Breast Cancer Now Forum

She’d of laughed at that Shi. Michele was the text gremlin queen.  ... View more

Such awful news. Absolutely  heartbreaking. She waited so long to get the go-ahead for her drugs it was too late. Sending love to all who loved her. She was such a family driven lady, I’m sure she’ll leave a massive hole in many lives.  Personally, I’ll miss her terribly. She’s been my confident since we were both diagnosed stage 4. 😪 😪 😪 ... View more

Whatever we can do; pray, ask the universe, whatever is your thing then please do it. She needs help. 😪 🙏 ... View more

I’ll let michele know about the trial. She’s actually supposed to be on one now. She eventually got the go ahead for the immunotherapy and managed to have one session before she took ill. She’s to sick at the minute to have the second session. She fought so hard for it but unfortunately waited a very long time to get the go ahead. Xx ... View more

Sending love back Shi.  I’m really really sad to say Michele’s not doing very well at all She’s taken hit after hit these past couple of weeks. I spoke to her on Tuesday. She’d been in hospital for over a week at that point. They’re now trying to find her a space in a hospice. I’m begging so hard for a miracle. 🙏 😪   ... View more

Thanks for the info. I’m hoping it’s like nicky’s rogue met and I have a good while before I need to take any action. My oncologist seemed to think it was nothing to worry about at this point as Cape is still working so well on the rest of the mets. 🤞 🙏 ... View more

Thanks so much for your reply Nicky. It’s very reassuring to hear your rogue met caused you no problems for a good few years. My mets are tiny and many. I originally had about 7 but they scattered far and wide on palbociblib. Even though I have a very strong ER score of 8 neither tamoxifen or letrozole worked for me. I’m pre menopause. I’m PR- and I’m convinced this is what’s stopped the ER blockers from working even though my oncologist disagrees. Cape has probably killed at least half of the mets so far. All still stable and shrinking apart from this one. I’m thinking surgery probably won’t be an option until more mets die off. I’d like to investigate ablation. If you could message me the name of the hospital and surgeon, that would brilliant. Thank you and I hope you have an excellent response to Chemo.  ... View more

Great that palbociclib is working for you. I know some ladies get years out of it.    I’m hoping to get a good run out of cape. I know someone who has been on it 6 yrs,  when it does stop working I’m going onto a trial to target a dodgy gene I have (ATM).    I’d like to find out if anyone has had surgery to remove just one of their liver mets as I think that would be my best option at this point.  ... View more

Thank you Shi. It’s a big relief. Hope you’re going great. Xx 😘   ... View more

Hello ladies.    Great to hear you’ve had your diep Carole. I hope you’re on the mend soon. 🤞 I’m sure the pain will be worth the end result.    Kimi, it’s one thing after another isn’t it. I hope you have a lovely well deserved break. 🌞   Capecitabine is working for me. 😀 CT results on Friday showed that half of my liver mets have disappeared already. 🙏 minimal side effects from the drug. Ive just came back from Keswick and I’m off to Spain on Saturday for 10 days, so all is well in my world at the minute. 💃 💃 💃   I really hope everyone else is doing well. Sending love. 😘 xxx ... View more

I totally know what you’re going though Michelle. I’m going through it too. 🙃 We have to have hope. I’m here if you need anyone to talk to. DM me on twitter any time.  We honestly don’t know what’s on the horizon with treatments. I’ve got a gut feeling we’re going to be here for a long while yet.  Xxxxx 😘 😘 @Mishy18 wrote: Shi thank you for the 💖 I logged on tonight to send 💖 to you all Still don't think I'm getting used to my sbc diagnosis my chest infection is gone now so feeling like I was before no symptoms to even suggest there were mets in my lungs trust me to have them in both I don't see my onc for another 2 weeks and feeling really 😳 abandoned and left to get on with it of course my mind keeps going to terrible places and I have to keep reminding myself to snap out of it it just feels so different this time around it's the kind of feeling that's very hard to describe like I'm having a nightmare and it's not really real sorry for the offloading ladies probably not what you all want to hear especially on valentines day just want to have my app so I can get some clarity and know I'm not being just hung out to dry 😨 😨 😨 My onc is very good at his job but I feel like I was my own doctor and if it wasn't for my gut feeling where would I be when the red flag symptoms finally appeared probably with a lot less treatment options that's for sure  it just makes me mad that we are not offered some time of screening after treatment ends On a much lighter and brighter note my little angel Ella came today with my valentine made at nursery she's is sleeping over on Monday which I can't wait for cuddles and bedtime stories it's half term next week so will be spending time with her and Holly doing lots of lovely things 💖   ... View more

Sorry to hear that Carole. I can imagine your disappointment. I’m sure your anxiety levels have been pretty high too. Hopefully it won’t be too long before they can fit you in. 🙏 🙏 🙏 🤞 🤞 🤞 xxx ... View more

Hi Michelle. Four weeks seems like a long time to have to wait. 😳 I don’t think they understand the torture of not knowing what’s going on. Makes me mad. It’s like cruel torture making us wait for answers. Our brains manage to come up with all sorts of terrors when we’re in no mans land. Keep busy.  Keswick was lovely as usual. Xxx 💪 hoping everyone else is doing well. Xxx ... View more

Thanks ladies. 😀 it’s such a relief. First thing that’s worked since diagnosis. 😳 was starting to think nothing would. Phew. In Keswick now to brush off the fear and celebrate the good news while it’s here. X  ... View more

Just had results of first ct since starting cape. I’m stable Mable with some shrinkage. 💃 💃 💃 💃 🥂 🥂 🥂 😀 😀 😀 hope everyone else is doing well? Xxx ... View more

Ahhh Michelle. I’m so sorry to hear this. 😢 I wish you didn’t have to join us. Totally devastated for you. 😘 😘 😘 😘 I’m here for you. There are many treatments for you maybe even surgery with so few. Get yourself on the prospect north east trial. Don’t take no for an answer. Your tumour needs profiling to give you more options. DM me anytime. We’ll meet up for that coffee soon. Hold tight. 🙏 😘 😘 😘 😘 😘 ... View more

Hi Michelle. I’ve never had any treatment at Sunderland. I opted for Gateshead as that’s where my bc nurse is. I only have clinical trial and genetic appointments at the freeman. I’m waiting for the results of more genetic tests so I’m hoping it’s not too long before I get an appointment for that. 🤞 I know what you mean about scans. I’ve still got the same onco. He’s very good and I like and trust him. It won’t stop me getting a second opinion at some point if I think I need one though. I’m sure your scan results will be good. It’s absolutely impossible not to let it worry you though. Brain goes into overdrive doesn’t it. Xxx ... View more

Morning ladies. Good to hear from you Kimi. Sorry to hear about the chair incident. 😳 😳 Michelle, hope your ct went well. Fancy that a Sunday appointment. I thought I was unlucky getting a Monday night. My results are due on the 1st. 😳 😳 😳 cra**ing myself. Hope everyone is doing well. Xxx ... View more