Hi Angelina.., sorry you've had to join us but lots of ladies here going through the same to offer you support,. I had first primary in 2005 and another primary in 2009. Lung mets dx in may. I had very small amount of fluid at base of right lung few weeks ago but like you, not enough to drain.I've been on Capecetabine oral chemo since july and have 2 weeks on 1 week off....indefinitely i suppose. Its quite manageable. I still work 2 days a week and try and carry on as much as possible with normal things.
I have recently been suffering with breathlessness which is the only thing I find hard to cope with. But I've been given very small dose of oramorph to take now when I need it for the breathlessness and that helps.
I have 2 mets in right lung and 2 lymph nodes...hilar and paratracheal. Think they are more central. I've been told the chemo will work on all of these...and hopefulky shrink them.
I did have a lung biopsy in may after dx... done with bronchoscopy.
Hope I've answered your questiins but feel free to ask at anytime. There is a thread on here as well calked "lung mets please join in" if you want to read all the posts on there, Really helpful.
love and hugz....bev xxxx
i have just been diagnosed with lung mets.i get my treatment plan in 2 weeks as my oncologist is on holiday.am only 3 years since my primary.am so worried about what treatment ect. i have some fluid on my lung but not enough to drain.did you? did you have a lung biopsy? have so many questions!
Hi Cap ladies..have previously used the 'skin mets' thread but think you may al be able to help me. Was eventually diagnosed with local recurrence skin mets in July after being told for 5 mths that it was sebaceous cysts. Have just had my third cycle of taxotere/capecitebine but am getting conflicting information. Was told by my breast surgeon that this was inoperable because of where it is (sternum area and around reconstructed breasts) and was therefore incurable but controllable. My oncologist said i would have 6 cycles of tax/cap then i could have anoter 4 cycles of cap. I then asked my breast surgeon what happened after that and she sort of hinted that th cap could carry on indefinitely. However when i asked the same qestion of my chemo nurse she was mystified...when i asked her what the next stage would be she said' nothing because the mets would be gone'?? when i told her that i had een told it was incurable but controllable she said it was imposible to stay on chemo meds indefinitely. I have read many threads on here where ladies have been on cap for years..who do i believe. Thanks
Sorry, Firefox is driving me nuts. It just crashed again. I think it was the latest update. Moneck, thanks for your reply. Good luck to all Cap.ladies starting their next cycle. Love, Barton.x
Last year before I got my treatment plan but knowing it would be chemo I phoned my GP's Surgery & enquired about flu jab. He rang me back & said to make an appt to see him & not the 'jab clinic', so I was personally done. With his usual humour - ready, sure, too late it's in!!
You have reminded me to get it in order this year before I restart Cape, probably in October, I have had an extended break since mid April with tumour markers levelled off at 600 (were 1,800 last October). Had a great summer out & about seeing friends & knitting, hands & feet have recovered & energy level good.
Ahhhh! Firefox has just crashed for the 2nd time! Thanks everyone for your input re.the flu jab. According to Belinda's advice re.timing, I will probably have to make a separate appointment for the jab.
everyone, regarding side effects, etc.
Hello, dear Cap.ladies! Hope everyone is feeling OK today. I have just started my third rest week, so hoping the diarrhoea doesn't get too bad! I have to say that I have found the third cycle a bit harder than the others. More tired, headaches, a rash on my right shin and the skin on the pad of my right thumb has split despite the hand cream!
I had a CT scan on Tuesday and will get the results of that next Thursday when I see the Onc.before getting the go-ahead for the 4th cycle - as long as the CT scan shows good things (reduction would be good!). The CT scan was a doddle, it's the waiting for the results that is so nerve wracking.
Bev, I do hope you are feeling better today. Kaye is right, there are a lot of colds about at the moment.
I have had a letter from my doctors surgery today inviting me to go for a flu jab in October. I usually have one every year, but should I this year? Does anyone know if I should or shouldn't? If I remember I will ask the Onc.next week.
Anyway, best wishes to everyone. Barton.x
Hello Hilsy, regarding the amount of food to eat before taking the Cap.pills, my chemo nurse told me that it didn' t have to be much. She suggested a banana or a yoghurt as being enough. I actually hate bananas, so I have a few - 5 or 6 - small sesame and poppy seed biscuits that I get from Sainsburys. For occasional variety I have a packet (2) of the yoghurt covered GoAhead biscuits (they come in a box of 5 packs of 2 biscuits) and that is plenty. Hope this helps.
apart from some occasional bouts of diarrhoea in my first couple of cycles, I am noticing some other side effects whilst on my third cycle (just started 2nd week of third cycle) - I am now noticing a rash on my right shin, drier skin generally, and quite sore (but not splitting) heels. My mouth feels odd sometimes, too, but not too bad.
Regards and best wishes to all Cap.ladies. Barton. ps. Sorry for strange paragraph break, but my tablet is having a hissy-fit.
Lenora, There is more chemos for metastatic breast cancer than you mentioned. I only ever did lupron injections to shut down my ovaries. This did not slow down my cancer. My oncologist then said no hormonal would work for me. He said that I wasn't that estrogen positive. I went for a 2nd opinion and that guy said hd felt that my oncologist went lightly with my first treatment and should have given me something to shut down my adrenal glands too. That any time I wanted a break frkm chemo to come see him that he thought they could work. I haven't gone because when I was thinking of going my chemo failed and my lung collapsed so I thought I needed to different chemo. I was just ready to maybe try it and tere is a new area of concern in my lung so need to scan end of Oct. to see what's going on. I was just reading that you need to result of 4/8 for hormonal to work. I'm going to be doing some major questioning at my next appointment !! I do think that the women who have been on hormonals have been on more than one. I think it is much like chemo,you just keep trying to see what works. Wishing the best to you and your mom. Funnyface
Hi Bertie.......My tips for sore feet!!
stay off them as much as possible!...I find mine can be bad at any time of cycle if i am walking on them more than usual...eg walking in London last weekend
Try varying the shoes you wear...and all need to have gel/padded liners...each of my shoes rubs in a slightly different area so wearing different shoes helps a bit (Im not aware of the rubbing except when my feet are sore!)
I use MBT type shoes when the skin on the pads of my feet/heels are painful.....it takes the pressure off these areas and takes the weight through your midfoot which helps
I use flexitol at night and wear socks.
Ultimately you are very early on in your journey with cape...maybe your onc will think about reducing the dose..I didnt get symptoms until much later...and I try to have occassional breaks from treatment to let hands and feet recover.xx
Hoping that it is helping you Katherine as I know what a difficult time you have been having recently. Fingers crossed that Cape kicks butt x