I had one drain but the fluid returned very quickly and I couldnt breath so went to A& E and was admitted where had a drain left in to get rid of all the fluid, 24hours, then they did the procedure, not painful , bit uncomfortable, but breathing improved straight away. Still puff quite a bit but just pace myself and do everything at a slower pace. I do take a low dose of steroids to help with any inflamation as well as my chemo tabs capecitabine. I too live alone, with my two beautiful black labs that keep me going as have to walk them twice a day, think having to do that everyday does help , or would probably say 'sod it' , and give up . Luckily I have great support from family and friends, but unless you have actually gone through this nightmare , you cannot understand what we go through.
Hi Jools, thanks for replying. I understand that we all have different issues so I know I cannot get an exact match on my condition. That is the main thing I have learnt about secondary BC. I had the pleural drain put in March and hoped that the fluid would just disappear eventually of its own but though it has reduced aloty, it is still abut 400ml a week. I had 6 treatments of doxecetal and am now on herceptin and a few other things. SInce I started on regular drains, I have had no trouble with breathlessness but the chest clinic (seemingly totally separate from my oncologists) have decide a pleurodesis is now in order. They do not intend to have me in hospital so am interested you were in for two days. I live alone so am a bit concerned. So I have lots of questions. Did you have a drain put in or did you have the pleurodesis done straight away? What was the level of pain and what did they do to alleviate it? I take it that the fluid is no longer in the pleural cavity? yes like you I do think every ache is cancer-related when it could just be a 'natural' thing!
Hi ,I had this procedure,which really helped with my breathing, stayed in hospital 2 days. Now on capecitabine,(chemo tabs). First scan 3 months ago, promising, 2nd scan next week, fingers crossed still all going well. But constantly worried as any ache or pain causes panic thinking things are getting worse !
Sorry to hear you are suffering with pleural effusion. It’s not something I have experience of but I know of a couple of secondary ladies who do have lung mets and I’m sure at least one of them has had this procedure done. I hope she might see your post and offer you first hand experience and information. All I remember is that once she had it done it did help but I don’t have any more details than that.
Early this year I had shortness of breath which an x-ray showed was down to fluid in right pleural cavity which turned out to contain secondary breast cancer. Apart from chemo and other stuff, I need to have the fluid drained regularlty so had a tube inserted in March. It was about 800mls 3 times a week now down to 400 once a week. The chest consultant is talking about a procedure called pluerodesis that sticks the lining of the pleura together to give the fluild nowhere to go. However - it must have to go somewhere! HAs anyone had this procedure and at what level of fluid did you have it? Also what sort of preparation did you have and were you admitted to hospital or treated as out patiient? Thanks in advance for any info. I have asked my breast cncer nurse but her reply is 'we are led by the chest team', and the chest team has just said it is a normal thing to do, but have not said why it is right for me at this point