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dragoncarine
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since
12-05-2017
140
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20-10-2017
12:21
I had an 11 year gap. Primary BC diagnosis in 2005 - treatment "finished" (so I thought) a year later - no regular scans except mammograms which failed to pick up the rather extensive bone mets, these were found accidentally due to routine check of something else in April this year (along with lung). Now having CT scans every 3 months (well I've had 3 so far). Had 1 bone scan initially but not had more - may ask why at next appt. Still get annoyed that no bone scan was offered in between 2006 and 2017 - especially as I have been complaining of pain since August 2016 - and now suspect some twinges I had years before may have been related too. However, can't complain too much as my life has been pretty good since as I determined after 2006 to live and enjoy myself, thinking (quite rightly as it turned out) that you never know what's round the corner. I'm still having a good life although positivity seems to escape me occasionally. Trying not to get too negative but sometimes it just comes over like a wave and I have to remind myself of all the good things I have that I probably wouldn't if I hadn't had this diagnosis.
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07-10-2017
06:30
Or Colebrook street is good - it's by the council offices (and it's where the motorcycle parking is so that's where I'm heading).
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05-10-2017
01:14
I have a small lump on my sternum too - in fact it was thanks to that that I got my diagnosis at all, as I asked GP to remove the "sebaceous cyst" for cosmetic reasons and then it got biopsied (they do that as a matter of course apparently). Anyway even though lump has now regrown, onc keeps insisting it is just a cyst and seems unconcerned that it bothers me having a third nipple in the middle of my chest. I have asked at every appointment if we can't cut it off again - original surgeon was willing to remove it with a wider margin but onc keeps saying wait and see. Feeling a bit fed up today - most of the time I'm more positive than this but I hate this visible sign. As far as I can gather, hospital seem far more concerned about my lungs (which I suppose is understandable) however I have no symptoms from the lung mets, just pain in my bones (sternum, shoulder blade, ribs & arm although arm recently radioed so hopeful that that's improving) and this annoying spot - which is now beginning to get itchy as well as being most unsightly. It's getting so that I don't want my partner to look at my naked chest anymore which is very upsetting. Sorry rant over, back to work...
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04-10-2017
06:36
18th is better for me as I'll need to spend monday at work catching up from having friday off (CT scan).
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25-09-2017
08:15
Been offered this and was wondering what other people's opinions are. I have never had one before as I have never felt the need, being a generally healthy person (apart from the toxic cells inside me). Mets in Bones & Lungs, so have been told it may be a good idea but is it worth doing? I did not bother during my primary breast cancer treatment even though immune system was weakened due to chemo. Not on chemo now (Hormone suppressants only currently), but is the damage to my lungs reason to go for it?
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25-09-2017
11:48
I can't do: 4th, 5th, 6th, 13th, 20th, 23rd, 25th October as far as I know. Other dates in October should be fine. 23rd to 27th is half term so Tuesday 24th, Thursday 26th or Friday 27th would be handy as I wouldn't need time off work.
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23-09-2017
04:10
I work at the School in Romsey - take time off whenever I need it. I'm having regular reflexology sessions and really appreciate the calm away from School!
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20-09-2017
09:26
Been in to Jane Scarth house in Romsey - date is wednesday 27th Sept, 2-4pm - sounds really good. Sadly I can't make it as I'm due to have radiotherapy on my arm that afternoon as pain is getting very annoying now.
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17-09-2017
03:11
If only Nicki & I are able to make it, should we rearrange for another day - or shall we still go ahead with tomorrow?
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17-09-2017
10:05
I am intending to be there, will leave work just after 2 (when playground is clear of kids so should make it by 2:30). My washer upper lady has been given extra hours to cover for me when I need time off.
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13-09-2017
09:17
Just waiting to se what I've got on atwork for monday, off today for hospital so hopefully will confirm by end of tomorrow. I intend to be there unless there's a mad rush of teacher panic requests.
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21-08-2017
06:22
All those days fine for me as long as I'm not to busy at work.
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29-07-2017
09:51
Welcome, I'm fairly new here (diagnosed in May, primary Breast Cancer in 2005). You're lucky you're getting a bone scan so early, I've been complaining of pains in my ribs, arm, shoulder, back etc since August and had all sorts of Physiotherapy and exercise advice, even had a mammogram before eventually cancer was found elsewhere purely accidentally. The bone scan then helpfully showed black spots everywhere I'd been having pains. Do ask for a print out of your scan as it's quite cool to have a picture of your own skeleton (maybe that's just me...). I also had a CT scan booked at the same time as a biopsy had shown that there were metastatic cancer cells already present - so I already knew that. I was really surprised when I found out I wasn't to have more chemo though (just more Tamoxifen & bone strengthening stuff), sort of getting used to it now. Hope your scan is conclusive one way or the other - it's horrible having unexplained pain. I'll also recommend the "avoid Google" advice as I found to my cost that it was quite scary.
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26-07-2017
05:16
Is there anything we can do about the issue of having to pay for dental care when problems are caused by our cnacer treatment. Seems totally unfair that we have to pay for this just because we live in England. Has anyone started a campaign I can sign up to?
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26-07-2017
08:02
Hello, I plan to be there. I'll be on the bike, so easy to recognise as I'll either be in black leather or if it's raining wrapped up like some sort of black michelin man Got my appt to find out results of first scan since treatment began later today, feelings a little mixed at the moment but hopefully I'll be a little more settled by Monday. Update: scan results show Tamoxifen working, huge relief and feeling decidedly more positive about life
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23-07-2017
09:09
I had bone scan and CT scan on diagnosis. CT scan doesn't really show the bone mets very well, bone scan is significantly clearer but no good for soft tissue mets. Just had my second CT scan, but they have not suggested a second bone scan, I think it's because it's easier to spot changes in the CT scan when they know which area to look at.
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20-07-2017
06:51
Hello. I can do 31st July or 18th August but will be in France 1st to 17th August visiting family. Location not that much of a problem for me as I can get most places fairly quickly & easily
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14-07-2017
11:57
First thing I had was bone scan - it was really cool to have a print out of my skeleton! What was nice was seeing that all the pains I've been complaining about showed up as black spots on the scan. Had to have injection of radioactive stuff then come back 2 hours later (not a problem for me as I live so close to hospital). I had an extra scan of my skull (got a spot there) and some close ups of my ribs as there's been quite a lot of pain there. was similar experience to CT scan (which I had the following day).
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13-07-2017
07:07
I live in Southampton too, only recently diagnosed - I've just had 2 weeks off work but going back on Monday morning (afternoon off for CT scan) - I'm generally around if you want to meet up though.
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08-07-2017
02:43
I feel quite annoyed that all my post breast cancer screening (annual mammograms for 5 years, then a few extras at my request) failed entirely to spot my metastasis. After a routine test (in April) of a cyst I had removed for cosmetic reasons showed up cancer cells, I was given bone scans & CT scans at which point we discovered bone, lung and possibly liver mets. My question is why are post breast cancer patients offered mammograms and not bone scans? When all my research seems to indicate that most common recurrence is in bones? Surely all those mammogrmas I had were a waste of NHS time & money, would have been better to have a bone scan every 5 years possibly? I'm particularly upset that my repeated visits to GP about pain in my upper arm, ribs & sternum did not trigger any alarm bells although in hindsight it seems obvious (bone scan showed quite clearly all the areas I have been having pain). I even went as recently as January for my latest Mammogram with an extra Ultrasound check on my sternum area because I was so concerned about the pain, but results came back as nothing of any concern. Does anyone else feel this way? Please could someone tell me that their mammograms did pick something up as otherwise it seems they were offered purely to keep me happy while my cancer was merrily growing away inside
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