Thank you all for your congratulations re.my scan results. I was so nervous beforehand, and had to wait an extra 2 hours after my appointment time (my Onc.is renowned for over-runs, but I try to be patient because he has to give bad news to people - I like that he spends the extra time), but was so relieved at the good news. Long may it continue, and I wish everyone such good results.
Helen - I like your thinking - that bertie1 (sorry - or is it Bevlaar) and I make a good pair with matching rashes but on opposite legs. Does that mean we can take turns having both good legs?
I'll be visiting £land at the weekend to look for a nice hand/.foot cream as per recommendations, and also Amazon and Ebay for the gel socks/cotton socks! Luckily, I haven't suffered badly with sore hands and feet yet (just a crack in the pad of my right thumb, which has now healed (also thanks to Savlon! - I don't work for them, honest!)).
Have a good day, everyone, and enjoy your booked holidays those who are going away soon.
Helen, thank you so much for that information. Will have a look ASAP!
Good news this afternoon regarding my CT scan results - there has been a significant reduction in all areas! I cannot tell you how relieved I was. This was after just 3 cycles of Cap. Wishing such good luck to everyone.Barton.x
AND FINANCIAL ISSUES...........
hope this doesnt upset anyone...but something to think about for those who are 50 or over.....
Reminded by feature on Rogue Traders this morning....see how I spend my time!!!
Worth thinking about over50s life cover......although for most people poor value...if you have a limited life expectancy might be worth paying into to....ASDA policies(and probably others)cover after a year.....and if you die in the first year your family get all the premiums back.....When i took this out about 18months ago the payouts were better than they are now.....but my thoughts...if i die within next 20 years or so the family get more than ive paid in.....If i dont well ive won anyway even if carrying a small financial loss!!!
instead of using cotton gloves I tend to use cotton "footies".........I have loads around so cheap! and keeping figures together and hand curled tends to keep them better moisturized!
Bevlaar - yes, I have had a rash. Well, 2 kinds of itching areas actually. One was a raised purplish area around my right ankle (and only my right), which was helped tremendously by liberal applications of Savlon (my sisters idea, as at the time we thought I had been bitten by something), and which eventually went completely. This was cycle 2. On Cycle 3, the same area came up again, but not quite so badly, but I also had a bright red itchy area on my right shin (heaven knows what Cap.has against my right side!), which gradually spread downwards a bit. This was also helped by Savlon, and has now gone - dying down I think towards the middle of the third cycle. Am currently rash free!
On a side note, can you lovely ladies let me know where you get the socks (gel socks?), please? I can't bear hot feet and am constantly putting them out the sides of the duvet, but I fear my feet may crack, etc, and would like to be prepared.
Hope everyone is ok, and good luck with current cycles, etc.
A couple of things to add to all this useful advice.
I use a thicker, more greasy cream at night which the hospital agreed was useful and and which my GP prescribes...cos I get through quite a bit!.....flexitol heel balm....I use it on both hands and feet.
When my feet are painful and Im trying to walk on them I alternate the shoes Im wearing...in particular when the heels or soles are painful....I use MBT type shoes because the weight passes through the midsole which spares the other parts of my feet.
Bev I get very itchy and spotty areas betwen the red skin and the ordinary skin on my feet and at times Ive scratched them raw!...unfortunately the socks/warm feet at night dont help....I asked my onc if I could use a steroid cream on it......and he said yes ...sparingly....so i buy 1% hydrocortisone to use which helps.
I found the vaseline and a cotton sock before bedtime works wonders for me. I've also developed a raised purply red itchy rash all around the ankle and achilles heel area. Has anyone else had this problem?
Love bev xxx
I was given these tips by a friend who was a chemo nurse, be kind to yourself!!
Hands & fingers - ALWAYS use an oven glove, mitts or a cloth when handling hot dishes & food. Plastic dishes from microwave can catch you out, also jacket potatoes, toast etc. Use scissors to open 'pull apart' packets and kitchen roll or cloth when opening plastic containers e.g. coleslaw & some desserts.
Protect hands when removing items from the freezer or playing snowballs!!
Try not to shake hands with people, my friends touch my wrist or back of hand, with strangers I just say "Sorry, sore hands" and leave it at that.
Feet - place a pillow under legs but above ankles, easier if you sleep stretched out, this means your heels & sides of feet are off the mattress and won't get rubbed. This can also be done on the sofa or reclining chair.
Mouth - Don't drink really hot drinks allow to cool to a comfortable temperature.
Hope this helps,