop feeling nauseous. Thanks so much in advance.