Babsy...was looking, bu cant see...did you paste a lnk to the integrative oncol?
Well the integrative oncology service states that it helps chemotherapy do its job more effectively, helps treatment related fatigue, helps rid the body of toxins, helps the transport of nutrients to the cells and alters the bodies ph levels producing an alkalising effect on the tissues. So multi factors. I also jump on a rebounder in five minute sessions for five minutes at least twice a day.
can you elaborate about the hyperbaric oxygen please? I know its good for lymphoedema, why are you on it tho?
Hi Jacquie, not in the first week but then I started following the programme of supplements that I had been given in full. Currently I take Lypo-Spherical Vitamin C in the morning in a green juice mix with organic orange juice. I've also just started hyperbaric oxygen therapy this week so will be interested in the effects of that. After two sessions do feel a little more energetic, so fingers crossed .
Hey Racer, glad to hear that you are home. Did you see my post about the medicinal musherooms that I took to boost my platelets? There is this big study with stage IV bc patients in Spain and they have had tremendous results with them. After four days mine were boosted from 0.94 to 127 and another week after that to 154. I listed a picture of them on earlier. You can buy them from the Spanish company on label for about £57 for a month's supply. They were recommended to me by an integrative oncology service and even my normal oncologist wanted to have the name of them after seeing the results. Hugs xxx
You are right, of course xx. Its a real shame that she doesnt get overheard by someone senior to her.
the very worst thing you could do, is to be 'So, Very Extra Sweet' to her and thank her whenever you can......
when shes being a b*t** you could say, with a really warm smile on your face ' oh, thats so nice of you'
0r you could try another tack ' are you ok?' 'i thought you were looking really anxious this morning.'
my guess is she must have some awful problems that she deals with........, by picking on you!
Thanks, Moijan. Yes, I do know that, but I really don't want the hassle! I couldn't stand up to a tribunal (or whatever) and I really can't bear the thought of using time that way. I know she is very careful about what she actually says (as opposed to implies), and who she says things in front of. I only hope that if she ever ends up seriously ill (and I don't wish it on her!), she remembers, and no-one treats her like this. I know our HR lady has knocked her back a couple of times a while ago (which is why she is careful about what she says).
I am lucky in that I now have PIP to fall back on. I feel sorry for my friend there who still has to endure her!
Thanks again, Moijan, for the moral support.
Hello racer, so glad you have managed to get home, and that things are looking up a bit. Well done for sticking to your guns! You deserve to be allowed to stay on Cape if you wish! Sorry to hear about the breakthrough pain, but I hope you are getting on top of that again now you have your prescription meds.
I think it is bad the way the doctor spoke to you though - you should never be made to feel like that.
I bet your kids were really glad to see you home, I expect they just didn't want to overwhelm you when you first got home.
Hugs and best wishes,
Yes, she is. She is driving me to resignation almost single-handedly. Thanks for the clingfilm "image", Moijan! Unfortunately it wouldn't work - I'm liable to catch out the wrong person - it's a large, open plan office with loads of people working there, but would LOVE to see that (need a hidden camera!).
All the best. Barton.x
the " harpy" lady sounds a bit of a pain in the "bleep". Lol
you know what id try, if I could get away with it anonymously? Work out what time she usually pops into the ladies..,,,nip in slightly earlier and slip a peice of cling film over the toilet bowl,( under the seat.)
works a treat! ( apparently, its a very insightful experience)
Lovely to see you Barton....the mirror thingy was a joke lol xxx
anybody seen the chocolate lady? Saw this and immediately thought of her....
Hello Moijan, sorry you get them too! Haven't tried the mirror thing, and I'm afraid I can't try drinking from the other side of the cup in the office! Water/lemonade/coffee all over the desk! I have to keep working, as the Harpy has a full view of me at my desk and I got them probably over a dozen times today and yesterday. Thank goodness I only do two and a half days a week at work, and I'm going to give up completely soon.
Love the horse!
Hi there Barton,i have had hiccoughs quite a bit, but not related to cape....
i usually try to look at myself in the mirror...have you tried that? A Good shock can help!
or try to drink a cup of water from the wrong side of the cup!
do you like my new avatar? Its Withasmiles horse.....showing a lovely smile!
OK, Cape Crusaders, is anyone else suffering from hiccups? I keep on getting them lately, and once they start one day, they keep coming and going all day! Extremely irritating! I have read the se's on the Cape leaflet, and it is one of the slightly rarer se's. We have a particularly mean boss at work, and I have been told my hiccups "have been noticed"! You what! It's not as if I enjoy getting them!
Sorry - rant over. Had to get that off my chest.
PS- I hope everyones se's are as mild as hiccups!
Hello Marie, I'm sorry I didn't reply to your separate post, but as we had messaged privately about this, I was assuming you wanted someone elses opinion. You are clearly very worried about her rising tm's, but it looks to me as if her Onc isn't bothered yet. Many Oncs don't even ask for them as they say they are unreliable as an indicator. Please try not to worry unnecessarily - at her Onc meeting for the scan results, ask him/her then if they intend to do anything about the results, or what they think they mean. Ou will then get the information "from the horses mouth" as it were!
Wishing you and your Mum good luck and best wishes.
Hello racer, glad you are feeling well enough to post. Also glad the nausea has reduced a bit - nasty feeling, and horrible not being able to eat. Well done for the walk along the ward.
Enjoy the pampering tomorrow!
Look after yourself, and listen to the hospital staff. You are in the best place for now (although I know you really want to go home).
So sorry to hear your news and I can only echo what everyone else has said. I can't imagine how devastating the news must have been and hope that the Cape keeps you stable for as long as possible. You sound like an incredibly brave, strong woman with a loving, supportive family. Sending you my very best wishes - I will be thinking of you.
Oh racer, I am SO sorry to read your news! It must have been devastating! Not having children myself, I find it hard to fully comprehend your worries for them, but I truly sympathise with you. I know how hard it was telling my family of my Secondaries diagnosis, so can understand how many times more difficult it must have been for you to tell your parents this news. I think you are doing the right thing in keeping going with your chemo, but it all has to be YOUR decision - don't let the docs dictate to you what they want - I hope your hubby will fight your corner for you, as any disruption is the last thing you need at the moment.
I am thinking of you, as I am sure everyone else on the Forum is, too.
Hugs and best wishes. Barton.x
So sorry to hear what your oncologist has said. I do hope that the lower dose helps you and allows you to pick up. Are you still in hospital? If so I hope that you are being looked after well and getting all the care you need. Take care, big hugs and thinking of you.
Yes,Lovely Helen is quite right...
..and I forgot to add that you are entitled to request another opinion...but obviously that could involve travelling and im not sure that travelling would be good for you just now??
focus on staying positive, getting lots of rest and eating small frequent but nutritious meals. Have lots of time with those who love you....We will be here for you xxv
Have pm'd you xx
sorry I hadn't replied earlier, have been pretty hectic today and my b ipad is playing up xx
what a shock for you....how dreadful for you to be given such news. Xx
(the onc has got to tell you as he sees it......and by telling you...has given you pause to organise your thoughts and decisions)
I hear what you are saying...you want to fight xx you do have choices...even tho it might not feel like it.
my immediate thoughts are:- you hold on to your goal of getting your daughter through her prom...a mothers love is a big powerful driver and none of us..........even your onc, have got a crystal ball
regarding the DNR.....that is your decision..you are still well enough to make your own decisions and the hospital will have to abide by your own choice....speak out and be clear about that choice, ask them to show you that it has been clearly recorded...
As you say, you are wise to try not to waste your time on what might have been...try and focus on what it is that you want.
Racer, you have been given a kick in the teeth...im so sorry, xx try very hard to keep your focus on whatever decision or choices you decide to make. .Xx much love and hugs,
Racer I'm so sorry to hear your news. I can't imagine what you are going through right now - good for you for wanting to keep on fighting. Sending mega cyber hugs to you and your family - I hope you have many many months ahead and that you're surrounded by love and support.
Quick update - Onc visit today, and blood ok this time - massive relief that something is happening again. It seems ages since anything happened, but of course, only really 4 weeks if you include the week off of the last cycle.
Hope everyone else ok, or at least comfortable and being looked after (racer!).
Racer, hope you have also had a good day?
have you managed to revamp that ward yet? Dont you just feel sooo like rearranging all the beds into a circle.....and starting off a group sing song?
i was always tempted to start a mutiny, or to sew nail brushes on the bottom of the curtains...to see if Sister noticed?
I suppose, now, you could casually elbow the fire alarm as you pass by on your way to the loo?
have a good restxx
Ooh, Babsy, just saw the jar...am so peckish now! They seem to b doing wonders tho...
hope today was a good one for you.
anyone seen Carolyn? Please tell her I was looking for her, naughty lady xx
Hello racer, so sorry to hear you are still in hospital. I understand you hating it, but, as everyone else has said, you are in the best place at the moment. Your exhaustion is evidence of that, and the hospital staff know best!
I can understand your children missing their mum, though. Hard on everyone.
Hugs, and thinking of you. Barton.x
Just tread water for a while..,,,,best go home when you are a bit recovered.
Hi Babsy, i'm very interested in your mushrooms! My son has been doing some research and found that different mushrooms are used around the world for cancer treatment, he has been out picking mushrooms that grow on birch trees, that are used in Japan, and making a tea from them which he served to me when he visited, they didn't poisen me which was good! He's fairly knowledgeable about plants and very into natural remedies but i must admit i am quite sceptical about these things. After reading your post i am wondering if he may be on to something.
Hugs Sandra x
Hi Moijan, well after taking them for four days my platelet levels went from 0.94 to 127. So pretty impressive! My white blood count went from 2.4 to 3.8, Lymphocytes from 0.87 to 2.18 etc. So all white blood cells improving. Having another blood test on Monday 6 March as onc has given me a 10 day break from Cape.
Hi there Racer
So sorry you are going through it xx
Rest assured the physicians will know what to do....., bloods are very crucial in their decision making. I keep reminding myself, ( myself,!) that oncs are very specialised physicians, not just cancer specialists...... I go to mine with all sorts of queries ( you'd be surprised) and as you know the treatment for pneumonia is often the same as for a chest infection xxx
Try to keep your spirits up as high as your sense of humour! Which is refreshing.........
I have said before, the word palliative feels scary, but these ladies are pretty good with pain control ( perhaps I'll ask one about my knees!) and if we are not in pain, we are better able to focus upon being strong against all the stuff we have to deal with XX
Much love and hugs.... keep in touch xx