I have been reading through the beginning of this thread as I have joined the Cape gang (second cylcle starts tomorrow).
Sorry you're having problems with burning feet. I think I read, either on this thread or somewhere else, about buying gel insoles and putting them in the freezer to cool (not too long) and then wearing them inside thin cotton socks.
Don't know if these would be any good. Hope you get some relief soon.
Pam, so pleased to hear your news.!!
Jo, dont worry about crying..my counselor is used to me bawling every time.i once said to her.." how do you cope with everyones woes and crying all the time" she replied..." at least at the end of the day i can walk away from it". How right she is...i just wish we all could.
Hello Cap gang! Well, I'm back from the chemo unit with my lastest lot of pills (Cycle 8), after my 9 week break. I have a lower dose this time (3600mg daily instead of 4000mg), so hoping the se's will be slightly less. Hugs to all the Cap gang, and I'm thinking of all who have had bad news recently. Barton.x
Great news Pam, it gives me inspiration when I hear stories like yours especially at the moment because I am going on new chemo Vinorelbine nexr week following progression. If this does not work xeloda is likely tk be next to try.xx
Helo, Pam - what wonderful news - so reassuring! That must be a huge weight off your mind. My fingers are firmly crossed for you, too. Long may it continue. Hugs, Barton.x
Hi I thought i would post my good news to share with those ladies suffering with S/es at the moment and to say with a bit of luck it is worth it!! so repeat spinal MRI and CT scan last week.(my first CT scan for 3 years). the CT scan shows all clear....the MRI no progression in mets in multiple vertebra with collapsed T4. Ive been very fortunate to have 3 years of no progression on capecitabine and 4 years since secondary diagnosis. My fingers are now very tightly crossed that this may continue!!!
Hi sjamitch, please dont beat yourself up for feeling as you do. I too am a 'cup half empty' person and i find it really difficult. We all feel like crumbling, especially at 'results' time but only we know how it really feels. was so sorry to hear your news but i'm sure the next thing will be the one that works for you. Lots of hugs.x
Hello again, Jo, I can understand it being a hard day for you! Please don't feel you have to apologise for being upset - I'm sure all of us here can say that we have, at one time or another, had a "rant"! I have to admit that I too am a pessimist! (sorry for all ths exclamation marks). It was a good thing that your Onc said - please try to take it in. Hugs. Barton.x. Ps: Helen - glad to hear you are feeling a little better, although you are a naughty girl for not ringing the hospital - there is such a thing as being too "stiff upper lip" about things! However I won't make you sit on the naughty step (that would be too mean for the state you have been in)! Hugs to both, and all the rest of the Cap gang.
thanks for your reply. Its been a tough day. start taxol next week. just gotta keep going! i hope your scan is good. its interesting that my onc said "its not anywhere as bad as what you think it is' he was very positive. unfortunately im a cup half empty kinda girl and find it difficult to see anything positive at all!
Sorry about the rant!
Best wishes to all
Hello, Jo, so sorry to hear of your results! I can only imagine how you feel at the moment, but I wish you all the best. I hope the Taxol works for you, as I know it has worked for lots of ladies on this site. Please read the relevant threads, and all the positive posts - there are lots. By the time I start my next lot of tablets on Thursday, I will have had an 8 week break. They have booked a CT Scan for me on 11th Feb, and I am already nervous about what it will show - hoping the little uggers haven't been having a party while I have been off the Cap! Love and hugs, Barton.x
Hello Cw, I can't understand why your Onc says you can't stay on Cap indefinitely - my Onc has said I can and I believe one of our other dear ladies on here was on it for 9 years (someone please correct me if I'm wrong!). Do you have other health concerns (not asking for details - just wondering) that may be worrying your Onc? I can completely understand why you are scared (I almost went into panic mode when the first suggestion he made was that I stay off Cap with just occasional scans as backup until things changed). Hoping he changes his mind for you! Perhaps he is expecting you to be NED at the end of the 10 cycles? Hoping svan results go well for you. Hugs, Barton.x
Helen, so sorry tio hear you are feeling unwell again. I'm sur its a bug or virus but like the others have said, please get yourself checked. I was feeling really rough a few weeks ago..persistent cough, breathlessness, aches and pains. I went to my GP who prescribed antibiotocs but when the chemo dept found out they went mad that i hadnt rang them sraight away.
Barton, so pleased to hear you were given the choice to stay on cap. My Onc is adamant i have to drop them after 10 cycles (on 9th at moment) and i'm relly scared. havent had any interim scans but he says they are working when i have my appointment with him every 3 weeks. Hopefully will be reviewd after my scans at end of treatment.
Helen - so sorry that you are feeling poorly again. I do hope you are feeling a little better now but if not I echo what the other ladies have said that if I were feeling as unwell I would call my chemo unit tonight - so they can check you over. I have called in the past and the hospital has always been very helpful and said I did the right thing in calling.xx