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Just diagnosed triple negative breast cancer

6 REPLIES 6
Dicoopa
Member

Re: Just diagnosed triple negative breast cancer

I was too in November, I did a lumpectomy and 30 rounds of radiation. Still in pain 7 months later. Hope your well. 

Shi
Community Champion
Community Champion

Re: Just diagnosed triple negative breast cancer

Traceylb ❤️❤️That’s great news you’ve found support, we are here and use the bcc too lots of support, the someone like me is very good. Everyone journey is different, do it your way and always keep your teams advised of everything, they are there to care for you and would rather you ring them about anything than not ❤️❤️💕💕Shi xx

Traceylb
Member

Re: Just diagnosed triple negative breast cancer

Hi shi, thank you so much. I found a great uk group on fb actually that has helped me a lot. I think as you know all you need to hear is positive stories to get you through it x

Shi
Community Champion
Community Champion

Re: Just diagnosed triple negative breast cancer

Hi Traceylb, sorry you’ve found yourself on here 👭👭 please step away from google, tnbc is survivable to name a few, Shannon Doherty, Joan lunden, robin roberts, Patricia prijatel (who has a book surviving triple negative breast cancer) I found this a very good read. For op, her button front pj’s with short sleeved, dressing gown with pockets and a inside tie bit (in case you have a drain and bottle) pair of sliders to wear in hospital, lip balm and hand cream it gets dry in there, they should put a pair of flight socks on you after op too. 👭👭use the threads as much or as little as you want, there are monthly surgery, chemo and rads threads where everyone helps each other, there is also the someone like me option on here too if you need to speak to someone. It’s 🤯🤯🤯at the moment, I was 45 when diagnosed tnbc. Get yourself a notebook where you can write all questions down for your team on the journey and jot the answers down too, there will be a lot of information, but please trust your teams, they are experts and have dealt with this many times before ❤️❤️Hope this helps 💕💕Shi xx

Traceylb
Member

Re: Just diagnosed triple negative breast cancer

Thank you Ann x

ann-m
Member

Re: Just diagnosed triple negative breast cancer

Hi Tracey,

Sorry you find yourself here, but a warm welcome anyway. 

There are quite a few here with a TN diagnosis, who will be along shortly, you’re certainly not alone with this & we’ve all gone through those difficult days of early diagnosis. It is such a shock. 

The good thing is, treatments are getting better all the time & now it’s been diagnosed, it can be sorted. Outcomes are excellent now. 

It really is best to avoid google, as in the early days, we are in shock, are thrown into a whole new world & not really in a place when we can sort the wheat from the chaff.  Also, there’s a lot of out of date info there & most of it is not relevent to you. It’s best to rely in your team, or use reputable sites like this one, Macmilan, Cancer research UK, NHS Choices. 

When you start chemo, do look at the monthly chemo threads, where you’ll be able to share with others going through similar. 

Sending hugs

ann x

Traceylb
Member

Just diagnosed triple negative breast cancer

Hi, this is my first post, I’m devastated & scared. I’m hoping I can get some positive stories & a few questions answered.

I’m 42, I have two children aged 5 & 9.

i have been told my cancer is triple negative, grade 3. At this stage I have been told stage 1 as the ultrasound had not detected anything in my lymph nodes. I am due to have surgery in a few weeks & originally was told a lumpectomy but after the mri I was told I need a mastectomy as the tumour is larger than the original 1.8mm although they did not tell me the exact size as they stated it was hard to clarify. After that I’m having chemo 6 rounds & then radiotherapy. I opted for the surgery first.

my lump is extremely painful I’ve been told it’s due to the biopsy, I also injured my breast in the exact place I found the lump this is how I came across it (fate maybe) I’ve been told it’s the bruising around the lump. The pain is either radiating or sudden sharp pains & I don’t think it’s from the injury or biopsy. Did anyone else get pain? 

I’ve been on google ( I know the worst thing to do) I read this type of cancer can spread through your blood stream rather than lymph nodes? I’m terrified can someone clarify if this is true? 

I am also due to have the test for the brca gene.

My head is all over the place I feel so low & just want to sleep so I can forget everything. I’m scared I won’t see next year& my babies won’t have a mum.

Any positivity would be appreciated x