I have read so many other posts since 2016 and gained great comfort and now suddenly it just feels like time to join in and encourage others.
Must work out how you add lovely flowers to the post!
Yes my break was only going to be a trial 6 weeks which kept getting extended as my bloods just got better and better! I think it was a bit of a mystery to my onc!
I just can't shift any weight and have summer clothes in 3 sizes! ( which I keep just in case there's a breakthrough) but I do know it's a very small price to pay for improved health.
Hi Mulligans and everyone
This is my first post although I have been 'lurking' since August 2016!
I wanted to tell you that Cape has worked really well for me and that my multiple,and also large, liver mets were no longer visible on c.t scan 6 months in. All bone mets were sclerotic and stable. I had a 20 week break last summer and am now maintaining good blood and c.t results on a 50% dose. This dose reduction has really helped my poor fingers and feet. My main annoyance is with a 2 stone weight gain which is hard to shift.
My lobular diagnosis was in Sept 2001 and then liver (and nearly all bones) metastases in July 2016
Wishing you all the best
I live in Northampton so not far from you at all! I'm now on my week break so hoping my energy levels recover before the next cycle. Glad to hear that things do get better
Have a lovely weekend everyone
That does sound like a high dose, Lizzie. I'm on 1800 twice a day. But I think it depends on the person's height, weight etc. Glad you've found something that helps with the burns!
Hi. Had mets to the lungs since May 2013 and been really well for 5 years. Now my bloods are playing up. Off work at the moment - not sure I will get back. I had a bone marrow biopsy and the results are that they have found cancer cells in my bone marrow. He said this is quite rare with breast cancer. I am starting on Capecitabine next week. As my blood counts are already very low they will have to monitor me closely. I have already had 4 pints of red blood and 2 lots of platelets. I feel options are running out. Had anyone else had problems with their bone marrow. thanks. Maria x
I've completed three cycles of cape. I think this is fairly early days, I feel it makes sense to give it at least four before giving up on it! My lymph nodes are in the middle of the chest, all tangled up with lungs, blood vessels etc, and therefore inoperable. As for symptoms, I don't really know whether it's the swollen lymph nodes causing it or something else, I have a stiff & painful neck and shoulders, made worse by tension (now why on earth might I be feeling tense?!) and it sometimes feels uncomfortable if I bend over, eg for gardening. But it's perfectly manageable, the occasional paracetamol seems to do the trick and relaxation exercises help too!
hi just had results from ct scan which shows lung mets stable but the scan has shown up 2 more lesions on my spine ( previous scan showed one first scan showed none) Consultant thinks that it is possibly cancer that is resolving on treatment and that is why it is showing up. Bone scan in january was clear of cancer. I have no back pain to indicate anything . For the moment onc will monitor for any changes. Has anyone else had this where lesions show up