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Oncotype at 37 yo

5 REPLIES 5
Shi
Community Champion
Community Champion

Re: Oncotype at 37 yo

❤️Step by step Beth 👭 remember your team have seen it all before and will know what to do ❤️ The forum is your safe place and a life line, the little pamphlets they palm you off with don’t cover the half of it, the threads do ❤️ People who understand, people who care, people who have walked the walk and are walking the walk, people who reach out to support and be kind in the moments when you feel in free fall, know the threads and breast cancer now is always wrapped around you like invisible safety blanket as much or as little as you need it ❤️ 💕💕Shi xx

BethSW
Member

Re: Oncotype at 37 yo

Shi - thank you so so much ❤️ Being able to chat to you guys is just so brilliant. Thank you for replying - it makes it all a bit less scary somehow xxx

BethSW
Member

Re: Oncotype at 37 yo

Hi Bookish -

thank you so much for replying - that really helped put my mind at ease a bit that it was me putting a negative fear on something that is actually a positive.

Today's second biopsy turned out to be interesting. 3 core biopsies, but I learned rather than another mass - it's actually part of the same tumour - initially thought to be 9mm is actually 7cm. Blimey! Anyway - I'm not going to worry about it. They're checking it out as thoroughly as they can, and then I get an actual face to face meeting with big surgeon boss man to discuss next steps next Wednesday. Yay!

Thanks again for your kind reply ❤️

Beth x

bookish
Member

Re: Oncotype at 37 yo

Hi Beth,

I'm not a medical professional at all, but I think they tend to use the phrase "it won't help" when they mean "we can do enough by other means, so you won't need it". Not always the best at phrasing, are they? I had similar last year, had a mastectomy and there was no indication at the time that chemo would be adding much benefit, so indeed "not helpful" in the longer term risk management sense.

Hope that sets your mind at rest a little, and sending you all the good thoughts for the next steps xx

Shi
Community Champion
Community Champion

Re: Oncotype at 37 yo

❤️Beth, waffle away that’s what the threads are for, your safe place where everyone understands and will listen and 👭. ❤️ 💕💕Shi xx

BethSW
Member

Oncotype at 37 yo

Hi everyone,

Weird day here - I had a face-to-face appointment booked to discuss surgery for the first time, but everything seemed to turn on its head. Half way through the drive to the hospital, phone went off. Pulled over and called back - they wanted to do apt by phone rather than face to face! So I turned tail and hotfooted it home!

Anyway - still no outcome on surgery because my MRI (I was diagnosed with Lobular, so they wanted to check for other areas) showed another suspicious mass in the same breast. Now I have another biopsy first thing tomorrow - though if it doesn't show up on the ultrasound, I will have to travel to Bristol to have an MRI biopsy instead. When I pressed him, he said it was highly likely to be another tumour. This will mean a definite mastectomy. I asked if we couldn't just skip straight to that to speed things up and avoid all the biopsy rubbish, but it is a definite no-go!

Anyway - sorry for the ramble, I'm still trying to digest all this. The one bit that I'm most concerned about is that at the moment "there's no strong indication that chemo will help" and they're sending away for it to be Oncotyped just to double check. On one hand, of course I'm glad that the likelihood of having to have chemo is low - but on the other hand, it scares me that this major tool of beating cancer won't help me! Does anyone have any words of wisdom on this? It is ER+ though, so I will end up with something like tamoxifen at some point.

Sorry to waffle. Just needed to talk to some people who get this stuff a bit more!

Beth xx