Hello Cw, I can't understand why your Onc says you can't stay on Cap indefinitely - my Onc has said I can and I believe one of our other dear ladies on here was on it for 9 years (someone please correct me if I'm wrong!). Do you have other health concerns (not asking for details - just wondering) that may be worrying your Onc? I can completely understand why you are scared (I almost went into panic mode when the first suggestion he made was that I stay off Cap with just occasional scans as backup until things changed). Hoping he changes his mind for you! Perhaps he is expecting you to be NED at the end of the 10 cycles? Hoping svan results go well for you. Hugs, Barton.x
Helen, so sorry tio hear you are feeling unwell again. I'm sur its a bug or virus but like the others have said, please get yourself checked. I was feeling really rough a few weeks ago..persistent cough, breathlessness, aches and pains. I went to my GP who prescribed antibiotocs but when the chemo dept found out they went mad that i hadnt rang them sraight away.
Barton, so pleased to hear you were given the choice to stay on cap. My Onc is adamant i have to drop them after 10 cycles (on 9th at moment) and i'm relly scared. havent had any interim scans but he says they are working when i have my appointment with him every 3 weeks. Hopefully will be reviewd after my scans at end of treatment.
Helen - so sorry that you are feeling poorly again. I do hope you are feeling a little better now but if not I echo what the other ladies have said that if I were feeling as unwell I would call my chemo unit tonight - so they can check you over. I have called in the past and the hospital has always been very helpful and said I did the right thing in calling.xx
I started Cape with Avastin on Thursday and very grateful to find all the excellent tips on this thread! I was dreading going back to chemo (I've been on a trial drug which failed) but no side effects so far.
Thrilled to see your excellent results Kaye! This is my third chemo, who knows, this one might actually do something for me - third time lucky?!
Thanks, Kaye. Yes, thanks, I'm doing well at the moment, although, I have to admit, dreading the return to the pills next Thursday - only 1 more week off now! Still, I'm hoping the tiredness & breathlessness won't be nearly so bad on a lower dose as long as my Onc agrees. Hugs to you and all the Cap gang. Barton.x
Hello, Kaye. Sorry, only just seen your last post. What excellent news! I bet you are over the moon! Such a brilliant result after only 5 cycles. Long may it continue for you (and with few/manageable side effects)! Congratulations. Love and hugs, Barton.x
Morning everyone, it looks like I have answered an old post. Must be my chemo brain!
Anyway I hope it helps someone. Hope everyone who is getting results this week have good news and good luck Belinda on starting your chemo.
Love Sheila. Xx
I just wanted to tell you that I was diagnosed with lung mets 3 years ago and they are still giving me no symptoms. Like you, I was very worried but I don't think about them now. I have since developed bone mets and liver mets. Liver over twelve months ago and thank goodness these seem to be under control. I am trying to just get on with life although it isn't easy. There are loads of treatments available.some may work some may not but there is always something else to try.
Good luck with your treatment and keep on the forum. You will get lots of support.
Take care, love Sheila. Xx
Ooh, gold bars gratefully accepted, Belinda! Would rather spend on some nice jewellery, though (no real use for a private jet unfortunately!). Hugs again, and I'll hide you if they come looking for you. Barton.x. Sorry, just reread your post - you mean you are sending the jet to Helen, to avoid airport security I presume! I eould still hide you, Belinda. Barton.x