Just diagnosed

[5thGenerationBC]

Hi mini mad

Can I ask why you said no to chemo?

I'm recently diagnosed and after watching so many family members go through it, I really don't want to.

I visited the room and it made me so anxious I had to leave - it's the toxicity that bothers me and the heart/liver damage.

[Spottycotty]

Ahh suffolkjewel, thankyou xxxxx

[Suffolkjewel]

You are more than welcome..

Keep the positive attitude as I definitely think it helps. Surround yourself with supportive people, my family and friends were brilliant, because this helps as well. Accept all offers of help and enjoy the flowers and chocolates because there will be loads!

There will days when you are feeling low but there is light at the end of the tunnel and you can do this! 

[Spottycotty]

Ahh thanks, that’s good to know.

I feel a bit more positive this morning 😊

[Suffolkjewel]

I was diagnosed with triple negative 1st June 2018. I was advised to have chemo first, the idea being that it would shrink or completely clear the tumour. I had 6 months of chemo and the chemo did exactly what it was supposed to do and by the time I had my lumpectomy all the cancer had gone. I had 2 lymph nodes removed aswell. I also had 15 sessions of radiotherapy and I’m now in remission and back at work full time. 

I decided I wouldn’t google anything, I didn’t want to know. I  followed the advice of the doctors and nurses. They said they knew what it was and how to treat it and you what, they were right! 

Hope this helps

[Spottycotty]

Yes, I did, they couldn’t see it on the mammogram though as breaststroke are dense.

it seems to have taken ages to get to this stage, it’s been 7 weeks, is that normal 😂

---

[mini mad]

All doable.... had lumpectomy and 3 sentinel lymph nodes removed in 2017 followed by 15 radiotherapy sessions.   Offered me chemo but i said no.  

Did you find a lump yourself ?

[Spottycotty]

I’m not far into all this at all, I’m having mri on Saturday, they said to expect lumpectomy and chemo afterwards.

[mini mad]

Dont be sorry...   its bloody frightening...   i was absolutely shocked when they told me.

so whats the plan for you ??  Are you that far along with your diagnosis ??

things have greatly improved with drugs now for tnbc and i believe that its only a few percent less survival rate than other types of breast cancer. Await your reply. x

[Spottycotty]

Everything !!! Ha ha

is it really such a bad diagnosis, are we all doomed?! Ha ha, I’m such a positive person usually but got freaked out a bit last night to be honest.

sorry 

[mini mad]

Hi Spottycotty,

you're not alone...i have/had TNBC... what do you want to no ??

[Spottycotty]

Hi,

I am newly diagnosed with tnbc, I have tried to read up a bit about my diagnosis but trying (🤨) not to google.

The breast care nurses seem very reluctant to go into depth about this so I was just wondering if someone would clearly tell me what to expect, is this a really bad diagnosis? Please just be honest with me, I am expecting  to be treated with chemo etc but unsure what this diagnosis actually means?

feeling frustrated to say the least.

I have rang the clinic and explained my feelings but they haven’t really offered any other information.

Am I expecting too much?

thanks xxx