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chemo question

7 REPLIES 7
Jaybro
Member

Re: chemo question

You can’t outdo me in wussness. I have difficulty swallowing fluids lol. Started 3 days before my mastectomy and has never improved, So small tablets are taken with food. Big tablets go back to the pharmacy. And the chemo is never flushed out of the system properly. It’s 1.48am. Can’t sleep either lol. Maybe we are well matched! Night night xx

alreadytaken
Member

Re: chemo question

pm'd you  🙂 

Have to have IV too for dental work , and I have another problem , can not swallow tablets , have to crush them or have liquid or powder mixed with water, so am a bigger wuss than you. x  

Jaybro
Member

Re: chemo question

Yep, dental phobe too. I have to have IV sedation for any treatment - yet I can do chemo. Dentist is the one area where I do feel a wuss. Otherwise I’m quite open and embarrassment-free as regards my phobia. You should see me taking tablets too!! It’s not an easy life is it?

Good luck with your chemo. Be utterly shame-free and get all the extra help you can. And remind yourself that not every chemo causes bad nausea and not everyone is sick (very few, from what I gather here). I’m having oral chemo now - capecitabine (18 tablets a day) - and it’s working well. Clinic tomorrow when I’ll find out if it’s still working. Stay in touch if you like , just PM me.

Jan xx

 

alreadytaken
Member

Re: chemo question

Hi, thank you for your reply and pleased to meet a fellow Emetophobe , you are the first I have spoken to ever. 

I am also a dental phobic ,  I have booked an appointment , but not sure what he will or can do. I have gum disease and keep suffering with abscesses.

I was only diagnosed recently , was keeping away from Covid, keeping away from places like doctors and hospital , have an elderly relative live with us and was shielding her as well as ourselves.  first told I would have surgery but then found out  it had spread and now face chemo like you permanently. I feel a bit more hopeful reading posts like yours ( 2 replied so far) I feel I may be able to cope possibly.

Jaybro
Member

Re: chemo question

Hi Fellow Emetophobe

Although your phobia is awful, I can’t help feeling just a little jolt of happiness to come across someone else who shares my condition. When I got my diagnoses, I really didn't care about anything except would I be sick after a general anaesthetic? Would I be sick with chemotherapy? Hang the cancer, it was the chance I might be sick that I was obsessed with.

Three years later (and being one of the unlucky ones where it spread so I’m now on permanent chemo) I haven’t once been close to feeling sick. I have had anxiety nausea but that’s it.

Each IV chemo starts with a preparation drip which includes an anti-emetic, antihistamine and steroid. You may also be given an anti-emetic tablet to take. Sorted - and the steroid rather lifts you so you have loads of energy for a couple of days before the drug really hits you. The pharmacist will bring you a goody bag of things you may need, including antiseptic mouthwash, senna…and anti-sickness pills. I was prescribed Metochlopramide, which I never used, because my GP had already prescribed Cyclizine, which my therapist had recommended to take whenever I felt nauseous. What a difference it made to my phobia! When I asked which was better because of my terror of vomiting, the pharmacist told me I could continue with cyclizine and take the metoclopramide in between, so long as I left 2 hours. So you see, they do everything they can nowadays to prevent sickness. 

I was completely flattened by chemo and had a rubbish time of it BUT I never felt more than a vague nausea and I wasn’t sick once. I’m now on oral chemo and, again, no nausea.  Just tell them how you feel and they will do everything they can to help you. If you are terrified of the chemotherapy because you don’t trust other people’s experiences (I couldn’t), tell them - my oncologist prescribed two lorazepam to take before chemo and I felt like everything was normal and manageable. After a few treatments I no longer needed it.

Despite all the horror stories of the past, chemo is manageable even by people like me. Times have changed. So I wish you all the best with your treatment. Remember, there is no shame is being fearful, let alone phobic - tell them and ask for help. All the best,

Jan x

 

alreadytaken
Member

Re: chemo question

Thank you for your reply. can you tell me what treatment you had and what anti sickness pills you took ?

Cumbrian Lady
Member

Re: chemo question

@alreadytaken 

 

Hi, I am usually a sickly person - but I can say in all honesty I was not sick once even managed lunch when my treatment was at that time so the anti-sickness pills worked for me.
I got a little bit of heartburn for the first few days, which meds were supplied for but outside that all was good on the sickness front.
Maybe it is down to what treatment you receive not sure, other members will be along to tell you their side of things.
I made sure I was well hydrated before any treatment (well through all of my treatment) which I think helped me my chemo treatment was a lot, lot easier than I ever imagined it would be.

Good luck with it all and huge big hugs.

alreadytaken
Member

chemo question

I am soon to start chemo , I have a lifelong phobia of vomiting , I heard that they can give anti emetic drugs to control this problem. I would like to know how effective these drugs are at stopping vomiting ? I would like to know has anyone been sick or does it completely control it so that you are not ?  and any advice please