Hello, Helen, Katherine, Kaye and all the Cap gang! I'm OK at the moment. Had my cycle 6 blood test yesterday and flu jab this evening after work. Hoping to get cycle 6 tabs tomorrow - not that I want them, but if they do me good, I would rather have them now and get it over with - was originally told I would have 6 cycles, but I don't know if that still stands. Don't know if I will have a CT scan after the last cycle. Hope everyone else is OK. Barton.x
Helen, sorry, just read your post of 8.31 this morning - scan at end of Nov.and results early Dec. Getting the results is the nerve wracking bit, isn't it? Good luck for that. Barton.x
Hello, Helen, thanks. Yes, I will certainly try to rest. Lots of very early nights I think! And yes, it was a wonderful surprise to see the lovely flowers and very good of them at work. Good luck to you on your upcoming scan (? Hope that is right). Barton.x
Bev, you have captured my excitement completely at the gradual reduction of tablets in the box! You have been reading my mind! If my blood tests are OK tomorrow, I get to start my 6th cycle on Thursday evening. I have to say I'm not looking forward to it! I suppose, if it's extending my life it's worth it, but it's hard thinking that sometimes when I'm going through the miserable bit. Good luck to you. Barton.x
Bev, glad you are feeling a bit reassured now. A bit of reassurance goes a long way, doesn't it? Hope the Cap gang isn't feeling too bad this evening. Don't know about you all, but I'm off to bed now as my body thinks it's 9.15 and has had enough for the day! Best wishes to everyone. Barton.x
Hello, Helen, I, too, am getting my flu jab nextvweek. Tuesday is vpchemo blood test, Wednesday is flu jab and Thursday is seeing the Onc.re.next cycle (number 6). So I have a busy week next week (as well as working 2 and a half days). I'm going to be exhausted by next Friday. I did have a lovely surprise last week, though. After my melt-down at work last Tuesday and being sent home, I arrived home from seeing my sister on Thursday and found a delivery of a wonderful bouquet from work! It was a wondeful surprise! Wishing everyone few and mild se's, Barton.x
Hello, Ruth. Thanks so much for useful input. I don't have too much trouble with my hands, but both my thumbs have split. I find lots of Savlon and plasters on overnight work quite well for that. I haven't had trouble with my feet, apart from the 3rd cycle (I think it was). I felt like I was walking on burning coals mixed with broken glass and razor blades! 2 days of Vaseline and little white socks helped with that, luckily. I'm not a vegetarian (in fact I eat very few veggies), but I have noticed how awful coffee is for much of the cycle and much of the week off,- and I love coffee! The smell doesn't make me feel sick, though. As for hair, I haven't lost mine, but I have noticed it has thinned considerably, which has upset me rather. Anway, wishing you all the best. Your 2 and a half years on Cap.is an inspiration. Barton.x
Katherine, no, I'm afraid I don't have trouble eating, but I do find I have to eat smaller portions when I'm on the Cap (I have to say, that's not a bad thing considering what I weigh!), but it gradually wears off after I finish the cycle. Barton.x
Hello, Cap gang, yes, I agree with tiredness! It's absolutely amazing! I can star out walking somewhere and within 2 minutes of starting I'm absolutely exhausted. My legs just don't seem to work at all. I say that I have 2 speeds at the moment - slow and dead slow, and I'm not exagerating. I get so breathless, too. I am sure it is the Cap, Helen, as, as far as I'm aware, I don't have lung mets. Just finished my 5th cycle last Thursday, and it is definitely getting worse as I go along. Trouble is, I get so upset over it quite often (very embarrassing when you are in Sainsbury's!). Good luck to the Cap gang. Barton.x
I use E45 lotion which comes in a pump dispenser. My skin is normaly quite dry but I was having to shake all the skin out of my trousers when I took them off and brush off the bed in the morning yuk!! I have used E45 for quite a while but being lazy only put it on the bits that show but now put it every where. I have sensitive skin but can even use it on my face and bald head where alot of ordinary face cream would make my skin erupt. I'm sure it has helped with the wrinkles to so cann't be bad!!
Bertie...just to say flexitol and diprobase are available on prescription.........flexitol contains high levels of urea which is thought to be helpful..but thick and greasy so can only really use it at night...forwhat its worth I use flexitol at night with vaseline on the top and then cotton socks both on hands and feet!xx
Hello, Jo. I've been on Cap for 5 cycles now - this is the first day of my week off of the 5th cycle, then it starts all over again next Thursday (30th). Blood test 2 days before, of course, and I've booked my flu jab for the 29th. If you are asking about all my treatments, though, it all started in 2007 with micro-calcifications and a lumpectomy and then radiotherapy. Move forward to 2011, and they found invasive lobular cancer in my left breast. Had mx and lymph node clearance, in which 19 out of 27 nodes showed signs of cancer. Had FEC-T chemo ( which it took about 18 months to get over properly) and Anastrozole. In July this year I started having period pains and bleeding even though I am 57, through the menopause and on Anastrozole. My GP, bless her, was quick off the mark and sent me for ultrasound and hysteroscopy, during which they biopsied what they told me was polyps. The day before I was due to go in for their removal, I was called to urgently go to the hospital and told it was secondary breast cancer. Was taken off Anastrozole, which had obviously stopped working, and started on Cap. Luckily, I think because I started bleeding, it has been found quite early and is only also in about 4 lymph nodes - 2 under left arm and 2 somewhere in my abdomen. After the CT scan after my third cycle I was told that I had significant reduction in all areas. Haven't had another scan since, though. So sorry about long post - I hope I haven't bored you all rigid.
Good luck and few se's to all the Cap gang. Barton.x
all you lovely ladies have been through it haven't you?
moneck- hopefully cape will do the trick for you. you have had a lot going on !
helen - waving back to you! howay the lads!
barton - how long have you been on treatment etc?
im so pleased to have you guys to chat too. its such a lonely road at times!
Hello Jo, my met is also an unusual one it is triple negative & lobular in the abdomen just below right kidney. The fibrous tissue growing round it causes slight back-up in the kidney, so I have to get up to wee every 2 hours or less during the night as lying down eases the pressure.
Primary TN lobular tumour in 2000, Mx but only partial node clearance due to pre-existing disability neck/shoulder nerves which causes weakness in right arm. Followed by Fec & radiotherapy.
All well until May last year when we thought I had a virus then GP tried to track down what was happening - weekly blood tests for 8 weeks various other tests/scans & CT scan found it + 2 blocked nodes deeply under left arm. Luckily they got the biopsy from these.
I began on Cap this time last year but had an extended break through the summer with tumour markers stable though still very high!! I am now back on it.