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dragoncarine
Member
since
12-05-2017
131
Posts
38
Hugs
23-09-2017
04:10
I work at the School in Romsey - take time off whenever I need it. I'm having regular reflexology sessions and really appreciate the calm away from School!
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20-09-2017
09:26
Been in to Jane Scarth house in Romsey - date is wednesday 27th Sept, 2-4pm - sounds really good. Sadly I can't make it as I'm due to have radiotherapy on my arm that afternoon as pain is getting very annoying now.
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17-09-2017
03:11
If only Nicki & I are able to make it, should we rearrange for another day - or shall we still go ahead with tomorrow?
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17-09-2017
10:05
I am intending to be there, will leave work just after 2 (when playground is clear of kids so should make it by 2:30). My washer upper lady has been given extra hours to cover for me when I need time off.
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13-09-2017
09:17
Just waiting to se what I've got on atwork for monday, off today for hospital so hopefully will confirm by end of tomorrow. I intend to be there unless there's a mad rush of teacher panic requests.
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29-07-2017
09:51
Welcome, I'm fairly new here (diagnosed in May, primary Breast Cancer in 2005). You're lucky you're getting a bone scan so early, I've been complaining of pains in my ribs, arm, shoulder, back etc since August and had all sorts of Physiotherapy and exercise advice, even had a mammogram before eventually cancer was found elsewhere purely accidentally. The bone scan then helpfully showed black spots everywhere I'd been having pains. Do ask for a print out of your scan as it's quite cool to have a picture of your own skeleton (maybe that's just me...). I also had a CT scan booked at the same time as a biopsy had shown that there were metastatic cancer cells already present - so I already knew that. I was really surprised when I found out I wasn't to have more chemo though (just more Tamoxifen & bone strengthening stuff), sort of getting used to it now. Hope your scan is conclusive one way or the other - it's horrible having unexplained pain. I'll also recommend the "avoid Google" advice as I found to my cost that it was quite scary.
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26-07-2017
05:16
Is there anything we can do about the issue of having to pay for dental care when problems are caused by our cnacer treatment. Seems totally unfair that we have to pay for this just because we live in England. Has anyone started a campaign I can sign up to?
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26-07-2017
08:02
Hello, I plan to be there. I'll be on the bike, so easy to recognise as I'll either be in black leather or if it's raining wrapped up like some sort of black michelin man Got my appt to find out results of first scan since treatment began later today, feelings a little mixed at the moment but hopefully I'll be a little more settled by Monday. Update: scan results show Tamoxifen working, huge relief and feeling decidedly more positive about life
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23-07-2017
09:09
I had bone scan and CT scan on diagnosis. CT scan doesn't really show the bone mets very well, bone scan is significantly clearer but no good for soft tissue mets. Just had my second CT scan, but they have not suggested a second bone scan, I think it's because it's easier to spot changes in the CT scan when they know which area to look at.
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20-07-2017
06:51
Hello. I can do 31st July or 18th August but will be in France 1st to 17th August visiting family. Location not that much of a problem for me as I can get most places fairly quickly & easily
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14-07-2017
11:57
First thing I had was bone scan - it was really cool to have a print out of my skeleton! What was nice was seeing that all the pains I've been complaining about showed up as black spots on the scan. Had to have injection of radioactive stuff then come back 2 hours later (not a problem for me as I live so close to hospital). I had an extra scan of my skull (got a spot there) and some close ups of my ribs as there's been quite a lot of pain there. was similar experience to CT scan (which I had the following day).
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13-07-2017
07:07
I live in Southampton too, only recently diagnosed - I've just had 2 weeks off work but going back on Monday morning (afternoon off for CT scan) - I'm generally around if you want to meet up though.
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08-07-2017
02:43
I feel quite annoyed that all my post breast cancer screening (annual mammograms for 5 years, then a few extras at my request) failed entirely to spot my metastasis. After a routine test (in April) of a cyst I had removed for cosmetic reasons showed up cancer cells, I was given bone scans & CT scans at which point we discovered bone, lung and possibly liver mets. My question is why are post breast cancer patients offered mammograms and not bone scans? When all my research seems to indicate that most common recurrence is in bones? Surely all those mammogrmas I had were a waste of NHS time & money, would have been better to have a bone scan every 5 years possibly? I'm particularly upset that my repeated visits to GP about pain in my upper arm, ribs & sternum did not trigger any alarm bells although in hindsight it seems obvious (bone scan showed quite clearly all the areas I have been having pain). I even went as recently as January for my latest Mammogram with an extra Ultrasound check on my sternum area because I was so concerned about the pain, but results came back as nothing of any concern. Does anyone else feel this way? Please could someone tell me that their mammograms did pick something up as otherwise it seems they were offered purely to keep me happy while my cancer was merrily growing away inside
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08-07-2017
02:24
1 Hug
Had first Denosumab injection nearly one month ago for Bone mets (also having Tamoxifen but nothing else at the moment, I aslo have lung mets and possible liver). Got scared by talk of Osteonecrosis so have been reluctant to admit to recent toothache. Next injection due next week - I know I should call dentist/cancer centre but it's weekend now. Pain killers seem to help at the moment but I don't want to not have the injection as I'm scared that means that cancer is not being fought. Does anyone understand? Anyone else have toothache early on in Denosumab treatment - could it be entirely unrelated? I did go for recommended check up before starting and dentist said my teeth were all healthy.
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03-07-2017
07:09
So it's all finally sinking in and I'm taking a couple of weeks off work to get my head round what's happening. So if anyone is free, would be good to meet up
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02-07-2017
09:05
thank you 🙂
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01-07-2017
09:26
I think the worst thing is that I'd been going back to GP on and off since August about these pains, even had a mammogram back in January and ultrasound scan of sternum at the same time because of my concerns... every time told there was nothing to worry about. Oncologist now reckons my cancer must have been growing for quite a while so obviously was there but not spotted. Looking at the Bone scan the areas were really clear, not so much on the CT scan - which is why I'm confused they're only redoing the CT scan - are bone scans more expensive? Is it possibly easier to see differences on CT scan once you have a baseline maybe? Also on a side note I can't help thinking that all the mammograms I had after my breast cancer were a waste of time & money since they failed to spot the metastasis. Anyone have a positive story about mammograms to make me feel better?
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01-07-2017
07:29
Bone scan showed up areas of cancer in sternum, ribs, upper arm, shoulder blade & skull. I get pain in my arm when I move it and pain in my sternum when I breathe (i.e. all the time). Prior to accidental diagnosis the pain was put down to a possible rib/muscle injury. I've been put on Tamoxifen & Denosumab but no other treatment. Still struggle to accept that they can't just cut the cancer out like last time. I also have one lung which is half full of fluid & has "several nodules", a couple of suspicious spots on my liver, a skin cyst (in which the cancer was discovered) that is now regrowing after having been cut out. Feeling fed up with the pain - I have CoCodamol & Dihydrocodeine but hate having to live on pain killers. Does it get better? Only had the one scan so far. Got a second CT scan booked for a couple of weeks time to see if there's been any change but no second bone scan - not sure why this is? I get the impression the hospital don't really care about the bone mets and they're more worried about the lung & liver although I have no symptoms from those. Sorry about rant, I've been feeling fed up a lot the last couple of days
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26-06-2017
01:59
had a mammogram and ultrasound in Jan because I was concerned about lump & pain - confirmed nothing there to worry about. Had lump removed by GP because it was unsightly - next thing I know I get called as routine biopsy showed up cancer cells - subsequent bone scan & CT scan showed up bone tumours in all the places I was complaining about the pain, including area that was scanned in Jan as well as lung & liver problems. Not convinced there was any point to all those mammograms & ultrasounds I've had over the years since they failed to pick it up
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