Breast Cancer Now Forum

Happy new year Chemo buddies!   Just realised that this is the first time I've been on this thread this year 🙂     Here's to a good year x ... View more

Hi Claire,   It's Tina's profile picture, if you click on her profile you will be able to see it. She looks great, lots of hair!    My hair is thick but isn't that long, but I am still on herceptin which is possibly slowing down growth.    It seems that most people have a good covering of hair 4/5 months after their last chemo.   xx         ... View more

Hi again Hazel,     I haven't got to every 3 weeks yet, actually I think this was the first week I haven't been to hospital since I started chemo!     I googled loratidine last night and it looks like it can cause heart problems so I've decided that as I am so sensitive to everything I take not to risk it. I would rather put up with the pain.   I am going to try ubiquinol for the heart though,  I couldn't see any contraindications with that. I really want to complete the herceptin.      Lots of love xx     ... View more

Hi Hazel,    I don't look on the forum very often but I am pleased I did this week and spotted your post.   I am seeing the GP tomorrow to see if he can help with the pain and will ask about loratidine.  I also have problems with my heart function dropping and am thinking about trying the supplements, but I'm a bit worried they might affect the efficacy of the herceptin. I've also had folliculitis but antibiotics cleared it.    Good to be in touch xxx      ... View more

Hi lovely,   Yes I have had a similar sounding rash around the injection site from the first injection but it usually goes after about a week. I'm also still suffering from neuropathy and myalgia/pain and stiffness. The pain can be very bad.    Hope this helps. X ... View more

Hiya again,   Tanyette, thank you and I hope we can all keep in touch too.   Sue, Sounds great. And yes don't we rock! We've gone through so much and we're still smiling.    Lots of love OAD x ... View more

Hi May starters, just want to say hope you're all well and  thank you for being there this year!  X ... View more

Hiya,   I'm still looking in here every few days. I have found radiotherapy okay in comparison with chemotherapy but have been told that I need to continue moisturising 2 x a day for 2 weeks afterwards when the effects peak and then 1x a day.    Tina, I'm not on Tamoxifen etc because my tumour was hormone negative and I have the same very achy joints etc, peripheral neuropathy particularly in feet etc so I think it is either the after effects of chemo and/or a side effect of herceptin and/or a symptom of medical menopause!! I think the radiotherapy runs us down a little too. It's everything! I have down similar work to you in the past so know exactly what you mean about needing to be on top form and also about how surreal it all feels. I also find it very sad that so many women (mostly) are affected by this cancer and so many of us under the age of 50.    Take care everyone xx     ... View more

Hi Tanyette,   Yes it would be great to keep in touch.   My side effects are in some ways similar to some chemo side effects (upset stomach, etc) but much milder.  I hope you get on ok with hormone therapy. I guess you are in that for 5 years? I don't know about you but I'm finding radiotherapy ok so far. I'm fatigued but no worse than I was before.   OAD xxx           ... View more

Hi all,   Pleased to read how you are all doing.  What a life changing year this has been.  I am still having radiotherapy and have herceptin injections every three weeks until next summer but no hormone therapy. Some side effects from both but that's to be expected. Is anyone else still having treatment?    OAD xx ... View more

Hi Karen,   I was given some lovely hand creams and moisturisers and used them throughout chemotherapy without any issues. Chemo can affect skin and also our sense of smell and taste but I think that as long as you are ok with them it will be fine to use them.  It is really important to moisturise nails. I hope all goes well for you!   OAD xx           ... View more

Hi Tanyette,   My nails are definitely different, almost crumbly, but haven't lifted off. Sorry to hear about your arm and hand. I hope your hospital are helpful.   How lovely to know you had a good time last weekend with your granddaughter. Having nice times again is a good reminder of why we put ourselves through all the difficult treatment! Whats bothering me most at the moment is fatigue and weakness but I'm sure it will get better. Not looking forward to radiotherapy but at least it's only a few weeks.    Hope you have a good weekend xxx ... View more

Hi, Hope you're all ok. I have quite a few side effects still but been told they are all usual xxx    ... View more

Hiya, I was told that it is already factored into NHS Predict because it is a standard treatment xxx ... View more

Hi Janey4,   I know it is so awful waiting for appointments, results etc. I am also waiting to hear about an appointment about another concern.    Sending hugs xx ... View more

Hi    Hazel, That sounds so similar to my experience of peripheral neuropathy.  I started getting it with my first T then it got a lot, lot worse with the second T with numbness, soreness and tingling in fingers, toes, ankle, soles. I feel so pathetic not being able to open blister packs, chop veg, open jars etc and am fed up. I didn't know about keeping my feet moisturised, that's very useful to know, thanks.    Tanyette, sorry you are also suffering from peripheral neuropathy too 😞     Flower, No you didn't upset me, sorry if it came across that way. Four miles is good. I'm just frustrated that I've gone from being so able, fit, youthful etc to not being able to do much at all and with all the side effects!    Take care allX  ... View more

Hiya, Thanks for replying. Before diagnosis I thought nothing of walking miles and was fitter than a lot of people, I'm also considered young to have breast cancer.. I think becoming so ill during chemo hasn't helped. The onc said it has affected me more than most.   Was advised that it could take a long time before my peripheral neuropathy goes, if it does. All the best with job hunting. Hopefully you'll find something that isn't too draining. I have decided I don't want a career anymore but just enough money to feel secure and enjoy life and be able to do some voluntary work would be great, once I'm ready xx  @Flower2016 wrote: Hi OAD!  What I mean by normality is no chemicals being stuck in me every 3 weeks with worry re infections and taking temperatures etc! ...things are not as they were at all. The 4 miles was on the level around a reservoir. I was really pretty fit before which has helped. I do suffer from fatigue and it seems random. I have been getting stressed re getting a job as I was contracting when got diagnosed. I tried to apply for one today but brain not switched on and I think I just need a bit more recovery time. Xx     ... View more

Wow, Flower, I'm impressed with your four miles. I struggle to do any walking at the moment!! And normality? I think I've forgotten what that is! Sounds like you're doing really well xx  @Flower2016 wrote: Yoo hoo! Hello all. I think we should just stay on this thread for radiotherapy.....what does everyone think? It is easier! I will have had last chemo 4 weeks ago next Tuesday. I get fatigued but am trying to get more fit. The new dog is helping me to walk longer and has brought me lots of happiness. Yesterday I managed 4 miles so happy with that. I have been a fan of moo goo products before all of this as they stock it in my local chemist. They are milk based but contain no hormones at all ( I asked them) and only the milk protein. No nasty chemicals at all.  I do not have a date for radiotherapy yet, although was told early last week that the plan had been done. I just want to get on with it. I feel like the worst is over and life now has a lot more normality. Hope everyone is doing ok. Xx   ... View more