Sorry Moijan, havent been on for a while. Musherooms still having their effect. Had blood test today so will be interested in results as I've managed to pick up some kind of nasty virus. Started last Wednesday and I'm convinced I picked it up after oxygen therapy, perhaps the mask hadn't been properly cleaned. Haven't needed a blood transfusion either and my haemoglobin levels were low at my last test. Fingers crossed.
Well done for going for a walk. Why not soak your feet in warm salt water for a while, then massage in some cream - udderley smooth or anything mild, then put them up for the evening...if they arent red...they will surely settle downx
have nothing sensible to say today, and as you know im a bit of a prankster! So reining myself in xxxx
have a great weekendxx
Hello Helen, lovely to hear from you! Also, wonderful news that you are doing so well on Cape, especially after those dire warnings from your medical "professionals"!
Glad it went well, George!
I have hospital this afternoon to pick up my next lot of pills (as long as blood ok). No clinic this time but see Onc again in 3 weeks for following cycle. I should, hopefully, have a CT scan soon (promised for after this next cycle) to see how the Christmas break has affected things.
Hugs and best wishes to all.
Hello George, hope the staple removal went OK? Glad your pain is manageable, after what must have been a major op, by just taking Paracetomol!
Racer - hope you are doing OK. Just wanted to let you know we are all thinking of you. Post when you can, but don't worry if it's too much at the moment.
Hope everyone else (lurkers and all!) are doing OK. Hope that doesn't sound pushy - don't mean it to! If you can't or don't want to post, please don't think you have to. I just want you to know that we all think of the quiet ones too!
Hugs to all. Barton.x
Hello George, doing more or less ok, thanks. Have made a decision about work, but don't really want to say yet. Will let you know as soon as I can.
Hugs and good luck for tomorrow.
Oh George...I quite agree with Barton....and as you know I had a hepatectomy, so my scar is very wide. One thing tho, do take it easy and do as the physio recommends...I think I may have a small hernia on my scar line....is it all very painful? I recall it being quite painful myself.
Great to hear from you, george- I have been wondering how you are. I'm glad your op went well. Well done for resting! After something like that you really need to. Staples coming out shouldn't be too painful (says she who has never had them!).
Keep us up to date with how things are going.
Ps - keep up the resting!
Oh racer, so good to hear from you! I had been wondering how you were! You sound really positive. So glad you are taking control of things - good for you! You and your husband sound like a good team. Yes, eat what you fancy, rest when you need to. Get out and about when you can.
Wishing you all the best. Hugs. Barton.x
Ps- never apologise for "rambling", we are glad to hear from you.
Hi Sian, I agree with Barton. I was on Cape for 18 months in 2013 and had to juggle a few times with the timing of taking the tablets. A small snack eg piece of toast in the morning I'm sure would be fine. You don't have to rigidly take them 12 hours apart either, just make sure you leave at least 8 hours between the doses. If I was out for a meal in the evening (when it was difficult to control timings) I would wait until I had eaten some or all of the meal and then take the tablets, this might have been some 2 hours or so later than usual but as long as I left enough time between that dose and the morning one it never caused a problem. Equally some mornings, especially at the weekend, I didn't want to get up early to have that dose so would delay it an hour or so until I was ready! Make it work for you and then they won't govern your day to day routine.
Hello Sian, in answer to your query, I would say yes, that should be possible. I have done it myself occasionally. It's not something I would do regularly, but I am under the impression that taking the pills at regular 12 hour intervals is important. I know you don't need much in your stomach to take the pills with - I think it is so your digestion gets going and the pills don't just sit and irritate the stomach lining.
Well done for starting Cape.
Thanks, Moijan - it does tend to get a little confusing with separate threads on the same subject! I never know which one to reply to!
Hello Angela, glad you have found us, thanks to Moijan! Congratulations on completion of your 4th cycle of Cape. Sorry you are getting nausea, and having to take anti-sickness pills. That must be a real nuisance. Sorry also that you are coughing and wheezing - hopefully your scan and results can put your mind at rest. It's a worrying time though - we all know that one! I feel for you. Please do keep in touch and let us all know how you get on.
Hi Barton, the lovely lady you advised about threads has begun a new Cape thread, by mistake...have just pasted in the link for this thread, as she will likely get better support on here
Babsy...was looking, bu cant see...did you paste a lnk to the integrative oncol?
Well the integrative oncology service states that it helps chemotherapy do its job more effectively, helps treatment related fatigue, helps rid the body of toxins, helps the transport of nutrients to the cells and alters the bodies ph levels producing an alkalising effect on the tissues. So multi factors. I also jump on a rebounder in five minute sessions for five minutes at least twice a day.
can you elaborate about the hyperbaric oxygen please? I know its good for lymphoedema, why are you on it tho?
Hi Jacquie, not in the first week but then I started following the programme of supplements that I had been given in full. Currently I take Lypo-Spherical Vitamin C in the morning in a green juice mix with organic orange juice. I've also just started hyperbaric oxygen therapy this week so will be interested in the effects of that. After two sessions do feel a little more energetic, so fingers crossed .
Hey Racer, glad to hear that you are home. Did you see my post about the medicinal musherooms that I took to boost my platelets? There is this big study with stage IV bc patients in Spain and they have had tremendous results with them. After four days mine were boosted from 0.94 to 127 and another week after that to 154. I listed a picture of them on earlier. You can buy them from the Spanish company on label for about £57 for a month's supply. They were recommended to me by an integrative oncology service and even my normal oncologist wanted to have the name of them after seeing the results. Hugs xxx
You are right, of course xx. Its a real shame that she doesnt get overheard by someone senior to her.
the very worst thing you could do, is to be 'So, Very Extra Sweet' to her and thank her whenever you can......
when shes being a b*t** you could say, with a really warm smile on your face ' oh, thats so nice of you'
0r you could try another tack ' are you ok?' 'i thought you were looking really anxious this morning.'
my guess is she must have some awful problems that she deals with........, by picking on you!
Thanks, Moijan. Yes, I do know that, but I really don't want the hassle! I couldn't stand up to a tribunal (or whatever) and I really can't bear the thought of using time that way. I know she is very careful about what she actually says (as opposed to implies), and who she says things in front of. I only hope that if she ever ends up seriously ill (and I don't wish it on her!), she remembers, and no-one treats her like this. I know our HR lady has knocked her back a couple of times a while ago (which is why she is careful about what she says).
I am lucky in that I now have PIP to fall back on. I feel sorry for my friend there who still has to endure her!
Thanks again, Moijan, for the moral support.
Hello racer, so glad you have managed to get home, and that things are looking up a bit. Well done for sticking to your guns! You deserve to be allowed to stay on Cape if you wish! Sorry to hear about the breakthrough pain, but I hope you are getting on top of that again now you have your prescription meds.
I think it is bad the way the doctor spoke to you though - you should never be made to feel like that.
I bet your kids were really glad to see you home, I expect they just didn't want to overwhelm you when you first got home.
Hugs and best wishes,
Yes, she is. She is driving me to resignation almost single-handedly. Thanks for the clingfilm "image", Moijan! Unfortunately it wouldn't work - I'm liable to catch out the wrong person - it's a large, open plan office with loads of people working there, but would LOVE to see that (need a hidden camera!).
All the best. Barton.x
the " harpy" lady sounds a bit of a pain in the "bleep". Lol
you know what id try, if I could get away with it anonymously? Work out what time she usually pops into the ladies..,,,nip in slightly earlier and slip a peice of cling film over the toilet bowl,( under the seat.)
works a treat! ( apparently, its a very insightful experience)
Lovely to see you Barton....the mirror thingy was a joke lol xxx
anybody seen the chocolate lady? Saw this and immediately thought of her....
Hello Moijan, sorry you get them too! Haven't tried the mirror thing, and I'm afraid I can't try drinking from the other side of the cup in the office! Water/lemonade/coffee all over the desk! I have to keep working, as the Harpy has a full view of me at my desk and I got them probably over a dozen times today and yesterday. Thank goodness I only do two and a half days a week at work, and I'm going to give up completely soon.
Love the horse!
Hi there Barton,i have had hiccoughs quite a bit, but not related to cape....
i usually try to look at myself in the mirror...have you tried that? A Good shock can help!
or try to drink a cup of water from the wrong side of the cup!
do you like my new avatar? Its Withasmiles horse.....showing a lovely smile!
OK, Cape Crusaders, is anyone else suffering from hiccups? I keep on getting them lately, and once they start one day, they keep coming and going all day! Extremely irritating! I have read the se's on the Cape leaflet, and it is one of the slightly rarer se's. We have a particularly mean boss at work, and I have been told my hiccups "have been noticed"! You what! It's not as if I enjoy getting them!
Sorry - rant over. Had to get that off my chest.
PS- I hope everyones se's are as mild as hiccups!
Hello Marie, I'm sorry I didn't reply to your separate post, but as we had messaged privately about this, I was assuming you wanted someone elses opinion. You are clearly very worried about her rising tm's, but it looks to me as if her Onc isn't bothered yet. Many Oncs don't even ask for them as they say they are unreliable as an indicator. Please try not to worry unnecessarily - at her Onc meeting for the scan results, ask him/her then if they intend to do anything about the results, or what they think they mean. Ou will then get the information "from the horses mouth" as it were!
Wishing you and your Mum good luck and best wishes.