I started off on Denosumab every 4 weeks as that was, at the time, the standard dosing cycle (this was 4-5 years ago) but this was moved to 6 weekly when I was on IV chemo as it made sense to coincide the times I was at the hospital. Maybe they will give you Denosumab 4 weekly for a few cycles and move you to 6 weekly, you can always ask. There’s certainly nothing unusual about either of those cycles, it’s just what fits in with their policy and what you want to do.
Hi Lindy, not sure what mine are just now, however, looking back to 2016, when I had a bereavement,mine made a definite rise to over 1000 and the rise and fall drew a picture of the amount of stress I was under...amazing how they responded, so currently try, try,try to keep my stress under control, but it’s not easy.
I currently have an annual policy (Europe) with Eurotunnel however as my condition is not stable as such at the moment I'm not sure it would have covered me if I'd had a problem whilst away. I do have a general travel insurance policy through my bank which I can fall back on for issues such as delayed luggage/lost luggage and any other health problem (not linked to my SBC) plus I carry the EHIC which would cover me for emergency health problems. Whenever I have been in this position, several times before when I'm waiting for treatments to change and/or know of slight progression, I've stuck to mainland Europe knowing I can get back home should it be needed. We (hubby and I) also book flights etc that we can cancel at the last minute (using avios) and hotels that also are cancellable. This has taken the pressure off us (about making holiday bookings that we may not be able to get the money back for should we have to cancel at the last minute) as well as giving us the chance to look, and book, ahead and hope that we can go on the holiday. Eurotunnel are incredibly cheap and don't penalise you for having a pre exisiting condition. You can make you own decision about whether you are happy that you meet their travel criteria by downloading their T's & C's which are on their website. You can get single trip insurance or annual if you meet the criteria (which I think you do btw).
Happy hols (in a few weeks) and Seville is lovely, if you go on that tour.
Hi Janie, just wondered if you have, or are still planning to speak with Chris Woollams? I too can recommend doing so. From what you’ve said you know about his books, magazine etc, but as you were asking about the ‘Daily Dozen’ list and interested in nutrition, are you aware of Michael Greger? If not his book ‘How Not To Die’ (the book is an easy read, unlike the title!) and website ‘nutritionfacts.org are also excellent and cover all illnesses, not just cancer. I have a spare copy if you are interested, and don’t have it, as I bought one and then was given one as a gift, more than happy to mail it to you if so. Best, Kxx
Hi George/Pollyanna 😉
What a great way of looking at things. I also abide by similar ‘rules’ and have just come back from 4 nights in Portugal! We went to Lisbon and had a fab time, away from all this cr@p, especially as I’m due to have another treatment change and know from this week on it will be several hospital/oncology appointments for some time until things are decided. I’m having a deja vu moment as this happened pretty much at precisely the same time last year. We’ll see what the outcome is but I also get thrown a few curve balls so I’m not second guessing this time.
Hope everyone is coping well on Cape, it really is a very doable chemo and far less intrusive than most treatments, especially other chemos.
Now, I was only off it three weeks....however Barton has had a few chemo breaks without bc getting resistant...we are all different....however, I my bc seems sneakier than some...so not really looking for breaks....just do long as it works.....have not been Ned yet!
No, I didn’t, which isnt surprising as my eyes are pretty dry.
taxol is a unique journey Linda-thank you for asking....it’s currently do able, but I reminisce fondly about my life on Capexxx
tho, I had a rough start with it. It only failed whe I had a chemo break...
Hello everyone...I just recalled recently that I used to get a bit ratty during week three on Cape, and also on Eribulin....just thought I’d mention that..,we are all different, but it might be helpful to know.
have a great weekend. We had a smattering of snow on wed in the southeast, but hopefully we sent it far far away.xx
Hi Pan, I drink kefir every day, although I’m only on Letrozole I did have a problem with an open wound in my mouth and never encountered any problems whatsoever, infact it was when I started taking kefir that my problem eased and I never got another infection in my mouth. I don’t buy it though, I make my own which is really simple and easy to do. I’ve read a lot about it, and attended a study day at Together Against Cancer where I was shown how to make it, and have never read or been told that it shouldn’t be taken with Chemo but would advise you do a quick google search, lots of info from various cancer websites will come up, or as Barton said contact someone from your health care team. Also a website victoriahealth.com has a pharmacist who writes about all sorts of health issues and he has written several articles about immune health and pre/probiotics and I haven’t seen anything there about not taking with chemo. I’ve spoken to him several times about various supplements I take and trust me he is very thorough. Hope this helps, Kxx
Hello Lozzer, hope you have had a lovely day today!
Sorry, Pan - haven't meant to ignore you. To be honest though, my only answer can be that I have no idea! All I can tell you is that I eat live yoghurt and as far as I can tell, have suffered no ill effects.. I know that's not much help, but I can only suggest you speak to your medical team. Then make up your own mind.
Hugs to all. Barton.x
Lozzer Hope the birthday is exquisite
im unsure about the kefir/yoghurts and mouth cuts situ....I have been drinking kefir whilst on chemo.xx
Do check with onc, but I heard kefir was a little safer due to a larger variety of helpful bacteria...but check with onc, mine is happy,for me to take kefir but the hosp pharmacists aren’t! Lots of different views on this
Will do, have to be a little bit later this am tho, will pm it to you...yes I think it’s a bit of a lot to get in as meant to be grazing! But small things one at a timexx
Definitely a good option, he gave me loads of stuff to think about and I’m slipping things into my diet when I can, obviously the rainbow stuff, but he said a cup and a half of ordinary button mushrooms daily, which put me over the moon...I love mushrooms....loads of guidance in the daily snail the other day which repeats just what Chris has been saying for years......actually these snippets do summarise a lot of what he told me...but there was a load more just for me.as we are all different.xx And some things can affect the drugs we are on, so good to check with the onc first...I think some things can affect the antioestrogens mds, like tamoxifen, letro, and of course my delicious taxol! but actually a mixed diet shouldn’t be a problem
Lozzer, So have I too, I did manage a bit better last night on half a lorazepam tablet! Yes the steroids are quite disruptive. Hop you get a better night tonight...to be honest I do have extra naps when sleep is grim....also more important to eat plenty, carbs help.....bananas , I’m told can help too.
Thank you for the tips Janie, Chris told me I could have a small slice of unpasteurised cheese, but I’m guessing after tax finishes....he’s really helpful isn’t he..had a three hour chat with him a few weeks back.
ive been eating kefir as my bloods were fine, but now on Cipro for a week..blasted uti...hate Cipro.
have you seen m+s nourish bowls? I love the avocado and egg one.....can’t find out if any milk in it...it’s not listed, but you cant always be sure.xx