Breast Cancer Now Forum

Thanks for this Gibbi. Im tolerating it really well with slightly dry hands being the only side effect. My liver enzymes have came down within the normal range too, so it’s looking very positive. ... View more

Quick update ladies as my phone is about to die. Bloods including liver are all back in normal range so even better sign that cape is working. I have the ATM gene. They have a trial for this once cape stops working so all very good news. Yes I have some appointments at the bobby robson Michelle. I’ll let you know when my next one is. Xxxx ... View more

Morning Michelle. If your onco says he’s pretty certain it’s the rads, then I’m pretty certain it will be. They don’t put themselves on the line like that unless they’re sure. They just have to be very careful with us and leave absolutely no room for error. We were away with family (including the grandkids) and also two of our friends and their 3 children. It was absolutely lovely. Plenty tears of laughter, which is just what we needed. Off to the bobby robson in a minute to find out if there’s an update on my potential trial, then oncology appointment, then hopefully off to the chemo ward to pick up my cape. Going for a curry tonight, so at least we have something to look forward to. Xxx ... View more

Michelle. Just logged on and saw your post. Remember, I had swelling around ribs a cpl of months ago. It’s gone now. Was nothing to do with my mets, it’s the bloody radio. I’m sure yours will turn out the same. Once bc gets it’s nails into us every single thing is an horrendous worry. We’ve got your back. Xxxxxx Carole, so relieved for you. New boobies for 2019. 🥂 🥂 🥂 🎉 🎉 🎉 ... View more

It’s sounds as though we’ve all enjoyed a lovely Xmas. Great to see you on the forum tatyana. I’ve just popped in to wish you all a very happy new year and to wish us all better health and good news in 2019. I’m going away until Wednesday. Looking forward to someone else doing to cooking and cleaning. There are about 20 of us going so should be fun. 🥂 🥂 🥂 🎉 🎉 🎉 😘 😘 😘 ... View more

GRAVY update Michelle. It’s lovely. I used port, left out the star anise and added a beef stock cube for extra colour. 👍 👍 👍 ... View more

Morning ladies. Carole, great you have your diep appointment through. I have everything crossed for good scan results. 🤞 🤞 🤞 🤞 Michelle, I plan on making Jamie’s gravy today. Not much get ahead there. I’ll be putting it in the freezer then back out tomorrow. 😂 Have you got the whole family over? I’ve got mine xmas day then even more Boxing Day. I’ve ordered a buffet from a local restaurant for that one. 👍 Shi, thanks for your upbeat, sparkling, lovely posts over the year. You keep me smiling. 😘 Kimi, I hope you have a wonderful anxiety free xmas. Tatyana, sending lots of love your way. Missa, as ever you are in my thoughts. I hope you are okay. Here’s hoping we can all enjoy a peaceful, happy and stress free Christmas and New Year. Love you booby buddies, thanks for your support this year. Xxx 😘 😘 😘 🎄 🎄 🎄 🎉 🎉 🎉 🥂 🥂 🥂 xxx ... View more

Thanks ladies. Good to hear from you Kate. Hoping you too have a happy and peaceful Christmas and new year. Xxx ... View more

That’s brilliant mermaid. We have to do something. X ... View more

I forgot to add; try posting on twitter to @campaignkate She knows about most drug options ... View more

Also, try posting on the American inspire.com website with a list of drugs you’ve already tried and ask if anyone is aware of others that may help. They are ahead of us in this area. ... View more

So sorry you’ve received this horrible news. Ask if there are any drugs not approved by NICE that you could try. If you need to, you could always set up a go fund me page. I’m not talking about snake oil, there are drugs not available to us down to cost or lack of UK trials. The Christie hospital is fantastic. Have hope that they will be able to help. I hope your appointment comes through very quickly. X ... View more

😳 😳 Michelle that’s terrible. Bloody hell. Great they managed to reattach them 😳 Carole, your oncologist has doubt or he wouldn’t be requesting another ct. my mets were tiny but they knew straight away what they were sinister they called them. 😳 like something out of a horror film. I’m hoping he’s just being extra cautious given your history. Lungs show up all sorts of stuff. Shi I’m sure the wishing well and castlerigg did their magic. 😀 😀 it’s so wonderful to have hope again. I’m starting to worry about tatyana. We all need a break from social media sometimes, so I hope that’s what she’s doing. Enjoy the weekend ladies. It’s forecast for snow here so I’m planning a cpl of cosy days 😀 xxx ... View more

I’ve only gone and got some bloody good news ladies. My blood tests seem to show that cape is working. Liver function test much improved. 😀 😀 Also, they have found two faulty genes. They think they are going to be able to tailor a clinical trial for me. Hubby is crying tears of happiness for a change. I just said to him before appointment this morning ‘In the words of Radiohead ‘I feel my luck could change’. Xxx ... View more

Yes Shi, we saw the singing reindeers, they’re absolutely fabulous. 😍 I’m still using the lush shampoo. It’s the only shampoo my mam will use now too. It’s bloody marvellous. I hope we all have a good weekend. I’m off for bloods this morning, then oncologist appointment tomorrow. Hoping he has the results of my tumour profiling and that they open more doors for drug options. Dreamt last night that docs had it wrong and it was pepper on my liver not mets. 😂 😂 dear me. ! Xxxx ... View more

I’m hoping it’s good news for you Carole. It’s absolutely crap that you’re having to deal with this again. It’s that awful feeling of dread. I know it so well. It makes it difficult to think positively. Rads cause all sorts of problems and if you’ve had a cough for weeks that could be the cause of the shadow. It doesn’t mean it has to be cancer. I had bits and bobs on my lungs which the docs thought may be cancer. They weren’t. Never feel bad about talking about your fears. We’re all here to support each other. Xxx ... View more

Afternoon ladies. Carole, hold tight. You’ve been in a similar situation before with your liver and it turned out to be nothing sinister. I’m hoping with everything that’s the case this time. 🤞 🤞 🤞 🤞 Michelle. Thanks for sharing the love. It’s the most important thing in the world isn’t it. Xxxx Shi I took your tips in Keswick. I also went to castlerigg stone circle and pressed my liver against the rock that looks like the boss. 😀 the garden centre. OMG. How amazing. I could of spent a fortune. Hubby wanted a giant polar bear. 😀 I’ve decided I’m going back to Keswick in January to do a spot of fell walking. Terrified of heights so catbells it is. I hope everyone else is doing okay. We haven’t heard from tatyana for a while. Sending you my love if you read this. Also Kimi and missa. Xxx ... View more

Bingo hair and twinkly top sound absolutely fabulous Shi. 😍 😀 😀 I’ve been wearing a few twinkly tops myself. 😀 you’re right, a bit of tinsel should hide the trays. 😂 Well I’m off to Keswick for a few days. Fancy getting away from it all and enjoying a few walks and good food that someone else cooks. Hoping to find some lovely xmas presents too. I hope everyone is well. Xxx ... View more

Hmmm Jamie’s gravy. I’ll look into that. I had a massive moan at everyone on Sunday while clearing the dinner dishes away. I told them all I wasn’t going to make xmas dinner. For a while I had them believing we were going for a curry instead. 😂 I LOVE to cook but absolutely hate the clearing up. It’s horrible, especially when you’re stuffed. They all sit chatting round the table while I run around like a loon. My mam offers to help, but to be honest she just gets in the way and does it all wrong. 😂 there’s no pleasing me sometimes. Hubby says I like being a martyr. 🤔 😂 I’ve decided I’m going to prep everything xmas eve and use foil trays etc that I can just throw away. Then there’s just plates cutlery and glasses for the dishwasher. I’m doing great on the meds. Much better than the last regime. I feel slightly light headed but that’s it. Yes, we should meet up when the weather picks up. That’ll be lovely. X ... View more