Bev- they normally send you an e mail about joining the private group - if you haven't had one you could e mail the moderators about this. email@example.com
I've requested to join the Secondary Private Group as a means of support. I understand you are cautious regarding new members, but wondered if I could be accepted.
If you have any concerns please feel free to email me.
I look forward to hearing from you,
Hi Lizzy, I applied yesterday to join the private group but till can't get in it. I have stage4 secondary bc with bone, liver and omental layer mets. Thank you.x
if you key in Capecitabine in the search box you'll find a thread with ladies who are on that chemo, (I think its in the treatments section) and it would probably be a better place to start.
Good luck with your treatment, I hope its going well for you.
Hi I have secondary lobular bc, diagnosed nearly 3 years ago. Currently on Capecitabine. I would like to join please .
I had it in my veins each week. Veins not too good due to previous chemo and 1st & 3rd week took 4 attempts .onc has suggested pick lines but I'm not keen just yet. Now ask for senior or experienced nurse explaining why & all understood.xx
I had breast cancer in 2013 and have just been diagnosed with multiple liver mets and one bone met so having a bone scan to check if more. I am starting Paclitaxol in 2 weeks for 18 weeks with a ct in middle. Am feeling very positive, before yesterday I was thinking that was it....but now treatment sorted and imminent I feel back in control 😊 I've asked to join private group but not heard anything yet, would just love to hear from anyone on this chemo and how you're doing although I know everyone is different. Thanks everyone x
Could people please sign this to make Letrozole work for longer.
Could people sign this to make this effective drug available on the NHS.
Thank you for your interest in joining the Secondary Private Group.
If anyone would like to ask to join and have not already, you can join by clicking the secondary private group and then clicking the button on the right hand side of the screen.
If you have any other questions you can email us at firstname.lastname@example.org.
im sure I have asked to join this group, but just in case
i havent, please could I join it? Thank you
(oh, after I posted, I spotted my first post, sorry.)
Please can I join this group? I have been posting on the secondary board. I am trying to come to terms with my current situation, but finding it difficult. I was dx nearly three years ago with sec bc, but it is no longer under control. Thank you,
There is a new private group here which you will need to ask to join. It is in the main board listings, which you may not see if you access your threads via bookmarkers. It would be great to have you and anyone else with secondary breast cancer join for a safe space to chat and share images if you wish.
Digital Community Officer
Hi Lizzie...have i missed something? i'm a bit of a technophobe and didnt realise there was a private secondary group on this forum. I post on the secondary section a lot and would be interested to know abot the private grop and how i get on it. Hoping you can help. Thanks
Thank you for your interest in the secondary private group. It has been brought to our attention that there are some concerns over the safety and accessibility of the group.
All questions are listened to and it is understandable that the safety of the group is of such concern for everyone. Please read all the information below, as we hope to alleviate all and any concerns, though please do continue to ask as the purpose of this space is for you all to feel safe and secure in order to provide a much needed space to be as honest and open with each other as you wish without the fear of others being able to intrude or read what you are all sharing.
Before accepting members to the secondary private group we read and check the content of their previous posts and see if they have previously posted on secondary boards. If they talk about their diagnoses then we accept their request to join the group, If we are unsure about a user’s diagnosis we then email them asking if they can give us some more information about their diagnoses and explain that this is a closed and private group just for those who are living with secondary breast cancer.
We are very careful with whom we accept into the group and do perform checks but what we are unable to prevent is someone giving us or you false information. However, we feel confident that the group will provide a supportive, private community area for people with secondary breast cancer where they can feel safe and supported by others who have shared or similar experiences, which is in an area which cannot be viewed by anyone on the open forum.
Also, we have happily now fixed the glitch which prevented users from viewing the members list of the group. You can now see the members of the group if you click the view all button at the bottom of the members bar on the right hand side.
Lizzy & Anna