Breast Cancer Now Forum

https://www.canceractive.com/cancer-active-page-link.aspx?n=258&title=20-tips-to-improve-your-Radiotherapy-experience  I did know how to do it, ha ha. Just forgotten that I did. This is an interesting article about ways of helping yourself through the effects of WBR.  My GP has prescribed 2mg Melatonin and queried the amount and said 2 mg is maximum allowed to prescribed. I'm just gonna take that.  I'm already taking most of the other stuff, but not all. Not going  to add anything extra cos of what I'm already doing. I get my green/ veg fix by blending them and haven't had in ages so that's starting again tomorrow by making a four day batch.  Just got to decide when to buzz hair short, probably tomorrow afternoon. Should have bought a water based dye ...still time. Going into my former school tomorrow, (was head) as one of my mates is retiring. Will be nice to see everyone.  Take care all xx  ... View more

Oh FF, my heart goes out to you. She obviously has real personal issues and a lack of self worth if she feels like she has to push her weight around, making sweeping changes for the sake of it. You are a kind and caring  person who deserves better, don't ever forget that. The Universe will be kind, perhaps this will be a new pathway for you.   Anyway you are a beautiful person, go camping and try to chill. Xxxx ... View more

I've actually put on weight for the first time in months. It feels so good to wake up hungry. It's only cos of the dexamethasone but I'm making the most of it to try and pile on the pounds a bit. I look so different from this time last year it.  ... View more

Moijan PM me your email address then I can send you the link xx  ... View more

Not sure how to do link. It has got a send to page at the top of article on IPad but not sure how to get it here. There's a current trauma in immediate family so not the time to ask for help.  ... View more

Hi Emma I've sent you a message with my email address.    Marnster, sorry you're having a rough time. It was scary stuff but the dexemethezone has returned me back to normal and hopefully WBR will reduce the swelling on a more permanent level for a while.    Truffle, I've got the fear of the unknown at the mo concerning WBR. my oncologist talked about doing Two longer sessions rather than five shorter ones. However it helped there were things that I could possibly do to help myself. Keep on onward and upward xx    Carolyn , you'll be happy to know I've been indulging in chocolate every day. Well I am on holiday ha ha.      ... View more

Happy belated birthday Barton - we share a 60th birthday 🎂🎊🎉❤️🍾 Hope yours was as good as mine xxxx  ... View more

Can't turn image!! View from holiday home on beach bedroom window, yesterday at the start of my birthday. Had a lovely day with family, visiting Osborne House, eating and drinking. Peachy pal I will try and message you about the drug cos there is nothing like hearing what it may be like from the horses mouth.  Thinking I'm going to having another port put in cos my veins are shot. Found an interesting article on Canceractive.com which tells you how you can perhaps lessen the side  effects of Whole Brain radiation, some of which I knew. Thanks for all of your kind thoughts. I'm glad I've got this weeks break to gather my thoughts, spend quality time with my family and get to sort things. Luckily, (though not necessarily for son inlaws) we have a kind of wicked and warped sense of humour!! ... View more

Thanks Moijan, I'm practically back to " normal" now ha ha. It was frightening but I got through it. My family was brilliant and supportive. Even though we didn't get to Majorca my daughters found a huge house on a beach on the Isle of Wight which was reduced as it had had a cancellation. We also got all of our airfares refunded which has helped to pay for this.  It's like being at the Hamptons, and very posh. There is always a silver lining . Could get used to this. I'm going to be having whole brain radiation when I get home and then start on another chemo afterwards. Carp something or other. I haven't researched it as I want a break for this week.  ... View more

Just came out of hospital tonight. Admitted yesterday at 5.30am . Had another stroke like incident but lost my speech for hours. They've given me Dex to release the pressure  on the frontal lobe. Still haven't got my speech or thinking back to normal. Cancer has spread into lungs, liver and lymph nodes. Another consultant told me by mistake. Seeing the oncologist tomorrow morning. Had to cancel family holiday to Majorca but gave away to a family of 5 in need. May be booking a family holiday in England tomorrow  for my 60 th xx find out newcplan tomorrow xx that care all  ... View more

Good luck for today Truffle xx I don't think I have a Maggie centre near me, Peachypal, I live in Rochester, Kent. I'm sure I've looked them up before.  Have a whole body CT scan today so my oncologist can look at what's going on in the rest of my body to see if Cape has been working on them. Now that I'm keeping any pain until control with minimum pain meds not feeling too bad.  ... View more

Beautiful poem. ... View more

Hi Angela, I was bald when my daughter got married in Santorini. I wore my wig and a beautiful M&S hat.  It was boiling and I just couldn't keep wig on, so I whipped it off and just wore my hat for the rest of day. It covered the fact that I was bald. Could always try and find a hat and a couple of pin on hair pieces that disguise the fact that you be bald/ balding.    ... View more

Hi truffle, I agree it is so easy to feel that way and if you have been a fighter but now don't have the strength, it's hard. Now being in the position to have deeper conversations with my family my eldest daughter has agreed to be my champion and fight my corner once I'm not able to. That helps me knowing that.  Have you got anyone who could find out what your options are? Visit " Yes to Life" charity online they can try and help to give you any options available. Also sending you buckets of strength. X ... View more

The blinds have to be screwed onto something solid. John had to cut one down but he found that easy. They just pull up and down by a little finger hoop at the bottom of the blind. Believe if John can do it anyone can ha ha . ... View more

That's a bit frightening Carolyn. That's the trouble of everyone jumping on the bandwagon.  ... View more

Had a e mail from my integrative onconolgy charity. She's recommended Boswellia, Tumeric, lipoid acid tincture, IP6 and Salicinium. Been taking two out of the three for ages but not at high doses recommended. These all cross the blood brain barrier. I'm going to give it a go and let you know any results. I used a vaporiser to get the sacred plant into my system but managed to knock myself out for two days, ha ha it was hilarious. I'm such a numpty!!  ... View more

We're lucky that we live in a bungalow so try and have all windows open to create a through draught. We also have a outside blind over the patio doors which means that the sun doesn't pour into the house and make it unbearable. Also have ceiling fans in four of our rooms and they're on all of the time. We recently bought some cordless window blinds from Ikea (£15 each) which are pleated so they trap the heat in these and also make it easier to watch tv,  they're really good. Thanks for the tips about floor fans, they vary so much in quality.    ... View more

Hi the heat isn't good, but I'm sitting in the front of the house which is  much cooler in the evening. Having quite bad pain back on Cape but just trying to keep myself topped up with painkillers. Hope everybody else is coping with the heat.  ... View more

Hi everyone had a lovely day out with husband, girls, their babies and one son in law today. We went to a beach that we've taken our daughters to since they were tiny. Got a bit emotional at one point, but it was brilliant. We've decided that, unless I deteriorate, which I won't, that we will fly to Majorca. It's not a long flight so fingers crossed. I love gardening too and always make my own hanging baskets and tubs etc.  I also grow veggies which I get a kick out of growing and then eating. It's great looking out in a pretty garden, lifts my spirits. My hubby also has diabetes and it can be a bit frustrating as he can't necessarily now do what I can't, which sometimes does mean I push myself too far but I have got a lot more sensible. We also have a blow up hot tub in the garden which is great when the weather is hot. Bubbles ha ha.  ... View more