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Kimucoughdrop
Member
since
04-05-2016
79
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14
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17-10-2017
08:55
I had my mirena coil out at diagnosis 18 months ago, I have not had a period since and been on tamoxifen for a year . Suddenly last week started bleeding and still going. I am not sure if this is a period or what's going on. I am hoping it's just womb thickening due to tamoxifen. Has anyone else had random bleeding while on tamoxifen ?
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24-01-2017
08:19
1 Hug
I had my scan yesterday and I was a disaster but I did it. I shook the whole time and then half way through I pressed the button and said I can't do it, they came in and talked me into staying in. But to be honest it's been worse since the scan I am so so scared about the results. Last night I had a panic attack and the whole room was spinning. I have basically decided that I do not long for this world. Has anyone else just had liver mets? Kim xx
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19-01-2017
08:30
Hi Pam good luck with your radiotherapy I finished mine in September and it was ok I promise. Just wanted to say I too had thyroid cancer in 2000, you think you have had your lot don't you and then we went and got another one, My breast cancer was found last April IDC 14mm grade 3 no nodes and Oncotype 20 so no chemo. I had a CT scan last week which found something on my liver so I am having a MRI on Monday which I am really scared about. It is a rollercoaster for sure. Kim xxxx
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18-01-2017
08:29
1 Hug
i was told my tumour was grade 2 after my biopsy but after my WLE it was found to be a grade 3
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16-01-2017
03:47
Hi I was diagnosed last year with grade 3 IDC while having radiotherapy I had a CT scan which showed some lung nodules and I have just had a follow up CT scan for these. The lung nodules haven't changed and look fine but they have found a hypodense area on my liver so I need to have an MRI. I am absolutely terrified I am claustrophobic and I have heard I will need an injection before going into the scanner which really scars me, I was ok with the CT and the injection that makes you feel like you have wet yourself. It's the closed in tunnel and the fear of a reaction to the injection that is filling me with fear. If they find it is a BC Met what do they do for livers?
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10-01-2017
10:26
My tumour was 14mm 20mm with dcis grade 3 no nodes clear margins oncotype 20 no chemo
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08-09-2016
04:50
Hi everyone. I am 5 days post radiotherapy and at the moment the boob is doing ok, a doctor I spoke to says the affects peak at 2 weeks post last of rads so I am not counting my chickens quite yet. My problem at the moment is the hot flushes and not sleeping because of them. I went to the dr yesterday and was given some Venlafaxine which I took yesterday and felt so ill last night and couldnt sleep at all, I have felt rubbish today too so am not taking anymore of it. So I will just have to cope with these wretched flushes. xxx
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01-09-2016
07:12
I went to Holland and Barrett last night at 6.30 bought some pure Aloe Vera gel and literally smothered my boob in it and then just laid with the fan on it all night. I put a few more layers of the gel on through the night and it does feel slightly easier although there is a deep kind of burn feeling. My boob is literally peeling all over the place with this dried gel. What with the blue dye, the scars, the overall redness and now the peeling aloe vera my boob looks like some sort of horror movie.
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31-08-2016
07:28
Lesley you poor thing hope you are not getting something, I did read that your immune system is down after rads.
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31-08-2016
04:41
Had my second booster this morning and where they zapped is so so hot and sore. Have people found boosters worse than the whole boob zap?
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31-08-2016
03:44
Lesley you so have to invent that blanket ! And a cooling bra would be good for rads. Dragons Den here we come !
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29-08-2016
12:41
yes bank holiday off hurray, with all this talk of sweats at night and bad sleep, does anyone feel like a zombie through the day like me? I feel so tired but I am sure its the fact that I am just not getting a good sleep which is so frustrating. x
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29-08-2016
09:12
Kary I am so with you on the hot meal sweats. Last night we had a chinese takeway and I was dripping through the whole meal. This could be a bit tricky if you are out in a restaurant. I am getting myself ready for my boosters this week, waiting to see how they will affect things. First one tomorrow.
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27-08-2016
08:03
my nights are ridiculous still with the hot sweats the fan going all the time and trying to aim it at the hot boob. I take my tamoxifen at nights I am not sure now whether to change to morning. Maybe I would have better sleeps? when do others take their tamoxifen? x
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27-08-2016
04:22
I had my bone scan on Thursday and to be honest have got myself into a bit of a state. I had to have an injection then wait for two hours for the scan. I went in and they said the scan would take 20 mins and then they would ask me some questions. As I was having the scan I thought why ask the questions after the scan? After the 20 mins one of the radiographers asked me questions about if I had had operations, dental work and etc. Then the other radiographer came over and said we are just going to take some more images of your hip and ribs. Well that sent me into a spin of worry that they had seen something. I asked and they said we just need to get a good picture for the consultant. But I am such a worrier and thought they cant tell me anyway. I should get the result next week but its at the back of my mind all the time. I am sure now I have had the dreaded BC there will times like this along the way. A hip pain, a headache, a cough will always be more of a worry for me now I suppose. I have finished 15 rads of the whole boob and next week have five booster ones. My boob is red now and I last night having stabbing pains deep inside. They say it keeps on working after treatment so I am hoping this is all normal. I just hope my skin doesnt start doing horrible things. I have just seen Kylie Minogue in the paper looking fab and think there is life after all this, I hope anyway.
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25-08-2016
06:12
Hi Tarneh - nice to meet a fellow oncotype 20, did your oncologist say a definite no to chemo with that score. Mine did but I have other medical issues. I wonder if the tamoxifen hot flushes are worse when having radiotherapy because of the whole heating up process. I don't look forward to going to bed now I am sort of resigned to a hot and bothered night. I have the fan going full blast. Last night I was laying with radiated boob covered I aloe vera gel and the fan on it. I did think to myself oh my goodness what is my life like now? I am off for a bone scan this morning because of my achey hip, scared about them scan and results. After the scan going for rad 14/20 my boob is pink and sore now . I did ask the radiologist if mine was bad at this stage but they didn't commit and just came out with a standard spiel and I was none then wiser.
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24-08-2016
09:17
Janey I had the oncotype test done and it came back low intermeadiate oncotype 20, I was advised not to have chemo. My lump was 14mm grade 3 IDC no nodes. Xxx
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23-08-2016
09:48
I got myself into such a state about my CT scan but did it and just waiting for,results now. I had my 12 /20 today and just looked at my boob,and it's suddenly gone really red all over and nearly up to my neck. It doesn't feel sore at the moment but the redness was a bit shocking, really worried how it's going to end up but the time I have finished and beyond,
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