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Xeloda / Capecitabine - Your Top Tips, please?

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi All

 

After my initial melt down that having spent the whole Summer on Docetaxel for a splattering of liver mets (onc’s words!) only to find by 1st October liver Mets had spread extensively through my liver, I am at last calming down! ( well a bit anyway). I also requested a Chang ego oncologist as I’d been with same one since primary in 2005.

for the last couple of months I’ve felt so lethargic and unwell, on so many pills and potions I haven’t managed to do much but today I’ve turned the corner.

LOTS OF POSITIVE thoughts from my lovely family and friends as I join n the CAPE CRUSADE! so this morning ive popped my first “peachy pills” as Carolyn calls them.

im hoping for not too many side effects but I seem to be having quite a biggish dose. 2150g x 2 a day? I weigh about 10 stone. So not sure if that’s why! 

Im also waiting for the results of liver biopsy from last Thursday. Very surprisingly I found this quite painless! A night in hospital to recover but no discomfort from site.

Please any advice help on cape would be appreciated, Ive been booked for 3 cycles then scan, so hopeing  that it works well for me. 

Good luck to all other cape crusaders. I’m going to be busy today wrapping all those internet xmas presents that it’s all to easy to buy when your sat at home! 

Fairies and elves seem to have decorated my house already!! 

Xx

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello Ramade
Ugh that E and E regime ..5 months i put up with it .. sure it fed the cancer!
Anyway cape is fine ..don't be scared to try it ..I'm just back today on it after my weeks break. I'm on a low dose so tolerating it well. .apart from eating too much ..but its the time of year for nice food.
Off to local pub today for lunch. New menu ..veggy toad in hole ! Gotta try it!

🐖🐖🐖🐖
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Re: Xeloda / Capecitabine - Your Top Tips, please?

hi Carolyn, i agree with you about the grandchilden they really take your mind off...

i had no joy with e/e either and with everything else failing they are suggesting cape so i was glad to find this thread thanks to our late friend Moijan.

i hope you are feeling better now i missed you when you were off line.

hugs Ramade x

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Re: Xeloda / Capecitabine - Your Top Tips, please?

It's nice to have a bit of banter as we all have daily problems to deal with but I try to have something planned however small each day ..otherwise to be honest I could sleep all day
Today been to a 70th cream tea birthday party in a remote little tea room. ..all knitted tea cosys and bone china cups etc. Just nice for us oldies !
Grandchildren are such a gift to have around. .they do give a focus which keeps us fighting all this.
💜
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi George and Caroline,

Thanks for your kind comments and support it's nice on here because you all get it and it makes me feel less isolated.

Good to hear you all planning some fun in your lives ladies without that we would feel even more sad. I am hoping to be well enough to go to my grandaughters school concerts I just love those events. They are 3 1/2 and 5 years old, both attending school in the Welsh Medium so are bilingual and correct my poor Welsh. Boo Hoo!. Best of all they sing in both English and Welsh it is so lovely to hear the kids all singing away in the choirs.

In the meantime I hope you are all getting as much fun as you can.

Be well and keep smiling.

Hugs to all

Happygirl

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Carolyn, try not to be too disappointed regarding your dose reduction. The same thing happened to me when I started Cape; it really attacked my neuts so I had to have a dose reduction. Neuts have since recovered and I am back up to 1800x2 a day. This is also due also to the fact I have put on weight-too much chocolate.🙄My onc did say Cape either works or it doesn't and he has patients who are on low doses.
Happygirl, sorry to hear you have been unwell. Hope you are feeling better. You have such a positive attitude and it is good news your onc has lots of other meds to try. That is the thing with Sbc, it is all trial and error until we find a treatment that suits us. Let us know how you get on and enjoy your retail therapy😊
Hope all you lovely Cape ladies are doing well. I am off to the ballet this afternoon to see the Nutcracker

George 🤗
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello happy girl
I'm sorry u are having trouble with cape ..I stopped denosumab 6 months ago after 3 years because it was really playing my teeth up ..but here in our area they only recommend 3 years of it anyway.
Hopefully there will be more treatments if cape isn't suitable ..I didn't do well on exmestance and everlimous but they might offer it to you and everyone is individual and copes differently.
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi ladies,

Just catching up on your posts as I have been cape-unwell-bed.  I'm sure you will be okay on a reduced dose Carolyn52.  My oncologist told me this week it was not dose dependant for good results so I hope you can remain on it for a' long spell' and get the benifits.

I went for my 3rd cycle on Monday but when my oncologist saw me she decided to suspended me for 2 weeks of cape and delay my Denusomab too.  I will be reviewed then and we will decide how I will move forward. Which is good because I have options and my onc has more stuff in her arsenal if cape is not for me. Yippee! 

On the positive side the drugs had already started to reduce the mets in only 2 cycles, so for you girls who are uncertain it works - it works great. So keep taking the peachy pills. 

My next plan is to join the Christmas Shopping with the others in this group as soon as I can, just in case the shops run out of goodies. 

Happy shopping to you all and by the way remember you need to treat yourselves too, I always feel better after Retail Therapy.

Hugs to all   

Happy Girl

 

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Oh Lynn. .poor you having a cold ..I'm trying to avoid crowds and people hugging me ..just to be sure.
I was on 1600 x 2 but now on 1300 x2 a day. Hope it still works some sort of magic still.
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi Carolyn

 

sorry to hear that your bloods are low.  I do know of a lady whose doseage was lowered twice because of early problems when she started Cape.  She was fine for several months and then they raised her dose because she put on weight, so you could still have a long spell on the pills.  

Was your dosage lowered by much ?

 

I am full of cold at the moment....getting better though.....so taking the rest and spoiling myself a bit

 

xxx

 

Xx

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Oh dearie me ...my bloods and platelettes were low today although I feel ok so I'm now having a reduction in dosage to 1300 x 2 a day.
Disappointed as I'm only on cycle 6 ...hoped for a long spell with the peachy pills ...
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Thanks for the advice. I’ll stick to my toast with coffee for breakfast and see how it goes.
🤞 x
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello
Well after 5 cycles of cape ..got my first dose of the "trots" yesterday. .not a big problem. .just annoying having to stay near the loo ..and we only have one upstairs. .buy I do have commode downstairs for emergency but haven't used it yet. ....
Soooo only eating plain food today. .pot noodles and tin rice pudding! Had planned a roast at the local pub but maybe later in the week.
I always have a muffin with early chemo pills and a cuppa soup. .once I forgot to eat something with the peachy pills and I did get a burning tum all day.

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi all

Good news regarding your TMs, Lynne. I have mine done every 3 weeks, but only ask for results every 6 weeks as it was becoming too stressful. At least it means that every other appointment is a relatively relaxed one.
Enjoy your week off, Carolyn, if you can. I think SEs are worse during our week off due to build up of chemo but, hey, what do I know? I am looking forward to an extra week off at Christmas as hands are becoming quite sore.
Feel the fear, when I asked my onc about food amounts, he seemed to suggest that a small snack was fine. I just had a piece of thick toast with my tablets this morning. Best to check with your team though as different oncs say different things.

Managed to survive the crowds yesterday. One hour of shopping and I am totally bored 😂

Have a good week all

George 🤗
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Good morning fellow Capers.

I’ve just read on the cancer research site that whether you have a full or empty stomach can affect how much cape gets into your bloodstream.

I had one slice of toast this morning. Is that enough?
I really struggle to eat a big meal at breakfast.
I’m wondering how much is enough. 🤔
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Re: Xeloda / Capecitabine - Your Top Tips, please?

That’s great news lynn.
I don’t get TMs. Never been offered. I might ask at my next appointment.
I’m looking forward to starting cape tomorrow. 🤞
I’ve told myself it can’t be any worse than FEC-T.
Just want to get going with it now. X
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Oh Lynn. .what good news to hear. .cape seems to be wonderful for a lot of ladies .I shall be going clinic Wednesday to get my next load too ..having blood pressure and heart checked this time and of course bloods etc.
I did a lot of Xmas shopping in our big matalan yesterday so need to do some wrapping up now.
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi everyone...so good to see such a busy thread.

went to pick up my next cycle of tablets yesterday....which is my fourth.  I am very pleased to say that my TMs have gone down again by nearly half,,this is the second reduction in six weeks.  The nurse was nearly as pleased as I was.

 

hope everyone else has such good results and that you are as well as you can be

 

xxx

 

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

It's good to get this thread busy again as cape is a very popular treatment and we are all cape crusaders fighting this disease.
Well tonight is my last pills for a week. .won't miss the pill taking but will hate the withdrawal from them ..they must come out the system quickly once we stop. ..
Well enjoy your weekend ladies and the peachy pills
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Thanks for replying George.
I start cape tomorrow. I’m trying to be optimistic it’s going to work for me.
I like your kitchen plaque. Wise words.
Good luck tackling the crowds. I hate them too.
X
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi all

Good to see the thread is so active as it did go quiet for a short time. The theme seems to be to live our lives and make plans which is a good one. I plan from scan to scan and every 3-6 months I create a photo book of all the good times which I can look at when I am feeling down, makes me realise that I am living with cancer. Don't want to come over all 'Pollyanna' as, like most people with this diagnosis, I do have bad days; however, I also have a plaque in my kitchen which reads: 'the brave do not live forever, the cautious do not live at all' which helps to keep me motivated. I love little sayings like that.
Feel the fear, in answer to your question, Cape was very effective in tackling my liver mets. Over the course of almost two and a half years, I have had 5 liver mets. All, apart from a dot, have disappeared so Cape did work for me, thankfully. As I keep saying, I don't know how much longer I will have on this treatment, but I intend to plan some 'feel good' activiites before the next scan in February. I hope your treatment goes well.

Have a good weekend all with minimum side effects. I am off to brave the High Street in Chester, not sure how long I will last as hate crowds.

George 🤗
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi Everyone, had my review today and the Onc sent me for a chest xray as I am so breathless all the time. Fortunately he said the xray was unremarkable but is giving me an extra week off to see if I feel better during the coming week and also I requested extra "time off" as I'm going  to an "Elvis" show in Coventry on Sat night at Grosvenor Casino. I think when go next Friday for my review and next prescription the Onc will reduce my dosage and then maybe I'll feel a bit better and have a bit more energy.

Thanks to all of you who responded to my previous posts...its a real booster to hear from you and hearing all your positive attitudes. When I was first diagnosed I wouldn't plan for anything thinking its not worth it as I probably won't be here. But now I have changed my mindset as I hear of so many long term survivors. In my area we meet every month, organised and held at the Hospital and lots of the girls there had their diagnosis years ago and are still going strong !

Hope you all have a good weekend, 

Love Carolyn xxx

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Has anyone had any luck knocking liver mets back with this? I’ve just been prescribed today after letrozole, zoladex and palbociclib failed.
Liver nets have spread extensively. Hoeing this works.
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi I hope you dont mind me joining your thread to find out more about Capecitabine.  I have just been diagnosed with Secondary BC after 9 years and several local recurrences.  Due to start Capecitabine in two weeks so finding the advice very useful. 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi everyone,

Well I have just completed my first cycle and have to say that on the week off I felt wonderful and was pleased that some of the minor SE Ihad ie feeling wobbly and ligt headed disapperared as I had convinced myself that the cancer had spread.

 

It is amazing how over active the brain becomes in the middle of the night as I lay awake !!

 

The onc is sending me for a bone scan just see if there is any other activity so fingers crossed that comes back clear.

 

I am now trying to get to the point where i feel able to make plans in the future and I spoke with the onc about travel. He dismissed some of my ideas such as a cruise due t high risk of infection but yet said that a trip to South Africa to visit family may be an option. He has advised waiting to see how effective this treatent is but i so hope that I am able to make this trip. 

 

I'm hoping that as  i start my second round that my energy levels don't dip and have some nice activities planned.. I'm heading over to Harrogate today and very much looking forward to it..

 

I think it was Lynne that mentioed a possible meet up in Yorkshire for coffee and if this were to go ahead I would love to meet some of you ladies.

 

Take care everyone

Sarah

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi again everyone. Just finishing my third week off and off to pick up my fourth packet of pills tomorrow. This week has been as bad as when I am taking the pills but compared to many my SEs have not been too bad. Hope that doesn’t mean the cape isn’t working - tho I have read that SEs don’t affect results. Hoping to get a TM reading tomorrow which will give me further reassurance- they’re have been on the downward trend so far.

Graceland Girl hope that you’re feeling better and that they reduce your dosage which in turn reduces your se’s

and George so pleased that you are remaining stable after 15 months makes us all very hopeful. I agree about planning as well, I have always been a planner - it is our Golden Wedding on Boxing Day and we are planning a party in March.... when life isn’t so busy and the weather is better...can’t expect people to travel at such a busy time of the year. I have sent out ‘save the day’ invites. The pub we want to have for the party gets booked up very quickly so daren’t leave it too long.

Best wishes Carolyn and and Happy girl.

Just wondering where everyone lives I am in Yorkshire.... close enough to anyone for a coffee somewhere???

Hugs to all

C

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Thanks for your good wishes, Carolyn and Happygirl. Cape has been good to me so far so I can't really complain about SEs, just deal with them. This is my new 'normal' so got to get on with it. Also, it means i can plan the next 3 months of my life until the next scan. I think this is what non cancer patients don't always get. I can't plan my summer holidays now as I don't know where I will be with my treatment so always have to wait until nearer the time.
Sorry, Carolyn, can't help with your week off. I bought myself an orange squeezer and have a glass of fresh orange juice every day with my breakfast, only a little thing but it keeps me happy. Also, I look forward to enjoying a glass of wine or two during my week off, not advocating this for everyone but it works for me- the simple pleasures. Speaking of which, just enjoying a bacon roll and cup of coffee in a lovely cafe in Birmigham.
Have a good weekend all

George 🤗
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Re: Xeloda / Capecitabine - Your Top Tips, please?

George I'm so pleased for you as you lead such active lifestyle with the peachy pills.
I wandered whether on the week off the pills. .I should take vitamin c or something to keep my energy going
Obviously I won't take anything heavy with the cocktail of pills I use .any ideas ladies?
We are having a new lady join us ..come on Bon ..say hello xxxd
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Well done big hugs
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi all

I agree with all the earlier comments. SEs are often at their worst during the week off which is a pain. I had bout of big D on Friday and sore hands/ feet on Saturday. However, after 2 Loperamide and a dioralyte I felt much better. Got to keep soldiering on, especially if peachy pills are working.
I had scan results yesterday which showed everything is stable, no progression. Phew, what a relief as I had convinced myself that after 15 months Cape my 'luck would have run out. TMs have risen slightly, but only by 4 points over 7 weeks so not too bad. Onc continuing with treatment and has agreed to give me an extra week off during the Christmas break ( whoop, whoop).
Hope SEs are easing for you all.
Have a good week

George 🤗
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Re: Xeloda / Capecitabine - Your Top Tips, please?

I finish my 2 week cycle again Sunday and yes hate that week too ...think it would do us good to rest the peachy pills but it doesn't. .takes a few days back on them to feel better. Think I feel the best on days 8, to 14.
But if they do what they say on the tin. .we must have faith in them and hope they are killing the blighters that have invaded our bodies. .
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello Graceland Girl,

You are not alone with these SE's, I have just finished my 2nd cycle and my breaks seem much the same as yours without the breathlessness. I do take an antisickness pill in the morning even when on a break because it helps with the nausea,  so it might be worth a try. 

Pleased to hear the Doc will review your dose it seems to help some cope better with SE's from what I've read of other Cape ladies on here, so fingers crossed things improve for you soon.

I feel the hardest thing is to continue treatment knowing it makes you ill. But we have to focus on the possible improvements and that's what helps us keep going.

Hugs and keep going

Happygirl

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello All,

 

I'm  on my week off from cap after completing my 3rd cycle ( 2150 x 2 a day ) I definately feel worse when on the break, which I thought would be the time to feel better. I am so tired, breathless get stomach ache together with the big D don't  want to eat and consequently cannot stand drinking all I should on an empty stomach as it makes me feel sick. I went to the Hospital today for my blood test and went to the Emergency Assesment Room where they put me on a drip for 2 hours. The Dr I saw took lots if notes and he said my Onc might reconsider my dosage when I have my review on Friday.

 

In the meantime hope all who read this are feeling well and I look forward to hearing if any other ladies have the same SEs. By the way...do we have any men in this thread as I understand men also can be affected by breast cancer.

Love Carolyn xx

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi again everyone, hope you’re all as you can be.  It’s cold, wet and miserable here today in Yorkshire.

 

like you Carolyn I feel the cold more on Cape, I was on Letrozole for almost five years  - didn’t have hot flushes but never felt really cold.  

 

Hope that the liver biopsy goes well for you Bel. and that you can start your cape and start to feel better.

 

This is my week off on my third cycle - Finished Friday and had a bit of the big D for a couple of days, also really tired and a bit shaky but today I feel much better.  Will be collecting my fourth cycle on Friday after my bloods on Thursday, so fingers crossed for good results.  Had low neutrophils after my first lot but when I asked the nurse if there was any supplements or diet changes which would help she said that there wasn’t. - just one of those things.

 

all the info about doseage are very interesting.. thanks for that everyone 

 

lovey phone call from my son today who says not to Christmas shop for food, him and his partner will shop and arrive on Christmas Eve and he will cook on Christmas Day- so I will just get a few extra treats in.

 

Xx

 

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hiya bel
I'm sure once you start cape you will feel better and able to do more. .I think I'm better now on it.
Only trouble is taking letrozole for 3 years. .I was always hot now I feel the cold. Maybe it's the cape or the heart pills I take but I'm sat here with a chunky jumper on and the heating ! Not complaining though. Also feel the ugg boots need airing .
Just got a scan appointment for 8th Dec. .think I will ask for results to wait until after Xmas as wouldn't want bad ones to spoil Xmas!
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi all 

good to see so many positives around cape chemo. I have heard this morning that I can’t start cape till I’ve had liver biopsy with is now scheduled for 30th. Cape to start on 10thDec!

thanks for info on biopsy still a bit nervous but just want to get it started.

ive now had 7 weeks where I’ve been shaky, lightheaded and wobbly so not been able to do much without a place to lie down very nearby! I’m hoping that Cape will sort me out and make me able to get out and about more.

In our area we don’t have a SBC Nurse so I do feel very isolated. We so need one but no money! Apparently!! 

Mad when your support so well with primaries then bang once you get secondaries you’re on your own!

Hoping to get some further support from palliative care team at hospice.

Keep well everyone

Bel x

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

There was a very interesting article about low dose of cape working really well for years ..it was on my Facebook page. .I will try to load it here for you to read. ..
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Re: Xeloda / Capecitabine - Your Top Tips, please?

H Kirky

Thanks for the info and link to the calculator tool, really good.

I don't think the dose can  be the same for everyone because we all seem to have different tolerances and some have other health problems. I am managing my SE's 'reasonably' well except the fatigue and I don't like spending day after day in bed unable to function because I feel so unwell most of the time. There seems to be many women who have or are taking reduced doses, so it can't be an exact science. AND holding onto that thought I will be able to move forward with the help of my oncologist and the lovely support of this community.

Keep smiling 

Happygirl 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi. Re dose. The max dose is 1250mg x BSA. Good calculator https://halls.md/body-surface-area/bsa.htm
I am 5 ft 10 in and 12 stone 6 so large and my max dose was 2500 twice a day. I ended up on 1500 and this kept me stable for 20 months. Good luck xx
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hiya
I found on my week off the peachy pills ..tins of rice pudding helped me with the wobbles and tirednes s etc or sweet things ..it's not good medical advice but what works for me ..suits me !
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi Lynnq

Thanks for your response and good luck with on your Golder Wedding Anniversary planning something to look forward to and enjoy.

I don't know how the medics estimate doses, I was told height and weight. I am 5 feet small and weigh 70k like you with gastrointestinal probs which were caused by first line chemo. We just have to trust them when they decide and hope they will adjust if needed. I hope your week off is as good as it can be and the big D goes away soon.

Keep smiling

Happygirl X

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello Happygirl...interesting to see that you are on the same dose as I am.  The Onc told me that he was starting me on a low dose because I have gastrointestinal problem which causes diarrhoea and since it can also be a SE of cape he didn’t want to aggravate it.

I must say that I didn’t think that it was a low dose but I am quite tall (5’8”) and weigh about 72k so perhaps for me it is.

I am just coming to the end of my third cycle, starting my week off.  I am feeling tired and have the big D today so taking it easy.

Thanks for responding Carolyn - I think that I may be the same in feeling worse during my week off... a bit shaky as well today.

 

 I am also trying to get into Christmas mode,   It is our Golden wedding anniversary on Boxing Day and we are  having a family get together, just close family and our children will sort the food.   Hoping to have a bigger celebration in the early spring when people are more able to travel.  Really want to stay well for that...

 

Hugs  to all Cape users

 

xxx

 

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi Caroline,

Good to hear your Cape is not causing too many problems and you have got to your 5th cycle (well done) after horrid previous treatments.

I'm just coming to the end of my second cycle but not sure it's any better only that I am managing the SE's a bit better. Like you I am finding 'Sleeping' all a part of the course but not eating so much as nausea seems to govern that even though I have tablets that help. I'm on the max dose for my hight and weight  2000 x twice a day. So I hope to discuss a reduced amount when I see the oncologist on 26th then the next cycle begins. I am determined to give it a go and apreciate all the sharing that goes on in this forum it really helps. Thank you.

Wishing you well as you continue your journey

Hugs

Happygirl

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Cheers George! I’m looking forward to reading it, Kate x

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi Kate,

Yes, she is the one. She was a vegetarian, marathon running deputy head when she was diagnosed. I found the book helpful, hope you do too😊

Have a good weekend all

George 🤗
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Shame on you Lynn. .not visiting us for a whole week ! I find the week off cape the worst. .although it's nice not to have to pop all the peachy pills. .I find myself extra tired and wobbly. .like withdrawal symptoms. I'm on day 5 back on and feeling much better again ..but I'm going to have to stop eating so much !
I'm in Xmas shopping mode at moment. .so trying to focus on other things.
I've always had long nails and manicured them regular but find my nails ate getting thin and have to keep them shorter now ..feet ok and hands ok too ....
Hope all the lovely cape ladies reading aRe coping as well as I am ....
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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello George, I’m not on this treatment but often read the thread. Is this book by one of the women who does the ‘You, Me and the Big C’ podcast? I only know the name of Rachel, who used to present the news on bbc5 live and sadly died recently, but I remember one of the others has bowel cancer. Thank you for the recommendation, will definitely order a copy. Enjoy your weekend, Kate x

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hi BJR324

I have had 2 liver biopsies done, around 3 years apart. They are usually just a day case and done under local anaesthetic with sedation if you need it. You need to fast beforehand and afterwards. The procedure is usually done using ultrasound guidance so is done by one of the radiologists or whatever their actual title is. It is u comfortable rahrt than painful and is a bit of a weird feeling. Afterwards you have to lie flat for at least an hour, possibly 2 (I can’t rmember) to make sure there is no internal bleeding. You can then gradually sit up and I think I went home about 4 hours, maybe more, after the procedure was done. You should have some one to drive you there and be with you once discharged.  There is some more,aides who’ve had this done, some more recently that me, on the  treatments and medical issues part of the secondaries part of the forum under ‘Ablation or liver resection’.

Good luck with Cape, sorry to hear docetaxel didn’t work well for you.

Nicky x

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Hello again everyone- some good reading on here for me today.  Have not visited for a Week or so.

I am on my last day of my third cycle on Cape...well I take the last tablets this evening and then have my week off.

Today I am feeling tired and a bit achey but on the whole my SEs haven’t been too bad.  The tips of my fingers seem to be getting a bit dry and flaky but my feet seem to be okay.  I sometimes feel Nauseous often a biscuit helps, but if not I take an anti sickness pill but not many in a week.  My mouth is a little sore but not massive ulcers like I had on the E & E, I have a teaspoon of Manuka honey each day and I think that helps. Obviously I am hoping for a lengthy period of time on Cape especially if my SEs remain tolerable 

 

I have read so many posts today and I am sorry I can’t remember all of your names,  But thank you all for your input it really does help to not feel alone, especially on the ‘down’ days

 

Your posts and advice are very helpful CAROLYN and I will certainly look up the book that you recommend GEORGE.

 

 

Hope everyone is as well as they can be and all of the ‘new’ ladies get on with this treatment.

 

xx

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Re: Xeloda / Capecitabine - Your Top Tips, please?

Me again, sorry. Just wanted to recommend a book I have read by Deborah James called 'F*** You Cancer.' She was diagnosed with stage 4 bowel cancer at 35 and writes about her experience in a non preachy or judgemental way - no mention of drinking 10 kale smoothies a day. Yuk. I think it is the book I would have liked to write had I the talent to do so. Anyway, a lot she said resonated with me, especially as the focus is on living with cancer. Just a suggestion.

Have a good weekend all. I am off up north: Manchester tomorrow, Leeds Saturday and Sunday. I suspect I will be visiting a few German markets. The one in Birmingham started today.

George 🤗