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WolfEE
Member
since
10-05-2017
723
Posts
49
Hugs
25-05-2017
09:25
Morning girls. So I called the hotline number this morning as my temp reaches 38. They phoned my A&E and let them know I was on my way. I was seen very quick. My temp at the hospital was lower it was 37 something (just under the 37.5 danger range) they checked me over and said that as I haven't any other sysmptoms I could go home but I need 2 keep close eye on my tempreture and if it rises or I feel unwell get back quick. They told me I need a new thermometer because accurate readings are so important. The one I'm using is a digital ear one that I got new it was about £35 from Argos so god knows what a good one is?? I'm going 2 sort one out this morning. I'm so paranoid now. Regarding food. Today is my last day of steroids I've been eating toast, toast and more toast all the time toast. Oh and sweets sugar does not make me feel sick apparently!! Almost wish it would. Tomorrow I make a big effort and try eat more healthy.
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24-05-2017
06:17
Mine is 37.6 at the moment!! What mushrooms are you all eating? Certain type or all mushrooms. I love mushrooms and speaking of them I have a craving so may send my sister shopping later. I really fancy a mushroom how do you Cook them 🍄 🍄
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24-05-2017
02:59
Good luck MKJ and Katie today I'll be thinking of you. Who else is today I'm loosing track? I'm on day 3 after first FEC and still feeling lucky no sickness or anything to dreadful but have a very dull head and feeling a bit confused but so far it's fairing better than I'd expected. My tempreture is staying fairly high at the point that I'm supposed 2 call the number can't even think what that is right now but Monday during my treatment is was very close they said I may naturally run at a higher temp? How often do you all take temperature ??
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23-05-2017
03:30
2 Hugs
Hi All, 1st FEC done yesterday, the day went better than I expected. Arrived at the hospital for 9:15 and was on my way home 1pm. So far I feel great no sign of sickness I did have a headache but paracetamol has helped although I'm trying to limit as it can give lower temperature readings but for now I feel mostly unaffected (although restless as you can see I'm writing this 3:30am!!) but I feel well, hope it continues. Xxx
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23-05-2017
03:22
18-05-2017
09:44
AnnieA. What a tough 24 hours for you bless you and hope things start feeling a bit kinder. Have you had chicken pox before when you were younger? I'd get on the phone and get some advice as quick as poss ease your mind especially after the a&e experience. It's good they put you aside in your own room. Hope you have a better day xxx
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17-05-2017
06:25
Katie11 - all the time everything is on hold and different. Your good things will come lots of them xx
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17-05-2017
05:52
Mai7, no2 tomorrow your well on your way another one down 🙂 I wonder if it will feel any different 2 the first one? Hope it all goes ok tomorrow xxx It is a little reassuring that you feel perhaps it has made a difference when I saw the doctor who was arranging my chemo and I was signing the paperwork I asked her how will I know of it's working. She said that it would be myself the first one to know (I actually can't bring myself 2 feel it now I know what it is but I will do Monday morning so I have a measure guid) she said I would feel it differently. So the fact that your aware of some change is really good news. I know you have been looking in2 nutrition and combined with having had your first treatment are more aware of taste changes etc I wonder if you can help me on a simple but beneficial smoothie recapie. I brought a ninja blender today. I eat a lot of fruit as actual pieces and am aware that once you start crushing them they become high in sugar so limited fruit but I'm not great at getting plenty of veg and when I do I opt for the not so great ones like sweetcorn peas and carrots. So something not 2 overpowering but has some good stuff in for us ???? Thank you. All the best tomorrow
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17-05-2017
01:20
Good luck AnnieA xx Sarah19 / treehouse. My surgery will be after chemo mastectomy of infected side and lymph nodes removed at the moment they are suggesting some kind of temporary expander thing. Then I'll have rads. Then when recovered another op mastectomy on good side because of genetic history they will do my reconstruction of both sides while having this second mastectomy. I had always assumed implants however I have a twin sister and younger sister who are early days having talks about preventative and have been advised the tummy flap. The surgeon they have spoke with happens 2 be mine and had mentioned that it would also be a good option for me. As I still have full six chemos, rads and ops ahead of me I'm guessing I have a fair amount of time to decide?? Hadn't thought about nipples my C is behind my nipple so I'm sure it must go?? The tummy muscle type is perminant so nice 2 think no swapping of implants later on but recovery I think will be tough and not sure if it will prevent exercise etc on going?
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15-05-2017
05:51
Hi MKJ, looks like we will be starting the same week. I have my pre assessment Friday and start Monday!! So think u maybe just a couple of days behind me. I have an appointment at a salon Thursday this week 2 look at some wigs. I have spent weeks and weeks wishing I could start and now it's approaching I feel the same want 2 crack on because I've not had surgery yet and want 2 feel like I'm actively stopping this with something but the nerves are kicking in. Had a bad day at work today because until today my boss was going 2 middle through cover my work and I would get in when I can but the director announced today that he has contacted an agency and a temp will be coming in from Thursday. Now I feel as though they are not expecting me back???!!! Again it's probably so I don't feel pressured 2 keep going in but it had never been discussed until now.
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12-05-2017
09:58
Anniej, eekk - Avon products I think mostly all have the parabans in them, I've just been googling like mad and its not looking promising! OMG - so I went out and stocked up on Boots baby range, shampoo, bubble bath and wash etc thinking they should be a safe bet as babies are precious and all products must be free of harm and chemicals etc, apparently not im now panicking that even they are bad?? Why does everything now become a struggle all I want is to be able to pick up shower gel, deodorant etc with my weekly shop in Tescos or Boots as and when it runs out like any 'normal' person. Not have to go online pay a fortune and pre-plan weeks before running out and getting a delivery that ill never be at home to sign for!!!! I just want to feel normal. and then there is the diet........................ my breakfast for the past 3 years has been a protein shake full of soy!!!!!!!!! Soz, me moaning again sounding like a winger but with everything thats going on im feeling like ill never have a normal life again worrying every time I wash, eat and spending 3 hours in the supermarket reading and obsessing over ingredients 😞
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11-05-2017
03:55
Madi123, Big hugs for you, I know you will be feeling so confused right now and feel that you will never get your head around all of this but I can assure you that you will. I was diagnosed a few weeks ago then had various different tests, lots of waiting on results being told a game plan then it changing because the next set of results come back not as expected etc. I was a mess each day turning to a new obsession to focus my worry on, how long I was waiting for treatment, has it spread, what should I eat, what couldn't I eat, what lotions can I use, its the unknown, waiting and fear it all plays havoc on your mind. The point im getting at is earlier this week I finally had all results back and my treatment plan put in place with a date and it has helped so much, over night a weight was lifted and i feel now for the first time that I can and will get through this. I now realise the weeks of agonising waiting, tests and appointments had all been in my best interest and the more the doctors learn early on about your situation the better the treatment will be tailored for you so it is worth it although you can not appreciate it at the time - just hold in there and it will get easier. So me: 37 years old, Grade 2, ER+ PR+ Her2- lymph nodes tested positive with strong family history (this is why last minute my surgery and chemo was swapped and as suggested maybe for you. I will now have chemo first (starting 22nd MAy) this was decided only a few days ago so does not leave me time for egg preservation! I really think you need if possible to try and contact some younger people that you can speak with as they will understand from a younger perspective what you are going through. I wish you all the best and ill be thinking of you. xxxx
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11-05-2017
03:22
Hi Girls, hope your all doing ok today. Quick question I have noticed a few comments on daily injections!! can i ask what are they and does everyone have them? xx
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11-05-2017
03:13
Hi Sandra, yes very unlicky about the splash! I have only just started looking at how to care for your arm after having them removed. I have seen that an insect bite can be a problem and that Avon do a dry oil spray in the skin so soft range that has a natural insect repelant in it, wasnt designed for that but somehow ended up doing just so and people recomend it when going on holiday. im thinking to have a bottle and spray my arms with that all year around so that 1.) it will keep my skin soft but 2.) help prevent any little insect bites on a daily basis it will be cheaper and smell nicer than a chemist perpose insect repelant. Also you will need an electric razor for shaving so you dont cut yourself if you have loss of feeling under your arm. it is all scary but not a fraction as scary as the BC coming back so im sure we will learn to manage with the do's and dont's and have no regrets. xx
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10-05-2017
07:45
Oh forgot 2 say. My name is Emma (WolfEE) my first chemo FEC-T starts on 22nd May so I have just over a week until it all begins. Wishing you all well that have already started. X
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10-05-2017
07:39
1 Hug
Hi Mai7, thank you for your message in the recently diagnosed post and the invitation on2 this group, just having a quick read through now familiarise myself with everyone xxx (Appologies now as it will soon become apparent but I am a terrible (or should I say lazy) speller so forgive me now for any perculier words and good luck 2 u all working them out. X
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10-05-2017
06:59
Sandra, wise move I think having the axillary clearance I feel the same we may as well do everything we can 2 prevent anything coming back and give peace of mind. Oh the tablets 😩 Forgot about that bit, me also 10 years they sound like joyful little things!!!!!! Hope you are recovering ok from the lymph node clearance. I only had a few taken about 4 weeks ago (biopsy) and I must say some strange feelings however I have just realised that it feels a lot better the past few days 👍
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10-05-2017
06:26
Lol. Can you tell this is my first day using the forum I'm not linking my comments with who they are intended - confusing !!!! Xxx
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10-05-2017
06:25
Will you have chemo and or radiotherapy now you've had lumpectomy? I think my plan at the moment is. Chemo, mesectomy on bad side with lymph node removal and tissue expander, radiotherapy and then preventative mastectomy and both reconstructed at the end. So looking at over a year!!!!!
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