Hi Liz, Sorry to read you’re going through this! I don’t know if you’ve read any other threads about ONJ? I had dental work done, all healed and was well for 8-9 months and then I spontaneously got an infection, several courses of antibiotics followed but things would only temporarily improve before another infection. Then my mouth swelled up and I was told it was a blocked salivary gland, more antibiotics followed and I was then referred to Max Fax. I had x rays, and an MRI, I knew they were suspecting the cancer had spread and I was told my case was unusual because I’d only had 5 or 6 doses of Denusomab beforehand (my dentist had missed some decay under a crown at my check up prior to starting treatment) and it had initially healed so well, but my MRI was clear and it was just infection! While taking the antibiotics for the suspected blocked salivary gland I took pre and probiotics and started making my own Kefir and Sauerkraut and never got any further infection which was a relief because at that point I’d had about 6 or 7 courses in as many months! I believe replenishing my gut while having the stronger courses of antibiotics was definitely worthwhile. I was a nurse so have seen the body do some amazing things but what followed surprised me...where the initial infection had been caused a splinter of bone to separate away from my jaw bone, and it was that which appeared to be my jaw breaking down while underneath it my gum healed, sealing off any exposed bone. That was almost a year ago and I’ve had no further problems..touch wood 🤞🏻 !! So, while not exactly like your situation, there are some similarities. I hope all goes well for you and the results are positive. Please let us know how you are getting on, Kate xx
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