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Booked a place on the Younger Women Together event in London?

14 REPLIES 14
Member

Re: Booked a place on the Younger Women Together event in London?

Hi everyone! I’m Gem, 34 and living in Chelmsford, Essex with my husband and beautiful 14 month old daughter. I was diagnosed back in October 2018 with DCIS after finding a grain of sand sized lump in one of my breast feeding boobs and realising it wasn’t mastitis 6 weeks on. I was so very fortunate to be diagnosed so early as after further biopsies and cloudy mammograms from the breast feeding they decided to do a mastectomy instead of lumpectomy and found invasion of the ducts had started. I don’t have a full family history available to deduce genetics but have been recommended to have a preventative mx on the other side this July. Reconstruction wise my body was unsuitable for tissue reconstruction so I fought hard to access a prepectoral implant reconstruction which wasn’t available in my area because I have a very active lifestyle and work life (which made pre-pec the best fit for me and my family). I have received outstanding NHS care so far and am looking forward to July when I will have my expander switched out for a permanent implant at the same time as having a mx/ straight to pre-pec implant reconstruction on the other side. Thrilled to be able to meet some wonderful ladies going through their own individual version of this challenging life journey! Can’t wait to meet you all xxx

Member

Re: Booked a place on the Younger Women Together event in London?

Hi, I’m Gemma and I live in Bromley with my partner and 2 young children.  I was diagnosed with triple positive grade 3 BC in January this year. I’m currently having chemo (just had 5th cycle, 3 more to go) followed by mastectomy and reconstruction, radiotherapy, herceptin and tamoxifen. Such a long and scary journey. 

 

Looking forward to meeting people a similar age to me who can really relate to what I’m gong through. 

See you all tomorrow xx

Member

Re: Booked a place on the Younger Women Together event in London?

Hi Everyone!

I’m Nicola, i’m 31 and I live in Lincolnshire with my Husband and 2 year old Daughter. I was diagnosed in Nov 17 with grade 3 triple positive BC. I had chemo, lumpectomy and SNB and radiotherapy. Finished Herceptin a couple of months ago and am on hormone therapy. I’m really looking forward to meeting everyone!! 

See you all on Friday xx

Member

Re: Booked a place on the Younger Women Together event in London?

Hi Everyone

 

I am looking forward to meeting you all on Friday

I am 41, married to my wife with 3 kids. I was diagnosed in August 2018, following my first mammogram due to my mother also having breast cancer. 

I was initially diagnosed with DCIS, I had a mastectomy and found the cancer was stage 1 in several places so currently having chemo.  I am having 6 months of chemo and will finish in 3 weeks. Will then be having hormone treatment and reconstruction surgery. 

Can’t wait to meet you all. 

 

Wendy x 

Member

Re: Booked a place on the Younger Women Together event in London?

Hi @mich33,

 

I wanted to message but don’t know how to reply just to you. I am in a similar situation I had a double mastectomy and recon and just about to have another lumpectomy after I found a tumour a week off my 8 year clear anniversary. Would love to chat to you over the weekend as I know we are pretty rare. My tumour cameback in the same boob though and I’m BRCA1 xx

Member

Re: Booked a place on the Younger Women Together event in London?

Hello - I think I'm replying to the whole post on this, not your specific message Marie-B but sorry if I am as I can't seem to see how to reply to all! anyway. Smiley Happy Hello all, im Michelle, live in Shrewsbury, was first diagnosed with primary BC in Feb 2015, her2+, 43cm tumour (turned out to be two!), two lymph nodes involved. Went through 4 months of FEC-T chemo, Herceptin and radiotherapy and had a double mastectomy (my good side was risk reducing surgery) and I had immediate implant recon. Life was getting back to normal,  my hair grew back - I kept the short hair style, I used to have long hair!! Smiley Happy suits me better short Smiley Happy, lost my 2 stone id gained from chemo - hooray! Fast forward 1 week shy of 3 years since i was first diagnosed and I found another lump in Jan 2018 - in the opposite side, it didn't seem right and thought I couldn't possibly get BC again as ive got no breast tissue left as I had both my boobs off! and.....too much surprise and shock of my medical team including the radiographer who ulta sounded this lump which was the size of a grain of rice, it was BC again!!!!! Awful. To add shock to the diagnosis it was a completely un related BC to my first one, this time it was ER +. I had a lumpectomy over a mastecomised boob (sounds crazy doesn't it) and went though 8 months of tablet chemo (capecitabine), I kept my hair but piled the weight back on again Smiley Sad I also had radiotherapy again. Im now on Zoladex monthly injections for 5 years and Armosin tablets daily. Ive also been tested for 15 known cancer gene faults and all came back clear, I am a medical mystery as I have no cancer in my family at all. Anyway ladies, thanks for reading and I am really looking forward to meeting you all at the event. Hugs and safe travels - see you next Saturday xx

Member

Re: Booked a place on the Younger Women Together event in London?

Hi,

 

I am Marie and I am 34. I was diagnosed in March 2018 with the HER2+ triple positive, grade 3. I had lumpectomy, 8 cycles of chemo, radio and now on tamoxifen for 10 years. It was very intense as I had all my treatments over 8 months. I still have some issues to move forward when I am thinking about everything we have been through with my partner.

 

I look forward to meeting all of you. I also want to have fun as laughing was a great treatment for myself 😊

 

Marie

Member

Re: Booked a place on the Younger Women Together event in London?

Hello everyone. I’m Pryana, aged 37 from St Albans. I’ve been married for nearly two years and no kids yet (we were lucky to sneak in a round of IVF and successfully freeze 11 embryos just before I started chemo). 

 

I was diagnosed in August 2018 with triple negative invasive ducal breast cancer. Following a sentinel node just before I started 6 months of chemo, the tumour in my arm was confirmed as having metaplasticised into a non breast cancer cell - squamous cell carcinoma. So my diagnosis became triple negative metaplastic breast cancer. I had 6m of chemo which finished in Feb this year. At the end of March I had a mastectomy with full node clearance and a temporising implant put in. (Hoping at some point down the road I’ll be able to have a diep recon). I’m now just waiting to start radio, which hopefully will be at the end of this month.

 

really looking forward to meeting everyone next week! 

Member

Re: Booked a place on the Younger Women Together event in London?

Hi Ladies,

I’m Heather and will be coming the event next week. I live in Chelmsford, Essex. I’m 33 and i was diagnosed in November 18. I finished chemo on 17th April. I will be having a lumpectomy and full lymph node clearance on 5th June. This is the 2nd time I have been diagnosed, the first being back in 2010. I am a BRCA1 carrier and had a double mastectomy and Diep reconstruction in 2013 as a preventative measure after discovering I had the gene. I’ve never been to an event like this and I’m looking forward to meeting everyone.

Member

Re: Booked a place on the Younger Women Together event in London?

Hi 

My name is Tania and I’m 45 and from Tunbridge Wells. I was diagnosed in October and have had bilateral mastectomies, 8 rounds of chemotherapy and am awaiting radiotherapy and to start on Tamoxifen - oh the joys! I have 2 teenage boys and a husband who have all been great throughout this awful experience. I’m looking forward to a night away, some useful info and a bit of fun! 

Looking forward to meeting everyone next week.

Member

Re: Booked a place on the Younger Women Together event in London?

Hi,

I’m Rosanne, 36, mum of 2, from north London, diagnosed with lobular breast cancer last autumn. Had mastectomy and reconstruction, 4 rounds of chemo and am now having radiotherapy and tamoxifen, with the hormonal treatment going to be ramped up over the next few months. 

I’ve asked for my radiotherapy appointment next Friday to be either first or last thing so that I won’t miss too much of the day... will see when I get my appointment list tomorrow! 

Looking forward to meeting everyone. 

Member

Re: Booked a place on the Younger Women Together event in London?

Hi

 

My name is Niamh (=Neeve) and I'm looking forward to meeting you all and sharing information, advice, maybe a tear and hopefully some laughs. I live in London, my baby girl turns 1 next week, and I'm currently in bed while round 6 of chemo works its way through me.  I was diagnosed in January, had a therepuetic mammoplasty (breast reduction), have 2 rounds of chemo left then radiotherapy and tamoxifen.

 

I do still have a blue spot but I'm a bit behind you!

Niamh xx

Member

Re: Booked a place on the Younger Women Together event in London?

Hello,

 

I'm Laura, 36, married, two small children, live in Leicester, diagnosed in October last year. Still getting my head round it and hoping I'll wake up and find out it was all a bad dream....!  I had a mastectomy first, and am now having chemo.  I'll be having my last dose of chemo a few days after this event, woohoo! Then I have the hormone drugs to look forward to.....   Not sure what to expect from this event, looking forward to getting some facts, advice, etc but mostly looking forward to meeting other people a similar age who can relate and are going through it too. Lots of love to you all x

Member

Re: Booked a place on the Younger Women Together event in London?

Hello!

I'm Louisa, diagnosed a year ago with ER+ grade 3 IDC, had lumpectomy, chemo and rads and now on tamoxifen. I'm trying to "move on" from the mess of last year, but somethings are harder to forget/deal with than others (is anyone else's boob still blue over a year after surgery?!) Looking forward to the weekend and getting some perspective, advice, etc. Lx

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Booked a place on the Younger Women Together event in London?

                                                   Younger Women Together in London

Booked a place on the Younger Women’s Forum in London but worried about going alone?

Every year we receive queries from women, including concerns about coming along to the Forum on their own. Feedback from previous forums has said how helpful it was to talk on the Forums before the event.
This thread is a chance for you to say hello and “meet” others attending the Forum. I will check in regularly and if you have any questions do let me know and I will do my best to answer them.

Look forward to meeting you next weekend.
Steph