Thank you for remembering. I got let out early for good behaviour! So am now in my own bed, in a great deal of pain doped up to the eyeballs but moving forwards. hope you get your date soon xx
Oh mate I am so pleased for you, this has been a long time coming and YES you are nearly there. This will finally give you some relief from the pain xx
Funny I was the same when I had my hysterectomy on 9 October, it was 4 days before the second anniversary of having my surgery for bc.
Well make sure you take it easy, keep away from anyone who has a cold etc.,
Sending you loads of hugs
How are you all?
Pre-op assessment in the bag 4 1/2 hours being questioned measured xrayed blood tests ECG consent forms etc etc - very thorough. Have decided to give the spinal aneasthetic a go as it means better after op painkillers - that's assuming they can find a suitable place in my degenerated discs to inject. I won't know if Ive half a knee or whole until I wake up. I'm currently resting because I twisted my knee again so that may have some bearing on the damage they find. The other knee is really suffering too.
Any who the best news is - I have a date - 27th November, sooner than I expected so all being well... I have to stay away from anything that might bite, graze or cut me because they won't operate if there is any chance of infection - no shaving! I'm always bumping into things and catching my hands so I'm thinking an Ironman suit? Have started my bag for hospital - so weird to think it's exactly 2 years ago I was doing all this for BC - another new pair of slippers (need to have backs on) new PJs (short ones so I can show off my hairy legs).
Glad things are moving along for you. Saw GP yesterday and he suggested I phone consultant's secretary in case my operation date has got lost in post. I'm a bit twitchy now as it could be just around the corner (or not) and I'm not ready!
How are you getting on Mishy?
Helena - I hear you are 'done' hope it all went well and wish you a speedy recovery.
I have my knee replacement pre-op assessment on 24th but no date for operation yet.
Knee school was a lot to take in especially tha spinal anesthetic I didn't know about! AND that it's really going to hurt! Seriously they go to great lenghths to make sure you are fit and prepared for the op and are very keen to discuss what does and doesn't work for you, personally, in pain management (I can only take parecetamol!!). I've been doing the exercises but it is very painful had to have a day off them yesterday as I couldn't straighten my leg. It's all very different from how it was with the BC. Not allowed to do anything that might cause broken skin before the op as any infection will head straight for the foreign body (ie knee part). Have to go to the dentist too. pre op assessment is going to take 3-4 hours and I will be in hospital 3-4 days. I got to hold a knee replacement joint - very heavy and made from titanium (I know like the song!). Been trying to find bionic woman pjs!
I guess I should mention the lymphoedema in my breast.
Cancer-wise my mamo was clear so that's 2 years ticked.
PS I WAS the youngest at knee school by the way- couldn't get a word in edgeways!
I never thought about that and I have a gateway sign on, doh!!
Oh I love your sense of humour, it will always get you through. My friend was 45 when she had her knee replacement, they told her that she will probably need to have it done again when she is older so to look after it, she is going to have to have the other one done next year. This is as a result of playing netball for many years, see sport is not good for you 🙂 🙂
I know it is a pain, but actually with how I have been the last few days it was may be a god send that they cancelled it as I would have been in a right state had they gone ahead, I feel as if someone has kicked me to pieces in the ribs etc., from all the coughing, imagine that with stitches in your stomach, it does not bear thinking about.
Have you accessed your account on the government gateway? It's quite easy to do and then you can look at your NI contribution record and it gives the steps to follow. I think it's about £700 and something for a year. That then equates to a lot of pension if your future is bright (hard for any of us to think so but it's the best way!). I am hoping I will be covered by ESA but will be paying it if not as it seems worth it. (I also need a year)
I am sorry to see you had your operation cancelled - take it easy and get well soon.
I'm off to 'knee school' next week! My girls have kidded me that my fellow pupils will all be in their dotage as I'm considered to be young for a knee replacement!! Cheeky!
How are things?
It might be worth contacting the DWP and asking them about it, you might have to make a one off payment, I have not read it but have a look on the following link and see if is of any help.
Good luck and let us know how you get on as it could be useful for other ladies as well on here.
Jak and MIshy
Just popping in to say hello to the both of you xxx
Jak hopefully it will not b e too long before you have your knee op.
It is lovely here in Birmingham today and I am hoping to get in the garden for a while today to destress after a very busy full on week at work. The realisation that I am going to be off from next week for a couple of months has finally hit them.
Sending you both hugs
Lovely to hear from you - how are things with you? Looking positive I hope? I have had my follow up appointment for MRI on my knee - going 'bionic' but have to wait months again so it's good that I don't have the added stress of feeling guilty about work. The plan is to do a partial replacement but if it looks worse when they operate it will be a full one. Apparently I have to attend 'knee school' pre operation - hilarious terminology! The other knee is starting to go as well so I'm trying to build up the muscles for support - bit difficult when there's pain but needs must. I have my 2nd post op mammogram next week - trying not to be negative. I had a friend visit from work the other day and I found it really difficult: got very wound up about it, silly really but then depression is one of the reasons I am not working anymore. Still suffering with post radiotherapy fatigue but not so often. Cancer-wise I still can't believe it won't happen again. Still, the sun is shining and I have loads of time for my self - tra-la-lah!
Isnt it amazing when something happens easier than we thought it would we cant quite believe that is it.
I go in on 18 September. Will be in hospital for 2/3 days apparently and then off work for 6 weeks 😞
That is fabulous news and such a relief xxx
Just googled the citizens advice and DWP pages relevant to this
Looks as if because you are on the support group there is nothing more that you will have to do as far as I can see and it does not mention an assessment.
I have had a letter from DWP today saying I've been put in the support group for ESA. I am so relieved. The letter doesn't say how long for, or if I will need an assessment - I assume not. Does mean I get a bit extra money too. Need to get my knee fixed and get through the next mammogram. I hope things are going well with you all?
Thanks Jill. The lady I spoke to did give me the link for sending fit notes but very kind of you to send it. Can I ask how your ESA assessment went? Do you have other conditions as well as cancer? How long since cancer treatment (or is it still happening)? I don't know if you read my previous post - it's been 18 months since I finished treatment but my GP has filled in the cancer page to say depression and fatigue. Plus I am waiting for a knee op. I'm going to phone the surgery tomorrow and if I need to talk to the duty GP I know what I am going to say - just stresses me out!!
I'm sure any doctor will be able to do you s fit note from your medical notes .I had ESA assessment last week - applied in April - it's a long process .
Jak - I had same problem with fit notes for ESA - letters arriving requesting fit note by nexf day, note sent through the post taking 2 weeks to get through the system -stressful - I discovered that you can take a picture of fit note on your phone /I pad and upload onto the DWP website - you get a text message to confirm they had received it - much easier
I'm glad you have come to an arrangement, you can look for those silver linings now! I am now officially retired due to ill health from my old job but still on ESA and still waiting for their decision on which group to put me in. I had a letter reminding me that my fitnote will expire and asking for another one the following day! After a bit of panicking, I phoned and a very nice lady told me the computer doesn't rationalise these things. So I've got a bit of leeway. Trouble is my GP is on holiday so I will have to ask the duty Dr to do it so now I'm stressing about that! I have got my appointment through for the knee MRI follow up - 5th Sep - it's a good job I'm not going back to work! Don't know if it's the stress from those two things but I'm feeling quite down and unwell today. We'll be off on holiday in a week so I've got that to look forward to.
Hope you are getting as much rain as we are, the garden is desperate and so are the sheep!
Oh dear Mishy! You rant away we are all here for you! I'm beginning to look for silver linings now but it's all scarey and raw. If you get redundancy whilst signed off I don't think it affects contributary ESA unless it is ssp - I might be wrong so check it out. Also have a read of the Equalities Act and see if it's worth waving that at them.
Hi Delly Thanks for your concern. I've finally had my MRI on my knee so am waiting for an appointment to see which operation they will do. Financially we are looking into the effects of my enforced early retirement - providing I don't lose my ESA we can manage by tightening our belts. Once ESA finishes we'll have a rethink.
Hi lovely ladies
I was prompted to chase you up, Jak, from your recent post on the "Progesterone, Fluffy cakes" thread, to see what's going on with you.
Just wanted to say a friendly "Hi" and more importantly to also say, I sincerely hope you and Mishy get your employment issues sorted soon. Jeez, what a horribly tough battle for you' both.
I note too, you've had the lovely Helena's imput and helping. Bless her cotton gusset, she really is a gem.
Fingers crossed, you get your desired results.
Good luck and love to you
Surely if you only finished your treatment in January you will be automatically placed in the support group? Because mine was the previous January I think they'll say it's been too long but I'm going to try anyway. Plus I'm filling in the rest of the form re depression and awaiting knee surgery. I didn't expect to be leaving my job but there's only so long they can go with keeping me on. Have you had an occupational health referral? Or a meeting with your human resources person? Presuming you are still signed off they may, like mine not be able to keep you on and offer terms for you to leave - whatever you do don't just resign! The options I have been asked to consider are:1, go back to work (can't) 2, resign (advised not to) 3, ill health retirement (not ill enough) 4, Dismissal ( would mean boss formally dismissing me then I and my representative would have to meet with the board of governors - who could overturn boss's dismissal) and 5, mutual agreement (both parties agree to terminate contract). 4 and 5 will give me 3 months pay plus any holiday accrued but dismissal wouldn't look good on a CV. I don't want to leave.
As you aren't in a union you could try Citizen's Advice or even Macmillan Citizen's Advice here's a link: https://www.macmillan.org.uk/in-your-area/choose-location.html. Type in your postcode and click on benefit advice service. That will tell you your nearest Mac CA office. I'm sorry you have TN. Mine hadn't spread to the lymph nodes so they said I didn't need Chemo, the radiotherapy was bad enough! How can you tell if you have the rib inflamation? I have had pain in the area below my breast ever since but when I saw a GP (not mine) he said it was nothing. Since they've now diagnosed lymphoedema I put the pain down to that.
Keep smiling x Jak
No not TN but I was unable to carry on with Anastrozole which (if you don't know - some don't) is the aromatase inhibitor given to stop oestrogen production post menopausal. I don't know much about TN, what does it mean for you in terms of treatment? And what on earth is chostochindttis? I have already asked one of my BC consultants about filling in the form - she felt my GP would be best as he knows me better. I've written him a letter asking if he can consider it. I've also been messaging a guy called Tom who helps with benefits on the Maggies website. He's been brilliant and directed me to a local Macmillan Citizen's Advice centre, who I've contacted - they also thought my GP would be best and have offered to help with the rest of the form. It's for beyond the sick note stage when you've had all your SSP and need to claim benefit. I too have breast lymphoedema but they don't seem too worried about it just said massage it towards lymph nodes. You are early days in your journey compared to me. Do you know that we are covered by the Equalities Act which may be worth looking at if they are trying to change your contract. Having said that the E Act didn't actually help me in the end! Can I ask are you able to talk to a union rep? I have used my rep as a sounding board to make sure I proceed in the best way for me. Maggies 'Tom benefits' is also good for showing you what you may be entitled to. The new counsellor I met today got it just right - you're stuck we need to work on making things right for YOU. She's right because every time I try to move on another trauma gets in the way.
Hi Helena - I think i wrote you a message about having a hystericallectomy on progesterone fluffy stuff. Why hysterical you may ask - it's because of the amount of wind you will be producing!!