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?bone cancer. Scared

14 REPLIES 14
Member

Re: ?bone cancer. Scared

Hi Buddyfan,

 

When I was in that situation, first they did a nuclear bone scan, which shows up any areas of bone which have absorbed a temporary tracker differently to that expected of normal healthy bone. It shows old fractures, natural ageing, plus anything else up with the bones. My understanding is that it is extremely difficult to know for sure what the cause is from this type of scan. If they think it may be secondary bone Met's they usually do another scan (I can't remember which type, it was either CT or MRI). Thankfully having been told it was highly suspicious of bone Met's after the nuclear bone scan, the results of the second scan showed the bone damage was from previous old fractures, not Met's. (They refer to this as a false positive, which I've heard is quite common). 

I hope that helps and wish you all the best through your current concerns.

 

Seabreeze X

Member

Re: ?bone cancer. Scared

Loola and others that have had potential bone mets, how did they confirm it was a fracture rather than cancer? What scan do they use or is it by biopsy?
Community Champion

Re: ?bone cancer. Scared

 
Member

Re: ?bone cancer. Scared

Me too. I now have diagnose of the breast cancer .It has returned in my bones in 3 places , hip lower back ( sacrum) and rib. They have put me letrozole and soon to have zometa ( to strengthen bones ) ,and the chemo CDK4/6.  I have to go back to Oncologist on 17th of this month and had a PET scan last week,so it is subject to result of that as to what the plan will be. 

I too am scared as no one on the team seemed to have time to talk. It is so important to have things explained. I know exactly how you are feeling. When I am feeling low I have to push myself to smile , then I'm ok. 😊wishing you well.

 

 

 

 

 

Member

Re: ?bone cancer. Scared

Ive. Currently suffering. From. Bone csncer and had 2 lots. Radiotherapy to. My. Lumber and thorasic. As had.lumps.of csncer anyway part my back has been painful and I've been worrying what it is and I've told. Mum. And dad sister and its part. Of. My shoulder blade. Slightly sticking out it's bit niggly pain but not. Much but they couldn't remember (dad and sister they see my scans both doctors.) can't remember if that's where I have some. Csncer there =( so pleased you both got good news xxx

Member

Re: ?bone cancer. Scared

Mermaid,

 

You are welcome. Thanks so much for letting me know - what a relief, so pleased to hear that.

 

Enjoy the floating feeling (if you have it after all that stress)! 

 

X Seabreeze

 

 

Member

Re: ?bone cancer. Scared

I finally got the results today and bones are clear - a huge relief. Thank you for your support, Seabreeze.


@Seabreeze wrote:

Hi Mermaid,

I really hope tomorrow goes ok...feel free to message me.

Seabreeze


 

Member

Re: ?bone cancer. Scared

Hi Mermaid,

I really hope tomorrow goes ok...feel free to message me.

Seabreeze

Highlighted
Member

Re: ?bone cancer. Scared

That's great news Loola. When I was in that situation I was sooooo relieved to hear I'd fractured my ribs (without even knowing I'd done so!) years back. 

Do something nice with all that relief!

 

Mermaid - hoping you get good news, here for you whatever happens. Hoping you are managing to distract your mind while waiting for tests/results.

 

Seabreeze  X

Member

Re: ?bone cancer. Scared

Thought I’d give you all an update. Consultant phoned and said it’s definitely a fracture- hooray. So pleased and relieved. 

Mermaid72 I hope you too have positive news soon. Sending hugs and luck xx

Member

Re: ?bone cancer. Scared

Hi Loola, 

I had a bone scan yesterday - also for back/rib pain - and have a week to wait until the results. The uncertainty is awful. Here’s hoping, for both of us. 

Member

Re: ?bone cancer. Scared

It's Mermaid who posted going through a similar thing.

I hope it is a passing scare.

Sending virtual hugs

Seabreeze

Member

Re: ?bone cancer. Scared

Thanks Seabreeze 

I have had previous bone scans (this year and last year) and this wasn’t identified. 

Thanks for the advice. I will have a look. Keeping all fingers and toes crossed xx

Member

Re: ?bone cancer. Scared

Hi Loola,

 

I was referred for a nuclear bone scan and follow on CT scan a couple of years ago after having gone for my 3 year checkup when I mentioned I had quite severe pain around my back ribs....(.I'd thought it was probably muscular).

 

The nuclear bone scan picked up 2 large patches of  bone on my lower back ribs and another small patch. After the CT scan the medics concluded the large rib areas were due to old fractures.......I had absolutely no idea I had ever fractured my ribs, and can only think I did so 7 or more years before the scare, when I wacked my back on a ridge on a boat and thought it was just muscular. There was no physical bruising or anything at the time and I can only presume that I had aggravated the old injury/muscle when I decided to prove to myself that ' I was back' by designing and laying a sandstone patio!

 

Try not to panic while awaiting results. I know we can never be sure of results and it's good that they are checking by the scans.

 

Another person on the forum is going through a similar thing at the moment - she posted in 2 locations on the forum on Saturday(?) eve, including a post in the ask a nurse section. You might want to have a look there too since the nurse has responded.

 

I hope you don't have too long to wait for the results, it is very stressful. Please feel free to post again if you think I can help in any way or message me.

 

Seabreeze x

Member

?bone cancer. Scared

Hi all

 

just got back from seeing specialist. Had a bone scan, pet scan and ct. they have said not sure if bone pain is cancer or healing fracture. Historically treated for stage 3 triple negative breast cancer. Finished treatment last year. Started to get rib pain suddenly over 3 months ago with no history or injuring/falling. They want a ct to confirm. Worried it’s the cancer back. Anyone been through this?

 

 Thanks