Hello, 12 months ago I had a mastectomy and all lymph nodes removed, six months ago secondaries appeared on liver, last month after CT, mri and bone scans, spots on liver grown, avr 4.7 cms, and now spots on skull, spine and across lower back. Pain really bad, now using walking sticks, and bought a mobility scooter last week. Bone injections prescribed monthly for the forseeable. Tried anastrozole last year, then ribociclib and fulvestrant Injections, now on third round capecitabine. I’ve never asked for mental support, ladies but I’m asking now, please can someone motivate me? Give me some hope? I’m not usually a moaner, but feel I need some support now? X
Hi Daker, I am sorry you are in so much pain and struggling with mobility. Do you have input from a pain management team? I was referred to the local hospice (this doesn’t mean that you are facing the end) and the pain nurse there gave me lots of advice about how to improve my spinal mets pain and sent the details of the medication advised to my GP who prescribed it. You should not have to suffer pain and there are experts who can help you. You can ask your GP to refer you or your hospital team. If you have a specialist nurse she/he can refer you. There is definitely hope and support out there for you. All the best xx
Hi there Daker,
So sorry to hear about your pain. It really is the worst symptom. I am hoping that now you have started the bone injections you will find some relief from those too as they really help the bones. But for now, I agree with others about how helpful the hospice has been with managing pain. They seem to specialise in managing symptoms like pain, and not just end of life care so don’t be put off. I have recently been put on a butrans patch, lowest dose and that has been a big help, and no unpleasant side effects either. I also have oromorph for the odd occasion when pain is worse but that is very rare at the moment.
Hope that helps, and praying you have some relief soon,
Peggy