Breast Cancer Now Forum

I have a port Moijan and it’s great! It’s a good job I have it really as I had a cannula for my first round and in now have a case of phlebitis! Been given antibiotics this morning which is rubbish!! Hope everyone’s side effects have been kind to them this weekend! I feel much more human now... it’s only taken 2 weeks!! All ready to go again next week....!! I think someone might have to drag me there and tie me down at this rate!! Dreading it already!!! Xx ... View more

Runawaygirl - I could have written that post myself. Round 5 for me has been the worst. I feel like I have had every side effect this time and my body literally cannot take much more. I’m Day 9 post treatment and I’m still feeling rotten. No taste, no appetite, just all round meh! I honestly don’t know how I’m going to drag myself to the last one to do it all over again??? Kirsty - well done for finally getting there!! Let us know how it goes and hope the meeting with the surgeon goes ok!! 🙂 Xx ... View more

Thanks ladies... definitely feeling it this week!! Just got to get through it I know. Super hard when you are in the thick of it and the side effects are dragging you down every day. I need to toughen up today!! Xx 💪🏼 💪🏼 ... View more

*Rant alert! * I’m 7 days post round 5 and absolute fed up!! . Anyone else really feeling the drag of all of this? I just don’t know how I’m going to rally myself up for number 6. I’m sick of feeling so poorly after chemo, I’m sick of how I look and feel... please please tell me this is all worth it 😞 😞 😞 Xxx ... View more

Wow ladies... these stories are just amazing to read!! Thank you to every single one of you who has shared a little insight into their journey! Please keep this bumped up for others who have been newly diagnosed as this is exactly the sort of thing is newbies need to read!!!! 💖 💖 💖 💖 ... View more

Hey ladies - sorry to hear some of you have had bad news over the past few days 😞 hope your weekend has been as good as it can be though. Moijan - I get aches and pains around my shoulders/back/collarbone for the first week of treatment. I was told it was the Docetaxel that was causing that. I think the Gscf injections can also cause pains too so it’s a double whammy! I’m Day 5 of round 5 today and Iv been struggling this time. Not sure if it’s the cumulative effect but I feel like I have been hit by a train this time. Is anyone else feeling the same? I’m worried that round 6 will be even worse 😫 😫 Xx ... View more

I’m also on the levomeprozamine too!! I take one at night and it absolutely knocks me out. Had no idea it was an anti psychotic though!! The nausea is at bay at the moment... but I suffer with delayed nausea so can’t really tell how they are working until around day 4 of 5! Really hoping it works though as I have round 6 to go yet and each round seems to be getting worse... 😫 xx ... View more

Thanks ladies. I’m on Akynzeo and cyclizine. Ok at the moment but feel totally spaced out and keep falling asleep. I’ll take it over feeling super sick... but I’m not with it at all!! Anyone else been on these meds and felt the same? Xx ... View more

Thanks Unicorngirlmummy/ Camilla— I have been given a whole new set of anti sickness this time .., so I’m hoping they work and keep the nausea away!!! Karebear - I had a genetics meeting about a month back. They talk about your family history etc. I had a blood test taken before my round of chemo this week and get my results in about 4 weeks time. Hope everyone is ok today 🙂 xx ... View more

Thanks Camilla! All hooked up and ready to go now!! Been given a super duper anti sickness tablet... so really hoping that works this time around!! Day 12 for me was the turning point too so hopefully onwards and upwards for you now!! 🙂 Xx ... View more

Oh Camilla I feel your pain. My taste has only just returned to normal and I’m back to it tomorrow for number 5. Just got to keep ticking the days off and getting through one by one. I’m dreading the nausea and indigestion like you wouldn’t. believe ... but just trying to think that we are closer to the end of this cycle of treatment than the beginning 💪🏼 ... easier said than done I know!!! Xxx ... View more

I have new meds prescribed so just keeping my fingers crossed!!! Xx ... View more

Round 5 is next Tuesday for me Kirsty. Dreading it already! I had pains with my first cycle (not as bad as you though) but it’s the nausea that floors me! Been told that the Carboplatin rather than the Docetaxel though xx ... View more

How frustrating though particularly when you were ok with FEC! I guess the one consolation is that you only have one more to go 💪🏼 Xx ... View more

Wow Kirsty... that’s scary!! They definitely should have told you they were upping the dose though! I didn’t know that was even a thing?? Hopefully they get the meds right for next round though...!! When are you next seeing your onc? Xx ... View more

I’m on them meds Camilla (been on them from the beginning) and can safely say that as sick as I feel up to around day 11 ... things go back to normal (ish) for the last 10 days!! Have faith that you will be able to taste the pancakes soon! When is your next round? Xx ... View more

Oh I know that feeling ... although I seem to make up for it in the last 6 days before my next round of treatment and am eating everything while I have some sort of taste back!! 2 more though 💪🏼 Xx ... View more

That’s great news Camilla!! Makes the slog of chemo seem so much more worth it doesn’t it! How many rounds do you have left? Xx ... View more

Ah thank you Runawaygirl - I didn’t realise that’s what they did!! I guess I will see what node involvement I have when i have my surgery then. It’s looking like April — I feel scared as I’m now moving to the next step of treatment! I had a meeting with my oncologist about the sickness last night and I have been given all the anti sickness meds ready for next week! I just hope something works!! I Good luck today Camilla- keep us posted on how it goes 🙂 How are the side effects today Kirsty? Hopefully things have been better than last round!! 🙂 ... View more