71.9K
members
230
online
1.2M
posts
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for
- Home
- :
- About Lizzie
Lizzie
Member
since
16-04-2017
88
Posts
8
Hugs
12-12-2017
10:30
Thanks Fiona, I too got some medication and that sorted it. So far so good .
... View more
11-12-2017
06:07
Hi Jo, Sorry to hear about the arthritis, I hope it eases. I'd be really interested to hear what you find out about the Tamoxifen working or not working. I will see what I can find out too.
... View more
11-12-2017
06:06
Hi Jo, Sorry to hear about the arthritis, I hope it eases. I'd be really interested to hear what you find out about the Tamoxifen working or not working. I will see what I can find out too.
... View more
10-12-2017
05:12
Hi Debbie, I've been reading this thread - I am also fairly new to tamoxifen and have been on it for a couple of months with various side effects, nothing major. I'm curious about your oncologist saying tamoxifen is not working for you as you still have periods. So far I am still having periods - do they have to stop for the Tamoxifen to be working? Lizzie xo
... View more
04-12-2017
07:00
Hi Debbie, I'm two months in on Tamoxifen and still having periods. Like you I expected them to stop but guess it takes a bit of time. Dizzy I hope your results turn out fine xo
... View more
20-11-2017
10:39
20-11-2017
10:39
Hi Rozigi, Sorry to hear you are in pain. I have been taking Tamoxifen for just over a month - I don't have stomach pain but I feel nauseous and my tummy feels quite burny and unsettled. I also have a continuous metallic taste in my mouth. I had this for pretty much the whole term of my pregnancies - a long time ago - my children are 20 ans 18. My oncologist has said its hormonal - I think I guessed that . He didn't offer any remedies - I am hoping it eases with time. I would speak with your oncologist to see if they can offer any advice. I hope you are feeling better soon xo
... View more
12-11-2017
09:32
1 Hug
Goodness Ladies, That's opened my eyes and given me something to think about. I hadn't really thought about recurrence, I was just thinking 2% that's a bit pants. Thank you, you've kind of opened my eyes. It all feels like a bit of a gamble - there are no certainties but I do know I would like to be around for a long time yet - I am 51. I was 50 when diagnosed on my first mammogram. I am so sorry about your Mets Moijan, thank you for being brave and honest. Is there any information out there on the risk of recurrence? Take care Ladies and Thank you xo
... View more
11-11-2017
12:39
Thank you ladies, it's good to know there are more of us out there who get it. Today I am trying to be positive. I'm starting slimming world on Wednesday and will be trying to be more active - recently I have managed work and little else. I was also premenopausal so am used to the hot flushes and sleepiness nights - if anything I am sleeping better now as I feel completely wiped out - just don't feel refreshed when I wake - feel like I could sleep all day too. Anyway, baby steps and one day at a time. I will see how it goes. The Predict measure has come back saying there is a 2% benefit - I really don't think that's enough to lose qmy uality of life for. I will give it a fair go and try and help myself as well with diet and exercise and take it from there. Thank you Ann and Jo
... View more
10-11-2017
10:41
Hi, I've been taking Tamoxifen for almost a month and feel a bit all over the place. So far I've got a persistent metallic taste in my mouth, have had some problems with the lady bits and feel exhausted and just not with it. I'm feeling quite low but don't want to burden my other half - he gas some idea and is very supportive but I just feel like I should be over this now and getting back to normal. I've also piled on the weight which is not helping but struggling to find any get up and go. I'm really sorry to post so negatively on here - I'm usually very positive. Any tips or advice would be gratefully received.xo
... View more
29-10-2017
04:56
Hi All,I've been taking Tamoxifen for almost two weeks. I feel like I have a nasty case of Thrush. Has anyone else experienced similar? I was going to get some over the counter medication - should I contact gp first? I'm guessing he would probably prescribe the same thing. Lizzie
... View more
17-10-2017
03:04
I've just read this - took my first Tamoxifen this morning and like you I feel totally wired. I fell asleep sometime after 12.30 - it's now just gone 3 and I'm wide awake. How are you doing now ten days in?
... View more
17-10-2017
02:51
Thanks Debbie - so far so good. I'm struggling to sleep tonight, it feels like I've had too much coffee but i haven't had any. I'm hoping this is just a coincidence and the result of a very long and busy day at work. Fingers crossed. Glad you are doing well so far xo
... View more
15-10-2017
08:10
Hi All, Hope you are all doing well. I'll be honest, I've read the threads, read the side effects and have put it off for as long as I can but tomorrow I start taking Tamoxifen. I was diagnosed in April, had a lumpectomy in May, didn't have rads until Sept (not my choice - staffing at the hospital and they assured me the time gap was absolutely fine). Oncologist recommended I waited until all had settled down after rads before starting T so I gave myself a date of 17th October. I've just had my birthday (51) and my children came home from their respective unis to help celebrate. My daughter is in her third year, my son in his first. This was his first time home since starting 4 weeks ago - he was desperate for some decent home cooking! I didn't want any possible side effects to spoil our time together. Anyway, we've had a lovely weekend, they are back to uni later - after a Sunday roast. I am going into it with an open mind. I hope to God I don't put weight on as I've already put on a stone and a half since March when I was recalled after my first mammogram. I eat when stressed! Everything else carries on as normal but I get fat. I will also be starting a healthy eating, healthy mind and body regime tomorrow - watch this space. My husband has been very supportive and loving and kind - I've asked him to tell me if I turn into a bit of a monster - I've done the same with my work colleagues. Fingers crossed - any tips appreciated. I was already premenopausal, night sweats and difficulty sleeping so am kind of expecting more of the same. xo
... View more
21-09-2017
08:58
Thank you Helena, and thanks to everyone on this forum for the support and kindness. Xo
... View more
19-09-2017
10:26
Last day of rads today - yay. Didn't think I would ring the bell, a bit embarrassed and all that, but when it came to it I rang it loud and clear. Best of luck to everyone with their ongoing treatment xo
... View more
16-09-2017
12:46
Day 13 of rads yesterday and feel absolutely shattered - have zero energy. I've worked through -only three days a week but a full on job. Looking forward to finishing - we will get there ladies xo @Laurajw wrote: I have worked all the way through my rads, but am self employed so felt i had less choice (no work no pay). My appointments were all afternoons (never at the same time though). It meant two things - 1) I cut my hours to mornings only, which meant i didn't have to worry about rescheduling work appointments when they ran late, 2) i could go home and chill when needed. I am tired now - it really ht me about week 3. I slept from 530pm to 630 am Thurs/Fri this week. Do whatever works for you and your body. try and plan in time for resting as needed and assume that you need extra time for the rad appointments so you are not stressed if they run late. Hope it all goes really well for you x
... View more
03-09-2017
07:51
Hi Merank, Well we are 3 sessions in - so far so good. Like you I'm struggling with the fluid intake but drinking decaf tea and coffee as figure that will count . We will soon be finished xo
... View more
31-08-2017
11:00
Hi Mama Bear I'm day two As well - my boon feels hot and a bit tingly. Xo
... View more
