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Triple Negative and 4 years on....

16 REPLIES 16
FiFi2020
Member

Re: Triple Negative and 4 years on....

Wishing you luck for tomorrow!x

jomich50
Member

Re: Triple Negative and 4 years on....

I start chemo for TNBC tomorrow first one..

C/Taxol and then EC then MX (multi focal and some auxillary involvement) but glad in a way to get on with it and start the journey rather than the waiting for tests, results, scans etc.

Fifa I am trying cold cap tomorrow will see how I go as it really adds to time in hospital.

x

Angelface45
Member

Re: Triple Negative and 4 years on....

Hi,

I'm so sorry you've been diagnosed with this, but you've come to the right place to help you along the way, there's lot of people with helpful advise and information.

I didn't use the cold cap, but i really wish i had done! At the time i was  thinking i just want to get the chemo over with, and couldn't be bothered with the extra hour, i regret that now. I've since read lots of reviews,  positive and negative, but i think its definitely worth a try.

Good luck with your treatment and keep us updated 🥰 xx

LouJP
Member

Re: Triple Negative and 4 years on....

Hi

I came across this thread tonight and feel I want to contribute.

I had a TNBC 3cm and lymph node 15mm diagnosis on 3 jan this year and here I am on 14 nov after chemo, lumpectomy with full lymph removal and radiotherapy.

Yes chemo was tough - EC bearable but T horrid with a blood clot from picc line along the way but chemo got the tumour, surgery the footprint and radiotherapy just to make sure.

I do have lymphodema so my new clothing is compression glove and sleeve and am proud to show my pixie look grey haircut.

But thx to the NHS, friends and family I got through it despite covid, lockdown and all sorts of emotions.

This forum is amazing and so are BCN.

I hope i will be telling the same tale for many years to come.

xx

FiFi2020
Member

Re: Triple Negative and 4 years on....

Hello - I just wanted to see how you’ve been getting on with your first round of chemo? Hope you’re feeling well and not too shattered. I’m due to start this Wednesday so a few weeks behind you.

I too have two kiddies and just don’t know what I will be able/unable to do these next few months. I guess you just have to take each day and week as it comes.

Anyway, hope you’re doing ok x

FiFi2020
Member

Re: Triple Negative and 4 years on....

These posts are really reassuring to read, thank you ladies.

I’m 39 and have two little ones under 5 and was diagnosed late October with triple negative breast cancer - I’m due to start chemo this Wednesday. It’s so good to hear from people a few years down the line and know that you’re doing well and healthy.

Did anyone use a cold cap and have success? I’m going to give it a try and could do with some tips!
x

whiters14
Member

Re: Triple Negative and 4 years on....

Thank you both for posting this. It’s nice to hear some positivity.

Angelface45
Member

Re: Triple Negative and 4 years on....

Hi everyone,

Thought I'd let you know, I am also just over four years on from a TNBC multifocal diagnosis, and am doing really well. I'm obviously aware about the chance of reoccurrence, which apparently gets less the further on you go with this type of cancer, but it always stays in the back of your mind, you have to learn to live with it. I can remember when i was first diagnosed, i would search for positive posts to help me through and give me hope, i googled, as we do, and was very disheartened by most of the information. There is hope after this diagnosis and there are lots of us doing really well, its just people don't always come back and write about it, they are happily living their lives 🥰.  xxx

 

Take care 

 

Elorac66
Member

Re: Triple Negative and 4 years on....

Hi

Just read Karla’s post and would like to add that I am now 3 years clear after being diagnosed with TNBC - got my latest mammogram results today. 

Stay strong and positive even though at times it is so very hard to do so 

Big hugs to all 🤗

Elorac

 

jomich50
Member

Re: Triple Negative and 4 years on....

Me too feel so scared when read about Triple negative too

 

also have two boys xx

whiters14
Member

Re: Triple Negative and 4 years on....

Thank you for posting this. I am having a real wobble today about my triple negative probably due to the start of my chemo being on Monday and worrying about my boys! I am usually a really positive person. This has helped to lift my spirits x

ttyler
Community Champion

Re: Triple Negative and 4 years on....

Hi KLF007,

Thank you so much for sharing your success story. It has definitely given me some peace of mind and inspiration!

TNBC is such a scary diagnosis. It is nice to know that it can be treated and people can go to live their lives once again. I have just finished my last round of chemo and are moving onto radiotherapy soon. In my mind the cancer is all gone now, but as you say there are days the fear returns. It is good to know they these day’s  of thoughts happen less often than forgetting  you have had cancer. It shows you are able to get on with and live your life once again. You should be very proud. 

 Hope I am able to follow the same mindset. I know I am lucky to be treated and appreciated the medical intervention I have had. I will enjoy my life more and live for every day!

 Have a lovely day

Love, Tara xxx

Susie B
Member

Re: Triple Negative and 4 years on....

Hi KLF007

Thank you for taking the trouble to to share your positive news. I was diagnosed with bc on 7th Dec 2018, two days after my 62nd birthday. The biopsy did not determine whether I was TNBC or HER2 positive so I had to wait until I had my lumpectomy and full ANC clearance in June 2019 for a confirmed result which was TNBC. I had a complete meltdown in January this year, convinced that the cancer would return next year. I had counselling for sevearal weeks during April and May, by phone, which helped enormously and put everything into perspective. Hearing from people like yourself gives me hope for the future. 

I am actually with the February 19 chemo starters group and since September last year we have kept in daily contact via Facebook Messenger so between our large group there is plenty of support. One of the other ladies is also TNBC was diagnosed at the age of 39 so I will pass your message onto her.

Thank you once again for posting. Take care.

Susie B xx

 

Shi
Community Champion
Community Champion

Re: Triple Negative and 4 years on....

❤️Karla ❤️ wonderful news for you and gives tnbcs hope and reassurance that tnbc is treatable and survivable 👍thanks for sharing your fantastic news with everyone on here and everyone who is tnbc who has finished treatment or tnbc’s newly diagnosed looking for some hope and inspiration ❤️😘 💕💕Shi xx

Evie-S
Community Champion

Re: Triple Negative and 4 years on....

Hi Karla - that was such a positive message to read, thank you for taking the time to come back on here. By its very nature people usually post on here if they have questions or worries, and so it’s always really good to read a post like yours.

Hugs and best wishes to you

Evie xx

ZoeK_BCN
Community Manager

Re: Triple Negative and 4 years on....

Hi KLF007,

Thank you for your post and for sharing your experience.

I am sorry you haven't had any response yet. I am hoping that my response will help our members to see your post and share their experience.

Sending you our warmest wishes,

Zoe

KLF007
Member

Triple Negative and 4 years on....

Hi All,

I don’t think I’ve posted on here since 2017 but I’ve just passed my 4 year TNBC cancerversary and wanted to post something today, to give something positive back to anyone who might need it right now....

I was diagnosed in Sept 2016 at 37 years old with a grade 3, 2.5cm TN tumour in my left breast. Negative lymph nodes. I had scans galore, 6 rounds of FEC-T, followed by a WLE and then radiotherapy. I had a pathological complete response to Chemo which was amazing. 

4 years on now....life is good. Sometimes I forget that I had Cancer and sometimes ( not often ) it all comes back. 

Happy to speak to anyone who needs it right now. Covid must really be causing havoc right now.

Hugs,

Karla x