Hello Ladies I am back from hospital but will not be back on Cape. The alien in my abdomen entered and blocked my bowel. Admited on 17th Nov, surgery on 21st - they had difficulty getting me to clot so had the lots of packed cells and continuous pressure of surgeon for 45mins before I could leave recovery. Left ward for op at 09.00 back at 23.00. The tumour has complicated my recovery as ascites is leaking from the laparotomy site, at times I was losing a litre a day so have had lots of drips. Cannula no 10 removed last night, right arm very bruised. So now as well as stoma bag I have 2 drainage bags which will be attended by visiting nurses. Getting used to new diet which includes marshmallows and jelly babies!!
It will take me sometime to catch up with all of you as I doze a lot.
Hi Jo, i had a patch of about5 weeks when i felt really unwell nausea, etc,(only just coming out of it) my situ is similar to yours, eg cap has shrunk my liv mets, and am due mri in january at the marsden. Have also,lymphoedema, which often gets cellulitis lately so wasn't sure about cause of feeling unwell. However, i have discovered s/e of cap can come and go...even after a good run of less s/e. Also they dont have any relevance as to how well it is working. Try not to worry. Oh and apparently severalfriends have had a virus which is circulating ...we need to remember normal stuff happens too!
Hope this helps
Thanks Kaye, yes, I definitely needed that sleep - I had another 2 hours this afternoon! That's fascinating about your son. He must be a very good engineer to be offered a position like that. And 18 months away - I can see why you are so excited about seeing him! Does he go back again after Christmas, or is this the end of his "tour of duty"? Hope eveyone is doing OK. Best wishes, Barton.x
Oh, thanks, Helen! That sounds wonderful - non-alcoholic mulled wine -yum! I'll bring some party food! I don't have any pets, but like the sound of Daniel Craig in tinsel. You aren't sharing Mr GC, though? I have to say, I don't blame you for that. If he were mine, I would be keeping him home, too! Love and hugs to all. Barton.x
Hello Cap gang - Kaye, sorry to hear you have a nasty cold and hope you are feeling a bit better today. Hele, take care of those Festive Feet - I hope they are feeling better today, too.
I saw Onc this afternoon, and told him about severe breathlessness and tiredness (burst into tears on Monday at dentist, and then in the Tesco Metro in town - so embarrassing!, then at work yesterday afternoon. They sent me home early and told me not to come in for my half day tomorrow-will have a duvet day tomorrow). He said as my last CT scan results were good, that he would give me 6weeks off the chemo! I had been going to ask for a lower dose, but a chemo Hol will be better. I have been given a new appointment for 22nd Jan next year. So I may be able to taste Christmas dinner after all! That will be one of the best Christmas presents ever! All the best to all the Cap gang. Barton.x. PS: I don't like alcohol I'm afraid, but I should be able to taste a nice apple juice by then - could I join the party on the Bone mets thread, please?
Sorry, Spurs - good luck for the CT scan results as well. Can only blame chemo brain for forgetting! Best wishes, Barton.x
Hello, Spurs, good luck for the results of your bone scan. We all sympathise with you regarding the waiting for results- it's a most tortuos time, isn't it? Good luck with the last week of tablets and I hope you get a relief from the breathlessness and tiredness - we can all sympathise with that as well! Barton.x
Hi Helen, I had no evidence of disease so it was kind of belt and braces at that time, these scans determine the next steps. So will find out more next week.
Had a ct scan yesterday and bone scan today and seeing the oncologist next Thurs for results....so the waiting begins. Trying to keep busy and not worry but as you all know easier said than done. On my last cycle of the 6 cycles so one more week of tablets to go - i can't wait for a break, i am also feeling breathless and very tired. It has really helped me finding this thread so thank you all.
RTThanks for the reassurance, Helen. I needed that. Yes, I thought it had gone very quiet on here recently. Come on Cap gang - get posting!
Helen, so sorry about your feet - I expect you feel like you are walking on burning coals mixed with broken glass and razor blades, don't you? I know that feeling - absolute murder to move around! Hope they recover quickly.
Best wishes to all the Cap gang. Barton.x
Hello, Helen. No, I don't take Denosumab as I don't have bone mets. My mets are in my womb, and a couple of lymph nodes under my left arm. I'm assuming that the breathlessness is caused by the Cap. If I had got lung mets, I imagine my Onc would have told me - should I ask, do you think, just to be sure? I will be telling him about the breathlessness though, anyway, on Thursday. Best wishes to all the Cap gang. Barton.x
Hello, Helen, thanks for that but today (yes, today, Monday 8th Dec!), had a letter from Registrar - dated 27th Nov - to say that the Radiographers have confirmed that there is no progression and that he will see me in a couple of weeks - he's actually seeing me this Thursday! Anyway, it is wonderful to have the official confirmation that all is well, so I shouldn't really complain. I have decided I'm going to ask for a lower dose this time, as I'm having dreadful breathlessness when walking even a short distance. The Registrar offered me a lower dose last cycle but I declined as I was worried it wouldn't work so well, but having read a bit on-line since, have decided to give it a go if they will let me. Jojo, sorry I can't do a new paragraph on the tablet (I lose the entire post if I try). Anyway, welcome to the Cap gang Jojo. Re your question about your eyebrows -funnily enough, I have found that my hair has thinned quite a lot (possibly combination of other medications - I know my hair thinned a bit on my blood pressure tablets) but my eyebrows seem to have gone wild! Hope that reassures you a bit! Best wishes to all Cappers. Barton.x. Ps: Helen and Bev, hope you both enjoyed your celebratory tipples the other day!
Thanks again, Helen. You are full of wise advice! I'll try to remember that (advice re cycle differences). Regarding results, I would ring Oncs secretary, but I know how busy they are and don't want to bother her. I'm seeing him in less than a week now, so am trying to be patient. Best wishes, Barton.x
I was told this by pharmacy when i started on the tabs and was given a little plastic pot to tip them into and take from there...usually I just break the tablet foil seal, bend it back and take tablet into mouth directly....actually I dont think there is a lot of evidence that capecitabine causes a lot of probs...although some chemo tabs do cause probs with your hands......you pays your money and..........!!xx