I am a bit older. Diagnosed at 37 April 2007) had chemo, mastectomy, Rads, hysterectomy and overies removed and finally 5 weeks ago preventative mastectomy on other side and Diep reconstruction on both sides.
I was originally put on Tamoxafen and was on this relatively symptom free for a year. I did have some hot flushes but not loads. I was put on an antidepressant and this helped with the few hot flushes that I hardly noticed them.
Then I had my overies out and because I was now post menopause I switched and started taking Anastrozole and omg it was not pleasant my hip started hurting and I was stiff all over it was getting worse so after six months my oncologist said she was putting me back on tamoxafen.
So it hasn’t been 5 years but I can say it’s tolerable and actually better than other options.
I wish you well and hope you are one of the lucky ones who do not overly suffer when you start taking it. Xx
I'm Cazzy and I'm 32 I was diagnosed with breast cancer at aged 32 unfortunately stage four as spread to my bones I'm on lethrzole. I'm also on the zoledex which stops my periods, first i wasn't bothered oior my diagnosis about having children or anything but now as few my friends having kids makes me bit meh but dunno that sign of my depression.
It iskt get head round it took me at least a month everyone else it hit straight away take every dsy as it comes I've found that slot easier to deal with
Thanks very much for your wise words. It is great to know there are women out there that have not had adverse side effects. I very much agree there is a reporting bias, understandably so.
I am learning more and more dealing with breast cancer is very much about 'seeing how things go'.
I hope others will share their experiences in due course.
Wishing you well X
Reading experiences can be scary, but understandably, those with problems will post about it, whereas others who are managing ok will not tend to, so there is a reporting bias.
I was peri-menopausal at diagnosis, so obviously my experience is not comparable, however, side effects have not been a problem & I feel fine.
Hopefully some of the others will be along to share their experiences, but maybe just see how you go & deal with any issues if they arise.
Wishing you well with it all.
I am 31 year old woman recently diagnosed with stage 1 breast cancer. After dealing with the shock of this news I have been going through the motions at the hospital. I am scheduled for lumpectomy and radiation in the months to come (chemo to be decided on at a later stage).
For the large part I feel I have been diagnosed with cancer before my time, with much of the research, guidelines and books geared toward older women in their 40s. After doing a lot of reading on the various medical steps and treatments it seems strange that the thing that continues to bother me is the use of Tamoxifen for 5 years. This is because given the enormity of surgery and radiation, the use of Tamoxifen involves taking the same pill each day.
My worries stem from personal accounts on the internet. It is scattered with horror stories of using this drug as the side effects seem utterly unbearable. It also seems many women choose not to take this drug because of the side effects despite its benefits. Given the nature of the discussion on websites and forums, it is not clear how many people do not experience adverse side effects. It is also unclear or how exactly the drug affects younger women.
I would like to ask whether there are any younger women out there who are willing to share their experiences of using the drug for 5 years? How did it affect you and your life? How were you able to manage your side effects (if any) to lead a normal life. Do you ever regret taking the drug?
I understand Tamoxifen affects people differently, but should you have any thoughts or opinions based on your experiences I would be most grateful to hear them.