Hi fellow capers.. sharing some good news.. had ct scan and results showed stable lungs.. hoorah! This is my 3rd chemo in a year after progression on paclitaxel and then Eribulin gave me bad peripheral neuropathy so had to stop that. Happy to be a stable mable this time.
Happy new year everyone
Hello George - glad you got some days off Cape over Christmas - it makes all the difference when you aren't tied to eating times re taking the peachy pills!
Thanks for the good wishes, and same to you and all other Cape Crusaders.
glad to hear that you are out of hospital and that you have been able to celebrate Christmas; it sounds like you have had a lovely time which you have definitely earned after having to spend Christmas in hospital. It is always a relief when people react positively to our changed appearance as a result of chemo. I remember being very reluctant to show my shaved head to my niece and nephew ( 11 and 14), but they were totally unphased and my niece had great fun trying my wig on!
I have been 'lucky' in that I was able to get off the cancer train for a few weeks. Onc gave me a few days extra off chemo and has reduced the dose so I was able to enjoy all the family / friends get togethers. I have had a really lovely time although I have probably drunk a little too much red wine! Back on the train tomorrow though as I have an onc appointment and TM results. Also, waitng for CT and MRI scans to check I am still suitable for a liver resection. Honestly, the fun never stops!
Good luck with chemo on Wednesday. Often the thought of treatment is worse than the reality, in my case anyway. Make sure you have lined up some good DVDs for Thursday; that is what I used to do when I was on. Taxol so I had something to look forward to the following day when I didn't have much energy.
Hope all other Cape Crusaders are doing well. Happy New Year to you all. Xx
Hello Abney, glad you had such a lovely, relaxing time over the weekend!
I know what you mean about dreading the chemo, but trying to tell yourself it is ultimately helping you. Putting poisons in, to hopefully kill the other poison inside you. Good luck, and best wishes.
I am not on chemo yet, but expect to be next month. I had pulmonary embolisms after a long haul flight in 2005 so once I start chemo I know I will have to be on blood thinners as well. Giving myself the heparin shots freaks me out for some reason, I have to do so every time I fly long haul. So I do hope there is a tablet alternative.
And a Happy New Year to you all - and all mets ladies. Sorry you had such a long stay in hospital Abney but glad you are now home and hope you have a lovely belated Christmas celebration.
I too am on Rivaroxaban, which is one of the new types of blood thinners. I was previously on Heparin daily injections but asked to be moved to the oral tablets. I have continued to have them whilst on, or off, chemo and there are no cross implications other than a non-cancer patient would have with regards them currently not having an antidote. However the tablets effects last for 24 hours, unlike warfarin, so your blood is not thinned for the same length of time which presumably why they are now a fairly routine prescribed drug. I see one of the few (2? 3?) cardio-oncologists in the UK and I know he would not be allowing me to take the tablets if there was a contra indication so it is worth asking about if your own oncologist and/or cardiologist is unsure and you would like to change from the daily injections.
Good luck to all Cape crusaders I hope 2017 is a better year forgot and for us all.
Happy New Year everyone and hopefully a more healthy one. I am also glad to see the back of 2016 and feel more positive for the year to come.
I am up to see my oncologist on Thursday to see what to do next !!!!.
I am feeling quite well at the moment, eating well and gradually putting on a little bit of weight which my husband is very pleased about. I lost so much prior to my hospital admission.
The last time I drained the right side of my PleurX catheter there was no drainage so I am hopeful that the effusion has dried up the only other explanation is that it is blocked but I am not getting any symptoms to suggest this, a chest xray is the only way to confirm. I am still draining 500-600mls from the left side so I think the plan will be to put me on a lower dose of Cape to see if this will dry the fluid up. Hopefully I will not react so badly to them this time but I am fully prepared and will remain positive to the outcome.
Good to hear you out of hospital Abney and you were able to enjoy Christmas with your family all be it belatedly. Best wishes and hugs. Ann xx
Yes thank you I have found the bone mets group, will join. Saw oncologist on Thursday and have now started cycle 4. Not feeling up to mark last couple of days. Temp was up a bit but after an early night it has come down. Not eating much tho. Have a scan on 23 January to see if tablets are working. The best new year present would be that they are working. As I don't have many side effects I feel they won't be working. Pain from radiotherapy is kicking in this week, they said it would get worse before it gets better. Good job I have morphine for pain.
Everyone have a happy new year. Glad you are feeling a bit better Abney.
Hello Abney, so glad you are out of hospital at last and improving a little bit. I, too, am on blood thinners for the rest of my life after a DVT in late 2014 in my right calf. I am currently taking Riveroxaban tablets as I am on a chemo break. However, once I return to chemo I have to return to the Fragmin tummy injections as my Onc says the tablets haven't been tested with chemos.
I do hope you continue to improve.
Hi Bousy....hope you fond the bone mets thread?
.Bone mets - please join in and its under' living with secondary breast cancer' not under
'treatments and medical issues'
Abney! Oh am so glad you are at home now....that was a very long hospital stay.....would have driven me bonkers!
I too am on tummy injections for ever, as I got a dvt on Cape...fairly early on in my two years. The hospmissed it as it was just a swollen ankle at first...but then the ankle to knee! So I was packed off to my general hosp for an ultrasound. im on Daltaparin/fragmin, but there are another heparins about. My venous cons said that the new tablets have no antidote and so im not eligible....these short acting heparins are safer for us at the momentxxx
do enjoy your New Year celeb and xmas....(.I missed my birthday and my xmas last year, due to a broken wrist .....took me a while to catch up too!)
keep in touch Abney💚💙💚
Hi Abney I'm sorry to hear you are in hospital for Christmas but probably the the best place to be for you. Hope it's a good day tomorrow with your little one.
Hello Abney, so sorry to hear you are back in hospital - and such a frightening experience too! You have really been through an awful lot this last week - I do hope things start to improve for you soon. It sounds like you are a bit more comfortable now, but sorry you will have to spend Christmas in hospital. It sounds like it is probably the safest place for you at the moment, though. Good luck, and hope to hear more good news soon (shrinking of chest tumour excellent!).
Hello Abney, you poor thng! i think you are so very brave!
I am so glad they managed to bust that clot and am overjoyed about the tumour reduction. As you are in hospital im sure they will keep you mobile, wonder why the clot appeared?
Could it have been something to do with the pleural effusion? Or as youd been feeling so poorly, were you a little less mobile? Thats how I got my leg clots 2 1/2 years ago, try and drink loads of water( unless they tell you not to) sounds like you are in a general hospital? And I cant recall where you are from..but you are obviously in a good placexx
Have a good christmas Abney, will check in here from time to time
Have just read your post and can't believe what a frightening time you have had! Thank goodness though that you had gone into hospital and all of this was spotted, if you had been at home who knows what would have happened with the blood clot. Although I know you would rather be at home you will be in good hands and back on your own two feet in no time. Wishing you (and all Cape Crusaders) a Happy Christmas and I hope you get to enjoy the present opening with your family and get back home ASAP.
Hello Bousy - sorry to read you are currently experiencing so much pain. Hopefully that will subside soon and the rads reduce your levels dramatically. Glad Cape seems to be working for you so far and that you are coping with it. Long may it continue.
Hi Moijan ,
yes im on morphine tablets and they have given me oramorph so it helps. Feel like I've been kicked with a football this morning. I know it gets worse before it gets better.
How do I get on bone mets forum, when I search for it can't seem to find it.
sorry you re in pain, did they give you anything to help relieve it?
If not, try and chat to your gp or bcn. Maybe some of the girls on the bone mets thread can share what they take for it.xx
Praying that the rads will help asap.
have a good Christmas
i went for some radiotherapy treatment yesterday to relieve pain I have in left hip. Turns out I have tumours on vertebrae of spine which are pressing on nerves causing pain. I had 5 doses in one yesterday. They warned me pain will get worse before it gets better and it is. Felt terrible yesterday. Hope to feel better today. Cape seems to be ok so far, just finished 3 rd cycle, have scan in January to see if it's working.
Hope everyone enjoys the holidays.
Hi Catherine - sorry to hear of your latest diagnosis. All I can tell you is my own experience and what my oncologist suggested. I started with Carboplatin and Gemcitabine after my recurrence. Apparently people with TNBC respond well to the platinum based chemos, such as Carboplatin. After Gem Carbo I tried Capecitabine (Capecitabine is the generic name for Xeloda). It's given in tablet form. You have 14 days of tablets and then 7 days off. Most people seem to find it quite easy and I know some have successfully taken it for a number of years. I was one of the few who couldn't tolerate it because of a lack of the enzyme necessary to metabolise it, so I had less than one cycle. Having said that, even the small dose I had seemed to be reducing my skin mets.
I think the only way to assess if your onc is right with her treatment plan is if you got a second opinion but that would take time.
I hope this is of some help and maybe some other ladies will be along to tell you from their experience.
Best of luck with everything.
Hello Catherine, welcome, but sorry you have had to join us. I'm afraid I can't help you with your decision about which chemo to have. I haven't had Carboplatin, so don't know what that would involve. Have you had a meeting with the Chemo team to explain your choices (I know you are seeing your Onc tomorrow)? If this is instead of an Onc team meeting (pre-chemo type thing), make sure you go armed with paper and pen and ask lots of questions. I hope you have someone to go with you - if you do, ask them to also write stuff down as you will probably (understandably) be totally confused by it all.
Sorry I can't be of more help, but we are all here for you. Most of us "hang out" in the Bones thread, under the next header down from Treatments (sorry, can't remember the name at the moment!), even if we don't all have bone mets.
Whichever chemo you decide on, it might be a good idea to also follow the thread for that chemo -everyone generally has lots of usefull tips for coping with that particular chemos se's (side effects - unfortunately, you will soon become horribly familiar with all the terminology!).
Hugs and best wishes. Barton.x
Hi, I'm new to this area of the forum but have just been told I have bone mets and possible liver mets. I'm triple negative. My primary was found last Christmas and i was considered Stage 1b so this is a real shock. I've never had chemo as my tumour was considered too small at primary, so I had lumpectomy and rads. My question is: I'm going to have chemo next week and I've read that a lot of triple negative ladies have Carboplatin. My onc is suggesting Xeolda and Capecitabane. How can I find out if she's right? Is this combo because I've never had chemo before? We see the onc tomorrow for the final decision and I'm trying to learn as much as possible. Many thanks for reading this. X
That's great, Anneemay! I hope the lower dose means you don't suffer those nasty effects again!
Yes I will be seeing my oncologist in January so I'm anticipating that I will continue on the Cape but on a lower dose. Ann xx
Oh, Anneemay, so sorry to read you have been so ill! But glad you are now out of hospital and feeling slightly better - I hope everything improves soon. Are you going back on Cape (because of good results) when you are over this hump? Hoping improvements continue.
Haven"t been around for a couple of weeks as I was admitted to hospital after having a urgent appointment with oncologist. I had just started my 3rd cycle of Cape on the Thursday evening but by Sunday morning I felt so unwell with the diarrhoea and vomiting I contacted the oncall nurse and advised me to stop taking the Cape. I was not eating as I didn't feel hungry and was gradually losing strength to get out of bed.
I am now home after having I.V fluids to rehydrate and correct my electrlyte imbalance, C.T scan and colonoscopy. The good news is that all investigations revealed no problems and that my pleura mets had improved on the Cape. So now have just got to getter over this blip and let my tummy settle down as it still is not completely right. I have also got oedematous arms and legs because my albumin levels are low so now on a high protein low fibre diet with no alcohol. Still it"s good to know that I will get through this and it is only temporary. Ann
That is excellent news, George! Wow - personal service from the consultant! You are lucky. You now have a good plan - here's hoping you can rest easy now for the next couple of months.
Good luck withthe Cape.
So pleased for you, George, now you can relax and enjoy Christmas! You are honoured having a personal call from the Consultant, they are obviously giving you some thought and it's good to have a definite plan of action. Have a good week! xx
Hello Georege, yes, was given a 6-8 week break when I last saw Onc on 1st Dec. Mainly due to very sore fingers, but also to the breathlessness I have been having. I have another appointment to see Onc on 12th Jan to review things. I had completed 14 cycles since restarting Cape early this year.
Hugs. Yes, damp and gloomy in "sunny" Devon, too, today!
Hello George, yes, you are correct - I did have a break of several months. I was then on Exemestane during the Cape break, but it stopped working (I'm apparently only mildly hormone receptive now), so was put back on Cape. Apparently they had been considering putting me on Vinelorbine, but when I asked if I could return to Cape because it had worked so well for me originally, they agreed. So I still have Vinelorbine in reserve. During this current break, they haven't bothered putting me back on Exemestane as it didn't work previously.
Hope I haven't waffled for too long. Good luck, George, with whatever you decide to do.
New painkillers are easing my pain already. I have a CT scan in January to see if cape is working or not.
I had FEC first time round in 2012 with my primary tumour, which wasn't too bad.
Hope everyone has a good weekend.
Hello Sarah66, so sorry to read Cape has failed you. I too had FEC-T for my primary, in 2011. Hope it does it's job for you again.