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Triple Neg @ 40

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Re: Triple Neg @ 40

Anna gabanna 👍👍👍for deciding to donate hair to little princes trust, turn it into a brave the shave too and raise money for bcc or cancer research or anything you want too ❤️❤️If you like ❤️❤️ Some people also have a party too 👍👍it is empowering getting the clippers and shaving it off yourself, most of us went to a grade 2, then after 2nd fec that’s when it went, feels like a prickly sensation on scalp. I had a scalp care kit from beauty despite cancer which was great to look after scalp ❤️ And when treatments finished you’ll need Lush’s new shampoo bar looks like a red dot and also extra dark Jamaican black castor oil to rub on bonce before washing 👍all tips passed down from others that helps hair grow back when treatments done 👍👍💕💕Shi xx

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Re: Triple Neg @ 40

Hi Anna gabanna 😁😁👍👍yet de fuzzed legs, you won’t need to worry about that soon, it’s when hair up your nose goes and you’ve 2 black hole nostrils 😲🤣😂🤣😂😲it’s like what’s that about 😳I gave everyone a talking to when I broke the news, and their heads tilted to one side with a pitying look. I said i’m Still me, I need you behind me no negativity 💪💪💪I’m 🥊🥊🥊🥊with my extra dr, dr chemo 👍👍think of chemo as extra doctor 👍👍when wig shopping get your make up on as usual and go with one where you still see you, you’ll know what I mean when you try some on. Although I was rapunzel before and went with nice short pixie and a bob and a few other and I did have coloured ones and tinsel ones too 🤪🤪well if you can’t be crazy on chemo when can you be 😁 get your wig voucher from unit, see what your Macmillan has as pre loved wigs and also luvyababes do a fantastic range now too 👍also the steroids will make you shop, you’ll be online at all hours in an ordering frenzy 👍🤣just blame the chemo 👍👍 if you get given injections to do after chemo, I used antiseptic wipes grabbed belly fat and stuck it in pushed plunger down and job done 👍go alternative sides of your belly button 👍 now tune for you to have as mantra for now is the this is me song from greatest showman 💪💪💪💕💕Shi xx

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Re: Triple Neg @ 40

@Shi I have decided to donate to the little princess' trustSmiley Happy I don't think I'm going to bother with cold capping. Thank you for the advise. I am feeling really down atm I couldn't cry when I tell my friends and family as they are very upset as it is. I'm so stressed that I feel like my whole body is strained and I ache Smiley Sad I have always taken pride on how I looked and what clothes to put on but after the diagnosis I just couldn't be bothered anymore. After reading your reply regarding taking control first thing I done was have a long bath then scrubbed and shaved my legs which embarassing as it may be I have neglected this week. Someone from my senior year also is undergoing treatment for BC so we talk to each other (never used to but I guess its human nature to support each other) Again thanks I feel better already after a good scrub x

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Community Champion

Re: Triple Neg @ 40

Hi Anna gabanna, I focused on tnbc survivors like Patricia prijatel, Shannon Doherty and robin Roberts ❤️❤️Use the someone like me option on here and also ask the nurses, also use your team and you bc nurse that’s assigned to you and also your Macmillan team. It does feel like being chucked out of a plane with no parachute to start with, but you will find on this journey 👭👭and support from  total strangers, while some ‘friend’ you currently have can do a beam me up Scottie and vanish, don’t worry about them, think we’ve all had that happen. The most important thing is you, you get your battle pants on (ours on oct17 thread were kylie gold hotpants) well kylie beat bc didn’t she 💪💪 so we took our lead from her, we had a tune a day on our chemo thread and 💃🏻💃🏻🕺🕺💃🏻💃🏻Through the 💩 together with plenty of 🤣😂🤣😂🤣along the 😳way and lots of 🤪🤪🤪steroid shopping too 👍please join the chemo thread for aug/sept or when you start, there is also surgery threads too, that’ll 👭👭you through. The amazing people in here keep you 💪💪💪and you are never alone. Look at mai7 blog life after Lola, she’s amazing 😘😘also find strawberry blonds mountain lion 💪💪if you are Derbyshire or Yorkshire you can get 4 free sessions through Macmillan for spirit and soul equine assisted therapy 👍👍and also book onto look good feel better session through your Macmillan. Just take it one day at a time 👭👭it really is like being in a hurricane and being hurled about with no control, but you are in control you just don’t know it yet. If you don’t coldcap, think about giving your hair to little princess trust that makes wigs for kids 👍👍turn things into positives 👍👍hope this helps 💕💕Shi xx

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Re: Triple Neg @ 40

@shi How did you initially cope with the anxiety? My feelings atm are up and down. I thought I was strong but I guess I'm not 😞 

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Re: Triple Neg @ 40

Thank you for replying Anne. Today is probably the most difficult day so far since the diagnosis :(Smiley Sad My anxiety levels are sky high. I have completely changed my diet and  I think this has caused me to have upset stomach which in turn has caused me to be paranoid with every ache and pain that I feel. I sound like a right lunatic, I know. The more people say they are sorry the more I think that this is it. Sorry I know I'm venting

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Re: Triple Neg @ 40

Hi Anna 😘😘good book that helped me was surviving triple negative breast cancer by Patricia prijatel. Join the September 2019 chemo starters thread if you start chemo September 😘😘the someone like me on here could be useful too 😘just take it step at a time 💪💪you sound like a determined lady 💪💪, use the threads 👭👭we are all here to 👭👭💕💕Shi xx

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Re: Triple Neg @ 40

Hi Anna,

A warm welcome to the club we wouldn’t want to be in, but glad you found us. 

There are quite a few others here in a similar position to yourself, so you’re certainly not alone. Getting diagnosed is a huge shock & what you describe is common to all of us here. 

Do look at the ‘going through treatment’ thread where you’ll find the monthly chemo threads & will be able chat & get support from others where you are now, as well as those further down the road. 

You will find that you’ll get views & opinions from others, who although well meaning, do not necessarily appreciate what it’s about, but we ‘get it’ here & between us, have been through everything that bc can throw at us. 

Do come & chat or vent whenever you need to.  

ann x

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Triple Neg @ 40

Hi Everyone,

 

This is my first post here. Back story:  Found a lump on my left breast on my first day of my period last July. Booked a GP appt, who reassured me it appears superficial however referred me to the breast clinic. Had my breast clinic appt and they took biopsies. Tbh, I sort of had an intuition that it is cancer. Saw my breast surgeon Wednesday who confirmed my suspicion that it is breast cancer triple negative with lymph node involvement 1.5 cm lesion. Nuc Med Full body, U/S and CT scans were clear. It was still a shock as the surgeon just blurted out, "You have got the cancer." However, as I sort of knew, my husband and i cried then picked ourselves up and sort of went on autopilot really

The plan is chemo - surgery - radiotherapy. 

I am coming to terms with it and will do what I can to prepare my body for the fight. We have a daughter who is due to start university this year as well as a football and fortnite mad 13 year old boy. They're both expensive to keep so this year better hurry up, LOL. The children are aware of my diagnosis and have been very brave. We will be booking an appt to speak to the headmaster and form tutor next week.

Workwise, I am a scrub nurse so I'm a bit gutted that even if I can manage the side effects of tx, occu health has suggested for me to be on the admin/documentation side. My husband's family have been really supportive although some members of my side of the family who are also in the medical field are urging me to get a second opinion (they don't reside in the UK so they don't understand that MDT's here can sometimes comprise of 15 experts). I also told my closest friends who were all shocked but majourity of them have been amazing, so far, I had 3 wagamamas bought by them, lol. 

Current feelings atm? Very anxious and I panic at every little ache or twitch that I feel, I feel like there is an alien harbouring my body. I use to love afternoon naps when I'm off work and the kids are out and about, Now, I'm literally awake from 0500 AM til late! I feel like I need to make the most of my remaining days prior to chemo as it will be temporary new normal for 6 months.

I do hope to meet new friends here, for keeps!

 

Thanks for reading (yep , I love to talk),

Anna 🙂